tag:blogger.com,1999:blog-43800248082384978672024-02-18T23:00:18.309-06:00Maybe it's not your REALITY, but it's MINE!I am a Home School Mom of 6 blessings... They are Tera (25), Bri (23), Brandon (20), Brynnon (16), Brett (11) and Abigail (5). This blog will be about anything from Home School life... to Budgeting... to Seizure disorder and Epilepsy... to Learning Disabilities... Just my life in general, being a Home School Mom of six with Fibromyalgia... This is my reality!Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.comBlogger89125tag:blogger.com,1999:blog-4380024808238497867.post-10168666449983928172016-01-24T22:35:00.006-06:002016-01-24T22:35:42.225-06:00WE MOVED!! <div dir="ltr" style="text-align: left;" trbidi="on">
<span style="color: #351c75;"><span style="color: #674ea7;"><span style="font-size: x-large;">I have been having trouble getting my post through blogger to post correctly... So we have moved over to Word Press:</span></span><b><span style="font-size: x-large;"><br /><span style="color: #674ea7;">http://epilepsywarriorboys.com/</span></span></b></span></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-662892229670357882016-01-22T23:59:00.000-06:002016-01-24T20:59:41.561-06:00Catching up! <div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: large;"><b><span style="color: #351c75; font-size: xx-small;"><span style="font-family: "georgia" , "times new roman" , serif;"><span style="color: #351c75; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;"><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif;"><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;"><span style="font-size: xx-small;">There are a few of you who follow this blog of my sporadic at best ramblings who are not involved in social media, so sorry for the long span without an update. We have been on this Epilepsy journey since 2009, starting with Brynn. Never did I consider it was even possible for any of our other children to develop epilepsy. There are a few people that say things like "Your so strong." I hate that because I am not at all strong. Without God's grace and help, I would have never been strong enough to get through the stress and trauma I have seen in my life and surely this epilepsy monster would have put me over the top. I have likely done more research than the six neurologist, too many pediatricians, Psychologist, Neuropsychologist, </span>two <span style="font-size: xx-small;">epileptologist's</span><span style="font-size: xx-small;"> and the geneticist combined trying to figure my boys condition and cause of it, what </span><span style="font-size: xx-small;">we are dealing with and how to help them. I have still not given up, like everything else in my life I am geared to over obsess over problems until I to let it go because I start to loose </span><span style="font-size: xx-small;">my </span><span style="font-size: xx-small;">mind or until I reach the answer, whichever comes first. Unless you have a </span><span style="font-size: xx-small;">child with intractable refractory epilepsy it's impossible to </span><span style="font-size: xx-small;">comprehend the roller coaster that we live on. Every day, you</span><span style="font-size: xx-small;"> wake up and brace for the unknown. Seizures seem to constantly change and evolve either for the better or worse, but nothing stays the same long. We have been blessed to see weeks without a single seizure and we have struggled when we watched the twinkle in their eyes disappear as seizures took over and stole their precious memories, learning, endurance, laughter and fight away. At least, that is how our journey has been. Plans? We don't often get to make plans. It is much easier to live spur of the moment. We have left seizure clinic in a wheelchair half the times we have been to see the neuro and once in an ambulance for status just getting a seat belt in the wheelchair. I have forgotten to bring shoes to the ER, forgotten what medications they take, even given the wrong age and date of birth to paramedics. I am lucky I remember my own name in an emergency. I have zero sense of direction, and just so you know, I couldn't find my own home without a GPS if I go too far from home! I am far from being smart, I know all you e-moms think I am. Trust me, I have read thousands of studies and articles about epilepsy, </span><span style="font-size: xx-small;">regions of the brain, genes, seizure types and anything else I can get my eyes on. The better I understand things the better I deal with them. Regardless of the situation, I am not the "take two of these and call the doctor if you have a problem" kind of gal. Nah, I gotta know what to call this thing we are treating, research all I can about it, know what caused it and the name and every detail about that drug the Dr. just wrote on his script pad before I put in down any one's throat! Epilepsy has been my weakness, I don't know why it's happening and in spite of the years of research. I still don't know how to fix it or even what caused it. Brett's journey has been much worse than Brynn's. He has had months of sleeping 16-19 hours a day and even on good days he sleeps 12-14. His seizure counts in the last six months average 3 a day. He has a large variety: Tonic Clonic, Atonic, Complex Partial and Simple Partial/Aura's. We still do not count any seizures that are shorter than a minute, unless they come in a cluster and count that as one. When his seizure counts were lowest, his quality of life poorer. Seizure counts higher and he lost endurance, balance, cognitive function and his laughter disappeared. Since his ammonia level and platelet level scare, we never have been able to find balance again. We lowered Depakote and saw an increase, went back up added Carnitine to try to help his ammonia level stay down that helped until a few weeks later he crashed again. We added Onfi, and I assumed that he would do well on it since Brynn has and hopefully get off one or more of the other meds. That didn't happen. What a mess! His ammonia went back up and platelets down, so we weaned Depakote. All this while Brynn started having an increase of nocturnal seizures, the Tonics came back as did the myoclonic jerks. Saw a new neurologist who is a lot like the old one the boys favorite (Dr. D). He's almost 3 hours away, but smart and no BS kind of guy. He increased both their VNS settings and put them on rapid cycling. He also </span>increased Brett's Onfi and Vimpat to see a small break and watch the counts rise again. We decided to keep things as they are with Brynn, offsetting any meds may cause him to go back to where he was. It's likely best to just stay where we are and appreciate where he is, less is best! He has stayed on the same doses of Fycompa, Vimpat and Onfi for two years now. Brynn has maintained his 40+ pound weight loss well. His confidence is up and he is staying active happily living back in the country again. He is 16 now, so we are awaiting his new IQ test results to have him placed in a transition program that will lead to special job training. We all really like the new house and have been doing a lot of projects around with the really huge Hickory tree we had to have cut down! We are still heartbroken over the horrible service dog experience. Brett has been affected in many ways. Just the mention of Blue can throw him into a seizure. We adopted two dogs to try to help (Flash and Daisy) and while they are fun, they still do not make up for the loss of Blue due to her unstable temperament and aggressive tendency towards men. We put a complaint in </span></span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif;"><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">with </span></span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">the </span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">BBB </span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">Here:</span></span><span style="color: #351c75; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;"><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;"> </span><a href="http://www.bbb.org/atlanta/business-reviews/guard-dogs/guardian-of-the-night-k9-in-locust-grove-ga-27470394/complaints" target="_blank">http://www.bbb.org/atlanta/business-reviews/guard-dogs/guardian-of-the-night-k9-in-locust-grove-ga-27470394/complaints</a><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif;"> <span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">and the trainer didn't even respond. We have given up on the service dog completely. Honestly, I don't think Brett could handle the process again and I have doubts that he could bond with another dog like he did with Blue again. It's a really horrible thing to have gone through, but we will do all we can to make sure this does not happen to anyone else. $5,800 is a lot of money to watch turn i</span></span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">nto nothing and </span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">there isn't much you can do about it except sue, and loose better than half the money anyway. The Service Dog industry </span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">needs to be regulated and laws need to be made to make these deceptive "Trainers" accountable for what they are doing to families. It should be illegal for anyone who has not been through training and received certification to sell a service dog. We are not the only ones, I have been contacted by so many people who have had failed service dogs. I just wish they would have contacted us before I signed that contract! When you have done all you can do just stand and wait... We have gotten this far with God, and with Him all things are </span><span style="color: #674ea7; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">possible! </span></span></span></span></b></span></div>
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<span style="font-size: large;"><b><span style="color: #351c75; font-size: xx-small;"><span style="font-family: "georgia" , "times new roman" , serif;"><span style="color: #351c75; font-family: "georgia" , "times new roman" , serif; font-size: xx-small;">~Denise</span></span></span></b></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-70065040363350662682015-09-20T23:33:00.001-05:002015-09-20T23:35:26.015-05:00Long Time No Update? Sorry!<div dir="ltr" style="text-align: left;" trbidi="on">
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<b style="text-align: left;"><span style="color: #674ea7; font-size: large;">We have had some busy weeks... We have once again moved, but this time we purchased a home. </span></b><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqCMMd1S0AUxTRXO1JOz3_XzgMBJZ7g-w3WiCr_ZyCSwpFnz4TcNGtB9G_GaYryuUTdxMccdV3BAPdLLamPYDZbliSUvnpzT4slxoAduisdpi_SOVW9LR5L8VnR_2xtmCmgNh0Z4_9sA3b/s1600/ewb2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><span style="font-size: large;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgqCMMd1S0AUxTRXO1JOz3_XzgMBJZ7g-w3WiCr_ZyCSwpFnz4TcNGtB9G_GaYryuUTdxMccdV3BAPdLLamPYDZbliSUvnpzT4slxoAduisdpi_SOVW9LR5L8VnR_2xtmCmgNh0Z4_9sA3b/s320/ewb2.jpg" width="240" /></span></a><b><span style="color: #674ea7;"><span style="font-size: large;">Brett has been on a roller coaster of seizure instability for months. We had finally gotten great control of the Atonic and Myoclonic seizures when his ammonia level went too high and his platelets too low with Depakote. We went down on his dose and they reappeared again causing several falls. So we added a supplement and went back up. This is the first time with either boy we have had this problem with ammonia and platelets. </span></span></b><br />
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<b><span style="color: #674ea7;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL18Uo9jekAJM0HvvFXCZouk1H7Ut96kL0Tgxe1umalg8lwOHUZwcaSdRJ7RX72_Gjv9LrUrRVPpSNvjKKvakMaOmZdYgTeqoeC0GPwZIn0hLF28YC5mjrIKq-CGyLm6LkfiIECWiJwURk/s1600/ewb7.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiL18Uo9jekAJM0HvvFXCZouk1H7Ut96kL0Tgxe1umalg8lwOHUZwcaSdRJ7RX72_Gjv9LrUrRVPpSNvjKKvakMaOmZdYgTeqoeC0GPwZIn0hLF28YC5mjrIKq-CGyLm6LkfiIECWiJwURk/s320/ewb7.jpg" width="240" /></a></span></span></b></div>
<b><span style="color: #674ea7;"><span style="font-size: large;">Unfortunately, it did not give the same result and the Atonics came back full force along with Myoclonics and sleeping 14-16 hours a day. As of now we added Onfi and halved his daytime dose for a few weeks and he has somewhat stabilized again with those seizure types. His Complex Partials have not gone into status nearly as often, but the shorter Complex and Simple Partials are about the same. His VNS has been going off the same as Brynn's for several months now, so I would have expected to see a difference if it was going to work at reducing his seizures like I believe it did for Brynn. We are almost finished weaning Depakote and are seeing improvements in his wakefulness and less seizures. </span></span></b><br />
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<b><span style="color: #674ea7;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrCMJD8vxoOM-LMbsHM6CUWV6JZL95sTUr4sVT4cs6pSEy57T5cgWu8Th14M1jQMoApmHd3yFA8mdWwOXrjYyWO8ZZBfqXhvsQcLlP3KrE_k6nsNw5M2PQVkqACLMoaN7iMN7MXGdDlhl-/s1600/ewb1.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span style="font-size: large;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrCMJD8vxoOM-LMbsHM6CUWV6JZL95sTUr4sVT4cs6pSEy57T5cgWu8Th14M1jQMoApmHd3yFA8mdWwOXrjYyWO8ZZBfqXhvsQcLlP3KrE_k6nsNw5M2PQVkqACLMoaN7iMN7MXGdDlhl-/s320/ewb1.jpg" width="240" /></span></a></span></b></div>
<b><span style="color: #674ea7;"> <span style="font-size: large;">Brynn has been pretty stable averaging just 1-2 seizures a week for an entire year. He has only had a few daytime seizures in this time and has somewhat cognitively leveled out to where I presume he will remain. We have worked really hard on inferring and basic life skills while maintaining his Reading and other scholastic levels. I have reached out to the local fire department to see if they will let him volunteer there to give him some positive men to have an influence on his life and prepare him for adulthood. </span></span></b><br />
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<b><span style="color: #674ea7;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheAUo8Wf3aza9iAIUKNbeDDVypNn1gGzWKd_Z7ZmJQ0XRlI84gMzZcWczW94qgACYZaKNnUjoYRgW0xzbEfa_DehM0hdvTJ6zsvriu7lv5uIrovk0VUNUiOoojWqDrrBQiHxPr0VudU0hp/s1600/ewb4.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEheAUo8Wf3aza9iAIUKNbeDDVypNn1gGzWKd_Z7ZmJQ0XRlI84gMzZcWczW94qgACYZaKNnUjoYRgW0xzbEfa_DehM0hdvTJ6zsvriu7lv5uIrovk0VUNUiOoojWqDrrBQiHxPr0VudU0hp/s320/ewb4.jpg" width="240" /></a></span></span></b></div>
