The Geneticist got the results back for the Microarray and the Fragile X, both test were negative for both boys. He believes what we are dealing with is "Metabolic." Ha, after hours of researching I concluded that can mean hundreds of things. They submitted more blood and urine for more test on the 19th, awaiting those results.
We worked really hard at fundraising to bring Blue home. As a special Thank You gift for two of the highest donors, we had these made by L&E Creations (they can be found on facebook). We love these mini Brynn and Brett's! We mailed out some other gifts (Bracelets, Shoestrings
and necklaces) to anyone who donated $250 or more. We learned a lot through this fundraising adventure and hope to help others reach their goals as well! We are so very grateful for the families that helped! We know Blue will be so full of love through everyone's gifts and prayers! Brett's new glasses seem to be helping him to see better. He still cannot wear them whenBrynn and Brett were recently blessed to participate in the Warrior Beads Program through http://www.1boy4change.org/
Chris and his Mom are a tremendous blessing and this is a great cause to donate to. They are a 501(c)(3) Charity too!
I was in tears when I realized the seizure count estimates. Anyone who knows me, knows that we don't count small seizures. If it's not a few minutes long I don't journal them, except noting seizurish, cognitively slow or Aura. Brynn was not diagnosed until his 11th Birthday October 2010. Brynn's estimated seizure total since diagnosis? 744. Brett was not diagnosed until he was 8, in
WoooWhooo Just 17 days till Blue comes Home!! Here is the
Amazon Home Coming Wishlist for Blue! We are so excited for
our Beautiful Blue to come home!!
Brynn and Brett LOVE getting the packages addressed to The
Epilepsy Warrior Boys for Blue, when you order through the
wish list they come straight to our door!! Take a Look at this
Oh... DON'T FORGET!! Thursday March 26th is Epilepsy Awareness Day!! :)