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Monday, August 29, 2011


 Today it was evident that Brynnon indeed did loose some of his former learning with that seizure. His Reading was very Slow and Labored, although it was the same story we read Monday-Wednesday last week and he did great. I didn't even see the point in stressing him with Spelling so he did his computer work instead and no written work. I wish there was an easy way to switch the part of the brain that seems to slow down after a bad seizure into high gear again. Perhaps it just needs time to heal or get the cells back in order again... It just breaks my heart that he has such a hard time of it. He is 11 years old, barely reading on a 1.6 level and "was" Spelling on a 5th/6th grade level. I cannot stress enough how great the AVKO Sequential Spelling is! I am so thankful that he was blessed with a lot of common sense. It's funny how people who have not spent any time with him become judges on how smart he is and how he doesn't have a low IQ... I know they think is bad, lazy, not trying, a boy... whatever. It doesn't take but a few times to know who you can and cannot talk to about Brynnon's condition. Of course today was the day Brynnon would ask what grade he is in... Arghhh... Really, today of all days. I had to be honest, especially when he asked what grade his reader was. Middle of 1st Grade... but... You can Spell some 6th grade words, so you must be in 3rd grade!  Looking to get him an additional alarm, a pulse oximeter that can help alert us in the event his oxygen level drops and would keep a record of his oxygen level for the docs too. It's going to be a long wait now until early October for the results of his testing with the neuropsychologist... and after this seizure and oxygen loss how accurate are the results going to be anyway?
 Emotions are running in overdrive around here... My Fibro is acting up more than usual... Prayerfully this will all settle down quickly... PLEASE!!! As I responded to a friend today... I know it will get better... with a little time, lots of patience and an abundance of faith... All Things Are Possible!!
This too shall pass... Really it will...  RIGHT??? 

Sunday, August 28, 2011

New Scool Year

  We have had a great start to our new home school year. Brynnon has completed testing with a Neuropsychologist. Unfortunately, it will be early October before we meet with him to get the results and probably mid October before I get the full report in writing. I hope it will be a time for answers as this Dr. specializes in the assessment of AD/HD, Autism Spectrum Disorders, Learning Disorders, Brain Injury, Epilepsy and Seizure Disorders, Tourrette’s and Movement Disorders, Developmental Delay, Dementia, and Chronic Pain. Brynnon could easily fit in several of those categories.
  Brynnon is almost recovered from a tonic/clonic seizure this past Thursday morning. My Niece Janice is staying with us and she is sleeping in Brett's bed.  Brett never wanted to sleep in his bed, when he did, he almost always ended up on the living room sofa before morning anyway. She went to bed and heard Brynnon moving a lot. This is not uncommon for Brynnon with the jerking he does at night. When she listened more intently, she thought he was choking and got up to check on him. She realized he was having a seizure and came to get me. I asked for the time and it was 1:48 AM. I turned him on his side and prayed. I knew he appeared to not be breathing and prayed for him to breath... It was 1:51 AM when I asked my Daughter to call 911 as his lips and chin turned blue. It was 1:50 when he started breathing and stopped jerking. He went into the sleep stage and came out 3-4 times with a blank stare and a few seconds of stiffening and a few jerks each time. Prayerfully this will be the last one... It was very frightening... Every seizure is frightening and as his Mother, just breaks my heart.
  Brett is doing great in his school work so far and he is excited to read new stories and start the AVKO Sequential Spelling that Brynnon has used for the last two years! It's on to Book 2 for Brynnon and Brett will start Book 1! Brynnon has had a few days off, and will start again on Monday! It's still HOT HOT HOT in Southern Louisiana! Temps today were approaching 100 and it felt like 105, or so says the news, felt like 110 to me!
 Be blessed until next time,