<b><span style="color: #674ea7;"><span style="font-size: large;"> When people ask what made the biggest difference for Brynn I have a hard time knowing what to say. I do believe the VNS has had a benefit, especially on his depression. The Vimpat has had a wakening effect on his thinking and I believe it helps with the slow processing. The Onfi made a tremendous difference giving him about 50-60% reduction in Complex Partials. The Fycompa has stopped them from generalizing into Tonic Clonics as well as removed about half his Tonic Seizures. Altogether, he has gone from 4-6 seizures a week being a good baseline to his current 1-2 seizures a week. We will take that happily. He has lost over 40 pounds through watching his eating and being back in the country! We are so proud of him! <br />..</span><div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg07CGPW6FRukvpxCsltJ2A041qRC77NjtuTVd_kev5emYqV_etpRUfl-Zc6Uuj-XR3qkl9b_QlT0bLpGRv0zbqdA6jsCzgH6EeQzO87LAxatwP0HXdMZjXKPe4YlL36YhgB53gY7ntowz-/s1600/ewb10.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span style="font-size: large;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg07CGPW6FRukvpxCsltJ2A041qRC77NjtuTVd_kev5emYqV_etpRUfl-Zc6Uuj-XR3qkl9b_QlT0bLpGRv0zbqdA6jsCzgH6EeQzO87LAxatwP0HXdMZjXKPe4YlL36YhgB53gY7ntowz-/s320/ewb10.jpg" width="320" /></span></a></div>
<span style="font-size: large;">On June 25th Blue was surrendered to the Breeder the Trainer got her from. I had her accessed by a local trainer. He determined that she has an unstable temperament and should have never been placed as a Service Dog. He also said she posed a risk for biting our 5-year-old Daughter due to her temperament problems. We decided that was a risk we couldn't take. It took Brett five days to realize that Blue was not only gone but wouldn't be coming back. He has had a really hard time adjusting to life without Blue. The trainer agreed to let us place Blue with the Breeder, who says the Mom is a lot like Blue. It's no surprise really that one of the four puppies did not m<span style="font-family: inherit;">ake it as a Service Dog. I have done a lot of research and have learned a lot over the past few weeks. The most staggering fact came from a fellow Mom's blog. Her Daughter received a Service Dog from another Service Dog Training facility and she stated that they <i>"<span style="background-color: white; line-height: 24px;">temperament tested over 100 dogs to enter 10 into the program. There were 5 graduates."</span></i> Wow. Blue came from a litter of 8. Our trainer did not temperament test the 4 available female pups she trained until she picked them up at just past eight weeks of age. How many did she put out as Service Dogs to families like us? ALL FOUR! Not only impossible that 4 out of 4 could finish successfully as Service Dogs, but very irresponsible, just ask any trainer! She stated in an interview with NSDF, that she temperament tested the dogs before they are chosen. NSDF was our sponsor for Blue and the NSDF website states <i>"<span style="background-color: white;"><span style="line-height: 25.2000007629395px;">Paws-4-Seizures, the seizure and multi-service dog placement program at National Seizure Disorders Foundation, is available to any qualifying individual with diagnosis of seizure disorder or multiple diagnoses requiring the assistance of a highly trained multi-service dog.</span></span>"</i> </span></span></span></b><b><span style="color: #674ea7;"><span style="font-size: large;">Our Experience:<br />10 Month old Blue was delivered on April 9th as a Service Dog listing Brett (10) as the handler. The trainer spent four days coming to our home to show us how to handle Blue. It was on the second day that we heard Blue Growl and Bark for the first time. We passed it off as dreaming because she was sleeping on and off at the time. When the older two boys would come downstairs to leave for work she would do the same. When my husband and oldest son would come in from work she would o the same sometimes. </span></span></b><b><span style="color: #674ea7;"><span style="font-size: large;">When we received Blue it took a full 10 days just to get her house trained, have to give ny husband credit here he questioned her training from day one because of this fact. </span></span></b><b><span style="color: #674ea7;"><span style="font-size: large;"><span style="font-family: inherit;">We all knew with the first visitor to our home we had a big problem when she had to be taken outside due to growling and barking. The second visitor (a family) proved that we had persistence, no matter who it was she was going to react the same way. Imagine the horror that the "Service Dog" would cause if she were to bark and growl at paramedics coming to help one of the boys? When she growled and barked at a grocery store manager, that's when we knew we needed help, what use is a Service Dog when you can't even take it in public? We did everything we could do and were heartbroken to learn that she couldn't be "fixed" to really fit into our home even as a pet. We adopted a Basset Doxie puppy who Brynn has really taken a liking to, but Brett has not been able to bond with the puppy. We are looking into adopting a German Shepherd from a rescue. She happens to look exactly like Blue, she was malnourished and is even abnormally small like Blue. Not sure if we will get her, but that's the direction we are going at this time to help Brett with the loss of Blue. </span></span></span></b><br />
<b><span style="color: #674ea7;"><span style="font-size: large;"><span style="font-family: inherit;"> As for the trainer that trained Blue, I notified her of this problem with growling and barking on April 28th that occurred on the 27th with our realtor. She suggested good firm prong collar correction. We did that with second visitors on the 29th, again had to take her outside she would not stop. Notified her again on May 9th that she did it to the manager in the grocery and she said she would come show us some things. We decided to have her fixed, hoping that it would help to calm her down if the problem was hormonal. When Blue was spayed, the vet said that she had never been in heat and did not look to be close to having her first heat cycle. So all that time, every time something negative was happening the trainer would say "it's preheat" definitely was not. Meanwhile, I did a lot of research. She said that she would replace Blue on June 19th, I feel that we have been getting the run around ever since. We were supposed to get a photo of the Golden Retriever she was testing on Jul. 6th and she explained on July 29th that dog wasn't going to work because she is too mouthy for Brett. So that's where we are in our Service Dog Journey. Sadly, I have heard from several families that have had bad experiences as well. </span></span></span></b><iframe allowfullscreen="" class="YOUTUBE-iframe-video" data-thumbnail-src="https://i.ytimg.com/vi/uyBJwL-pAH0/0.jpg" frameborder="0" height="266" src="https://www.youtube.com/embed/uyBJwL-pAH0?feature=player_embedded" width="320"></iframe><span style="background-color: white;"><br /><br />Recommended Reading:</span><br />
<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;">*IAADP Minimum Training Standards for Public Access:</span><br />
<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;"><b style="background-color: white;"></b><span style="background-color: white;"> <a href="http://www.iaadp.org/iaadp-minimum-training-standards-for-public-access.html" target="_blank">http://www.iaadp.org/iaadp-minimum-training-standards-for-public-access.html</a></span></span><br />
<div class="entry-title" style="background: rgb(255, 255, 255); border: none; line-height: 32px; margin: 0px 0px 8px; outline: none; padding: 0px; vertical-align: baseline;">
<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;">*Service Dogs </span><span style="background-color: transparent; color: #0b5394; font-family: Georgia, 'Times New Roman', serif; font-size: large; line-height: 1.5em;">Training Standards</span></div>
