For in this hope we were saved.
Now hope that is seen is not hope.
For who hopes for what he sees?
But if we hope for what we do not see,
we wait for it with patience. -Romans 8:24-25
I find myself reliving the old memories, I would much rather forget. Watching Brett's Epilepsy get out of control, the medications not stopping the seizures, watching him struggle to do what he would have said was "baby work" two years ago and the fear of what could happen is at times more than I think I can bare.
Yesterday, Brett had a bad. He was eating lunch and his head dropped hitting the counter. Eyes rolled back, drooling, unresponsive for what seemed like an eternity. After a few moments he raised his head looked straight into my eyes until the rolled up and to the right. Both arms started jerking... His eyes came down as he babbled nonsense words lost... completely lost in a seizure.....
Of course it is not me who should carry this burden, at times it is difficult to put all of this in the Fathers hands and leave it there. It's more than I can handle and there is nothing I can do to fix it. All I can really do is surrender it to the Father and trust Him and Him alone.
Two more Complex Partial seizures followed, rescue medication given...
I thought he seemed okay three hours later and traveled to town to pick up a few things. In the parking lot a Tonic Clonic occurred... Made it home with my now wobbly and confused boy... only to see him endure 5 more seizures...
Aftermath... I sit here sometimes and I get so frustrated. Hearing Brynn stomp loudly enjoying the pleasure of making noise, tap with and on just about everything, yelp & bark... I sit frustrated and then I think back, realizing what a battle he has been through. Realizing how blessed we are they he is doing so well. Realizing just how special he really is. It's hard sometimes to look at this BIG 14 year old boy and accept him where he is. To accept that to him it is perfectly acceptable to get such pleasure from such noise making adventures. I am his Momma and I have to remind myself at times that he may be 150+ pounds and although he has hair on his upper lip, his brain has not caught up with his body. I do worry will someone be able to see him as the beautiful blessing he is, a child at heart when I am gone. I watched him gain and loose so many things over his lifetime. I watched as parts of him slipped away and never returned. I watched his struggle and I fought to keep him, every part of him here with us. I struggle not knowing with every seizure what memories may be lost or what parts of my sweet Brett may return.
be patient in tribulation,
be constant in prayer.