<div class="entry-content" style="background: rgb(255, 255, 255); border: none; line-height: 1.5em; margin: 0px 0px 10px; outline: none; overflow: hidden; padding: 0px; vertical-align: baseline;">
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<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;">These are intended to be minimum standards for all assistance dog programs that are members or provisional members with ADI. All programs are encouraged to work at levels above the minimums:</span></div>
</div>
<span style="background-color: white;"><span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;"><u><a href="http://www.assistancedogsinternational.org/standards/assistance-dogs/standards-for-dogs/training-standards-for-service-dogs/" target="_blank">http://www.assistancedogsinternational.org/standards/assistance-dogs/standards-for-dogs/training-standards-for-service-dogs/</a></u></span></span><br />
<h2 style="background-color: white; font-weight: normal; line-height: 24.9599990844727px; margin: 0px; padding: 0px;">
<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;">*How to choose your service or assistance dog program:</span></h2>
<span style="background-color: white;"><span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;"><a href="http://servicedogcentral.org/content/node/517" target="_blank">http://servicedogcentral.org/content/node/517</a><br /><a href="http://servicedogcentral.org/content/faq/60"></a></span></span><br />
<h2 style="background-color: white; font-weight: normal; line-height: 24.9599990844727px; margin: 0px; padding: 0px;">
<span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;">*Finding a program or trainer and evaluating the one you've found:</span></h2>
<span style="background-color: white;"><span style="color: #0b5394; font-family: Georgia, Times New Roman, serif; font-size: large;"><a href="http://servicedogcentral.org/content/node/591" target="_blank">http://servicedogcentral.org/content/node/591</a></span><br /><br /><br /><br /><span style="font-family: tahoma, sans-serif;"><span style="font-size: 14px; line-height: 25.2000007629395px;">Sources:</span></span><br /><span style="font-family: tahoma, sans-serif;"><span style="font-size: 14px; line-height: 25.2000007629395px;"><a href="http://nationalseizuredisordersfoundation.org/nsdf-paws-4-seizures">http://nationalseizuredisordersfoundation.org/nsdf-paws-4-seizures</a></span><br /><span style="font-size: 14px; line-height: 25.2000007629395px;"><a href="http://seizinghope.com/category/seizure-dog/">http://seizinghope.com/category/seizure-dog/</a></span></span></span></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-80854845314753523182015-05-31T21:08:00.001-05:002015-05-31T22:08:43.395-05:00Before choosing a Service Dog Trainer<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEii-cKZ6MlZ9qYZrgUCabIXo0xRFFzvn_5tG30rOHWyiVrri6qf0E5I5MOjqiUN3E57y6ZjDXDwxN1NQtBCJ-qFYh7eWDoye-OATELa1y19t2x4kyBhRXFa5xVa7VcdDR-rAtuAnX_-2A55/s1600/first+test+camera+061.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEii-cKZ6MlZ9qYZrgUCabIXo0xRFFzvn_5tG30rOHWyiVrri6qf0E5I5MOjqiUN3E57y6ZjDXDwxN1NQtBCJ-qFYh7eWDoye-OATELa1y19t2x4kyBhRXFa5xVa7VcdDR-rAtuAnX_-2A55/s320/first+test+camera+061.JPG" width="320" /></a></div>
<span style="font-size: large;">Our Service Dog Blue just celebrated her first Birthday! She has been off duty healing from having her spay surgery. We decided that spaying may help with the problem she has developed....<br />Fear Aggression, yikes! In response to the heartache of having this problem and all the emotions of having a service dog that needs serious training to correct this negative and unacceptable behavior. In any situation barking/growling at men and even in public, is never acceptable in a Service Dog. I have decided to share the survey responses from a survey I created to get the common answers of others who have a service dog to better understand what is normal and what is not when service dogs are delivered. She is clearly not ready for Service Dog work and cannot go back in public until this behavior is corrected. We have chosen a new trainer and will keep you updated as to her progress. <br />Brett says:<br /><br /><span style="background-color: white; font-family: helvetica, arial, 'lucida grande', sans-serif; line-height: 17.5636348724365px;"><b></b></span></span><br />
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<span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1Pud_KzIZblGi_GlwBaq0z-7hWSEwvStWoKupimIGaaHxlTolrIas57CfCj1h-Go98j_NAyKiOo8Qa1JJTNMHXqiMWIqC70HfCCiNEIoNBDyj4Pn7P6cecjOHxczz-rdJgwEdORGQCgTw/s1600/brettblue22.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1Pud_KzIZblGi_GlwBaq0z-7hWSEwvStWoKupimIGaaHxlTolrIas57CfCj1h-Go98j_NAyKiOo8Qa1JJTNMHXqiMWIqC70HfCCiNEIoNBDyj4Pn7P6cecjOHxczz-rdJgwEdORGQCgTw/s320/brettblue22.jpg" width="320" /></a></b></span></div>
<span style="font-size: large;"><b><br /><br /><div style="text-align: center;">
<span style="background-color: transparent; color: #141823;"> </span><span style="line-height: 17.5636348724365px;"><b><span style="color: blue;">"There can only ever be one BLUE." </span></b></span></div>
</b></span><span style="color: blue;"><span style="background-color: white;"><div style="text-align: center;">
<span style="font-family: helvetica, arial, 'lucida grande', sans-serif; font-size: large; font-weight: bold; line-height: 17.5636348724365px;"><br /></span></div>
<b style="font-family: helvetica, arial, 'lucida grande', sans-serif; font-size: x-large; line-height: 17.5636348724365px;"><div style="text-align: center;">
<b style="line-height: 17.5636348724365px;">It is after all what </b><span style="background-color: transparent; font-size: large;"><span style="line-height: 17.5636348724365px;"><b>Faith and Dreams are made of, </b></span></span></div>
</b></span><span style="font-size: large;"><div style="text-align: center;">
<span style="font-family: helvetica, arial, 'lucida grande', sans-serif; font-weight: bold; line-height: 17.5636348724365px;"><br /></span></div>
<span style="background-color: white; font-family: helvetica, arial, 'lucida grande', sans-serif; line-height: 17.5636348724365px;"><div style="text-align: center;">
<b style="line-height: 17.5636348724365px;">believing even when you have no evidence.</b></div>
</span></span></span><br /><br />
<h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How old was your service dog when delivered or you went to get it.</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 46 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 0</li>
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<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div style="text-align: justify;">
<span style="color: #999999; font-family: Arial; font-size: 11px; font-weight: bold;"><br /></span></div>
<div class="summary-table-container" style="background-color: white; font-size: 14px; font-weight: normal; text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026059631" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Under 1 Year</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
23.91%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
11</div>
</td></tr>
<tr><td class="" data-dimension-id="9026059632" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
12-18 months</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
39.13%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
18</div>
</td></tr>
<tr><td class="" data-dimension-id="9026059633" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Over 18 months</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
36.96%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
17</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">46</td></tr>
</tfoot></table>
</div>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div class="summary-table-container" style="background-color: white; text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*Did your Service Dog have pee/poop accidents in your home in the first month?</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 45 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 1</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div style="text-align: justify;">
<span style="color: #999999; font-family: Arial; font-size: 11px; font-weight: bold;"><br /></span></div>
<div class="summary-table-container" style="font-size: 14px; font-weight: normal; text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026060168" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Never</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
80.00%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
36</div>
</td></tr>
<tr><td class="" data-dimension-id="9026060169" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Every Day for a few days</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
13.33%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
6</div>
</td></tr>
<tr><td class="" data-dimension-id="9026060170" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Every Day for 10 or more days</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
6.67%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
3</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">45</td></tr>
</tfoot></table>
</div>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;">
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; font-weight: bold; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How much did you pay the trainer for training your Service Dog? (Training only, not any other cost)</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 40 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 6</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div style="text-align: justify;">
<span style="color: #999999; font-family: Arial; font-size: 11px; font-weight: bold;"><br /></span></div>
<div class="summary-table-container" style="font-size: 14px; font-weight: normal; text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026060972" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
$1,000 - $7,000</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
42.50%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
17</div>
</td></tr>
<tr><td class="" data-dimension-id="9026060973" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
$8,000 - 15,000</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
45.00%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
18</div>
</td></tr>
<tr><td class="" data-dimension-id="9026060974" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
More than $15,000</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
12.50%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
5</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">40</td></tr>
</tfoot></table>
</div>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div class="summary-table-container" style="text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*Does the Service Dog meet your families expectations from the information your trainer gave you?</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 45 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 1</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div style="text-align: justify;">
<span style="color: #999999; font-family: Arial; font-size: 11px; font-weight: bold;"><br /></span></div>
<div style="text-align: justify;">
<br /></div>
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026061617" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Somewhat, we have more problems than I expected</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
17.78%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
8</div>
</td></tr>
<tr><td class="" data-dimension-id="9026061618" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Not at all what I expected</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
6.67%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
3</div>
</td></tr>
<tr><td class="" data-dimension-id="9026061619" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
100% Perfect both at home and in public</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
75.56%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
34</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">45</td></tr>
</tfoot></table>
</li>
<b style="color: #999999; font-family: Arial;">
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"></li>
</b>
<li><h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; font-weight: bold; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How much time do you spend training with your Service Dog, not walking or play actually training for task?</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 45 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 1</li>
</div>
<li><div class="summary-table-container" style="text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-family: Arial; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026061870" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Up to an Hour</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
48.89%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
22</div>
</td></tr>
<tr><td class="" data-dimension-id="9026061871" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
1 - 2 Hours</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
24.44%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
11</div>
</td></tr>
<tr><td class="" data-dimension-id="9026061872" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
2 Hours or More</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
26.67%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
12</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">45</td></tr>
</tfoot></table>
<h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How much do you think you spend in a typical month for your Service Dogs Needs? (Food, Toys, Equipment, and anything needed monthly)</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 45 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 1</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026062424" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
$50 or less</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
15.56%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
7</div>
</td></tr>
<tr><td class="" data-dimension-id="9026062425" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
$100 or Less</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
62.22%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
28</div>
</td></tr>
<tr><td class="" data-dimension-id="9026062426" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
More than $100</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
22.22%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
10</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">45</td></tr>
</tfoot></table>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; text-align: center; width: 420px;">
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; font-weight: bold; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How long did it take for Your Service Dog to Adjust to your family?</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 44 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 2</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026062421" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Immediately</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
56.82%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
25</div>
</td></tr>
<tr><td class="" data-dimension-id="9026062422" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
A week</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
27.27%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
12</div>
</td></tr>
<tr><td class="" data-dimension-id="9026062423" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Longer than a week</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
15.91%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
7</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">44</td></tr>
</tfoot></table>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;">
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; font-weight: bold; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*How many specific Service Dog Commands did your Service Dog come home with?</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 42 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 4</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026063214" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Under 10</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
28.57%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
12</div>
</td></tr>
<tr><td class="" data-dimension-id="9026063215" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Under 20</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
38.10%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
16</div>
</td></tr>
<tr><td class="" data-dimension-id="9026063216" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
More than 20</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
33.33%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
14</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">42</td></tr>
</tfoot></table>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;">
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><h1 class="heavy sm-questiontitle" question-heading="" style="color: #333333; font-family: Arial; font-size: 20px; font-weight: bold; margin: 0px auto; padding: 20px 0px 10px; text-align: justify; width: 420px; word-wrap: break-word;">
*What has been your overall Service Dog Experience? (Health, Obedience, Task Ability, Help to you/your family)</h1>
<ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;"><div style="text-align: justify;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px;">Answered: 43 </li>
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;">Skipped: 3</li>
</div>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><ul class="sm-question-view-sub-header heavy" question-sub-heading="" standard="" style="list-style-position: outside; list-style-type: none; margin: 0px auto; padding: 0px 0px 20px; width: 420px;">
<li style="color: #999999; display: inline; font-family: Arial; font-size: 11px; font-weight: bold; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div class="summary-table-container" style="font-size: 14px; font-weight: normal; text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<table class="sm-data-table sm-data-table-summary" style="border-collapse: collapse; border-spacing: 0px; border-top-color: rgb(204, 204, 204); border-top-style: solid; border-top-width: 1px; color: #333333; font-size: 11px; font-weight: bold; margin: 0px auto; width: 598px;"><thead style="background-color: #eaeae8;">
<tr><th class="sortable " data-dimension-type="labels" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Answer Choices</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th><th class="sortable " data-dimension-type="responses" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; cursor: pointer; vertical-align: top;"><div class="sm-heading-wrapper" style="position: relative;">
<a class="sm-heading-label" href="https://www.blogger.com/null" style="cursor: default; display: block; font-weight: normal; padding: 6px 20px 6px 10px;">Responses</a><span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; margin: -6px 0px 0px; position: absolute; right: 7px; top: 12px; width: 9px;">–</span></div>
</th></tr>
</thead><tbody>
<tr><td class="" data-dimension-id="9026065402" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
My Service Dog was delivered/picked up and met my needs on Day One</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
58.14%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
25</div>
</td></tr>
<tr><td class="" data-dimension-id="9026065403" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="color: silver; cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
Helpful but not Perfect, a Work in Progress</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
34.88%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
15</div>
</td></tr>
<tr><td class="" data-dimension-id="9026065404" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; vertical-align: top;"><div class="sm-table-label-wrapper" style="position: relative;">
<span class="action-arrow smf-icon" style="cursor: default; display: block; font-family: SMFont; font-size: 13px; font-weight: normal !important; height: 9px; left: 0px; position: absolute; width: 9px;">–</span><br />
<div class="label txt-shadow-lt" style="padding-left: 25px; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
My Service Dog does not meet my needs yet.</div>
</div>
</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-color: rgb(204, 204, 204); border-left-style: solid; border-left-width: 1px; padding: 6px 20px 6px 10px; text-align: right; vertical-align: top;"><div class="sm-data-table-liner sm-data-percent" style="float: left; margin: 0px 10px 0px 0px;">
6.98%</div>
<div class="sm-data-table-liner sm-data-total" style="color: #666666; float: right; font-weight: normal;">
3</div>
</td></tr>
</tbody><tfoot style="background-color: #eaeae8; color: #666666; font-weight: normal; text-shadow: rgb(255, 255, 255) 0px 1px 0px;">
<tr><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">Total</td><td style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; border-left-style: none; padding: 6px 20px 6px 10px; text-align: right; text-shadow: rgb(255, 255, 255) 0px 1px 0px; vertical-align: top;">43</td></tr>
</tfoot></table>
</div>
</li>
<li style="display: inline; list-style-position: outside; list-style-type: none; margin: 0px; padding: 0px 0px 0px 10px;"><div class="summary-table-container" style="text-align: start;" summary-table-container="" view-role="SimpleSummaryTableView">
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-4001656892" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<h1 class="heavy sm-questiontitle" question-heading="" style="font-size: 20px; margin: 0px auto; padding: 20px 0px 10px; text-align: center; width: 420px; word-wrap: break-word;">
<div style="font-weight: normal; text-align: left;">
<div style="text-align: justify;">
<span style="color: #351c75;">Clearly we can see that there are averages here, and the averages do correlate with the success rate of the placed Service Dog. According to this survey answered by owners of Service Dogs we can summarize: </span></div>
</div>
<div style="text-align: left;">
<span style="color: #351c75;">1.<span style="font-weight: normal;"> A Service Dog can be successfully placed at a cost of up to $15,000.</span></span></div>
<div style="text-align: left;">
<span style="color: #351c75;">2. <span style="font-weight: normal;">12 months and older is a more common age to place a service dog. (From feedback it was discovered that many puppies go to the home for bonding until they reach a year, go back to </span>trainer<span style="font-weight: normal;"> for service dog training before placement into the home as a working service dog. Therefore, my data is incomplete) </span><br />3. <span style="font-weight: normal;">Peeing/Pooping in the house is consistent with incomplete training. Only 3 of my responders said their service dog did this for ten10 days or longer.</span><br />4.<span style="font-weight: normal;"> A full 75% said their Service Dog met their expectations. Encouraging!</span><br />5.<span style="font-weight: normal;"> All successful placements said their Service Dog immediately adjusted or adjusted within a week of placement to their new home. </span><br />6.<span style="font-weight: normal;"> Only 3 of my responders said their service dog has not met their needs yet.<br /><br />Where are the answers for the last question:</span></span></div>
<span style="color: #333333;"><div style="text-align: left;">
*What is the greatest Advice you can give someone looking for a Trainer? (No Trainer Names please)</div>
</span></h1>
<div class="ta-response-item-content" style="color: #333333; word-wrap: break-word;">
<br />
It's best to wait for a large nonprofit to help you that only provides service dogs.<br />
------------------------------------------------------------------------------------------------------</div>
<div class="ta-response-item-actions" style="color: #333333; margin-top: 2px;">
Research & read reviews!</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3990705161" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Research, research</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3990063221" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Attention to detail re: training specifics. Give the recipients a "books to read" before they come train with the dog. During training have written quizzes for recipient/handler for recipient. REVIEW the answers together. Give more explanation if necessary. Have written/typed instructions for what to do (EXACTLY) when you get your dog home. </div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3989976968" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Make sure you do your homework</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3989158768" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Research!! There are many scams out there. Get references and follow up on them.</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3988934111" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Look for a program that is a nonprofit. Some "trainers" are in it for the money. Also look for one that specializes in a couple things not everything. </div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3988388326" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Research the good and the bad on everything.</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3988180375" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Ask lots of ?'s</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3986949006" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
My short answer is DO YOUR RESEARCH / HOMEWORK. BE INFORMED! </div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987937220" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
A trainer that treats the dogs as he/she would their own children. Also, in my experience, a well trained trainer teaches the dog and passes that knowledge to the human. The dog knows what is it expected if trained well, the humans are more often the problem with "problematic" dogs.</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987929383" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
Always stay on them and try and get them to train with the persoN with disability</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987915767" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
<div class="ta-response-item-body" style="padding: 0px;">
<div class="ta-response-item-content" style="word-wrap: break-word;">
If you have the time to commit, I truly believe getting the dog as a puppy and work with the trainers while training. This way the dog and the person it is getting trained for can start the binding process and get to know each other sooner..</div>
</div>
</div>
<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987907080" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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By using a professional organization, you not only get more than one great trainer, but you have an instant family of other people in the same situation who come to training with you. I can only say you're missing out if you don't go this route. It's worth the extra funding.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987866435" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Get references and talk to them</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987753468" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Make sure the trainer is 1.knowledgeable 2. respectful of your family needs 3. the right personality match with YOU!.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987745138" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Ask lots of questions and communicate what your needs are in the beginning</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987670996" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Research the company and talk to people that have gotten a dog through the company. Speak to the owner of the company if possible to see what they have accomplished with their dogs.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987601151" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Check references and remember the SD is still a DOG! They are not robots! They require constant attention and work to keep up their training. But are so worth it!</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987577932" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Choose someone who you like and who is close enough to help with ongoing training.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987545864" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Someone that is looking (to) help children and not all about the money.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987507214" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Someone that truly understands the needs of your child, or person needing the service animal. Someone who is able to meet your needs, but also exceed them. Someone caring, understanding, and knowledgable.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987496733" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Make they listen and you all understand what your looking for in a service dog.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987480001" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Just the name or title Service Dog brings the price up for dogs and training up like 300%. Don't fall for this. Get your dog to a Certified Obedience Trainer and have them work specifically with your needs. You will save thousands of dollars. My complete training cost me around 750 and my dog does exactly what I need her to do.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987408611" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Look for an organization that provides the dog and training.</div>
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Do your research and read reviews. We chose a fantastic organization that provides LIFETIME support regarding training and/or any health issues that arise as well as a network/support group of other families that have received service dogs from their organization.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987303763" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Make sure your approach to animals and training match your trainers--use your instincts. Like choosing a church or neighborhood, If it doesn't feel right, it probably isn't. there are many good trainers who see the world differently than you, and have strong biases. Make sure your biases match theirs. Also, start by getting to know your local dog community. We ultimately chose a trainer that was 500 miles away, but we would never have found her without the dog training school that is 5 miles away. It was the community at the local dog school that helped me--one person knew another who knew another. Also, don't be disappointed if the first trainer/organization doesn't work. We spent 3 years looking, and ultimately tried 4 places before we found the trainer and dog that worked for us. It is not a cut and dried field--service dogs--we thought we'd go with a a large well know organization, but that did not work for us. We ended up with a very small time trainer, one person operation, and it was perfect for us. that said, there is still an incredible adjustment period with the dog in our home. She is trained, but we are not. She also needs to be retaught what we expect of her in our home. She is willing and well-prepared to learn her place, but we have to be the ones to guide her and fine tune her training. Finally, there are no real guidelines or national regulations for service dog training. You really have to research what you what, and trust the person you pick to know the best approach without national regulations. Our dog serves our 11 year old daughter with daily seizures and developmental delay. We as parents are trainers and handlers. Good luck.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3987197219" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Track record, referrals, persistence, under promise over deliver.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3986954794" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Get references, ask a lot of questions, and ask them in different ways see if same answer! Be specific on questions!</div>
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Research, research, research. When you find a trainer/organization you think looks good, dig into them. Do Better Business Bureau searches on each one. Check out their web sites, and ask questions about their financials. Know where the money goes, and who benefits from it.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3986667652" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Go through a large organization, 75% of the trainers are frauds.</div>
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Look for someone that will continue to support you even after the dog has left their facility, is communicative, and will answer questions. Even before the dog came home, the trainer sent regular updates (photos and video), gave us reading/video material to reference and watch in order to learn how to properly handle the dog, and happily answered even the most silly of questions. The trainer helped us to become part of a whole support network of handlers and SDs and was clearly invested in what was best for each tea.</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3986068865" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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Make sure they are compatible</div>
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<div class="ta-list-item ta-response-item ta-response-item-basic" data-response-id="807268118-0-3985948751" style="border-bottom-color: rgb(204, 204, 204); border-bottom-style: solid; border-bottom-width: 1px; color: #333333; font-family: Arial; font-size: 12px; padding: 6px; position: relative; word-wrap: break-word;" view-role="TaResponseItem">
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You really do get what you pay for.</div>
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Research and ask for references.</div>
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Here are some links to help in your journey!</div>
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RED FLAGS (programs to avoid)</h2>
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<span style="color: #2d2d2d; font-family: Verdana;"><span style="font-size: 12px; font-weight: normal; line-height: 20.3999996185303px;">A red flag is something so significantly wrong it would cause any legitimate program or trainer to cringe at the thought. Ethical programs do not operate this way.</span></span><br />
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<span style="color: #2d2d2d; font-family: Verdana;"><span style="font-size: 12px; font-weight: normal; line-height: 20.3999996185303px;"><a href="http://servicedogcentral.org/content/node/592">http://servicedogcentral.org/conten</a></span></span></div>
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How to choose your service or assistance dog program</h2>
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<span style="color: #2d2d2d; font-family: Verdana;"><span style="font-size: 12px; line-height: 20.3999996185303px;">There are many factors to consider when choosing an Assistance Dog program. First, you must identify your individual needs and decide if a working dog is right for you. Every person needs to weigh the benefits of partnering with an Assistance Dog against the drawbacks. Once you have decided a working dog is right for you, finding a program that suits your needs is the next step.</span></span><br />
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<span style="color: #2d2d2d; font-family: Verdana;"><span style="font-size: 12px; line-height: 20.3999996185303px;"><a href="http://servicedogcentral.org/content/node/517">http://servicedogcentral.org/content/node/517</a></span></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-89666839706558738652015-04-20T22:31:00.001-05:002015-05-31T21:10:01.220-05:00BLUE IS HOME!<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLUVji-XEf5mqlR-q-DNp7k4IDRpeWsb4A76LSx7CJN7Ea1W7Xfb_UA21GstfXfrfQBObvtcVjdAdqgZGOEtnyxND1knHROmcGRVcsIAOw04uanuJhx0JFkAFqvIUpmKt7RbStqb7we2FQ/s1600/Blue2224.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLUVji-XEf5mqlR-q-DNp7k4IDRpeWsb4A76LSx7CJN7Ea1W7Xfb_UA21GstfXfrfQBObvtcVjdAdqgZGOEtnyxND1knHROmcGRVcsIAOw04uanuJhx0JFkAFqvIUpmKt7RbStqb7we2FQ/s1600/Blue2224.jpg" width="320" /></a></div>
<span style="color: #674ea7; font-size: large;">Blue was delivered on April 9th. The trainer stayed in town for 4 days to settle her in and will be back in a month or two to fine tune her. </span><br />
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<span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOmb_w_20v2vAhgJyhRJ0oQ0Kc0-0I2WNvdFq4eFu92Yawi6FqLjJauU1ECKZSAw1ykfnN1gim87SFgxQmtpsS4xJ5XiJ-aW-S6qdLZjDyW1X-OhT2muolTbyGR10dN7RDynIBbHyxhEAM/s1600/BlueDay11.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOmb_w_20v2vAhgJyhRJ0oQ0Kc0-0I2WNvdFq4eFu92Yawi6FqLjJauU1ECKZSAw1ykfnN1gim87SFgxQmtpsS4xJ5XiJ-aW-S6qdLZjDyW1X-OhT2muolTbyGR10dN7RDynIBbHyxhEAM/s1600/BlueDay11.jpg" width="249" /></a></span></div>
<span style="color: #674ea7; font-size: large;">She is just 10 months old, so we are keeping in mind that she is still a puppy! She is gorgeous, sweet and pretty affectionate when the boys need her to be. True to the German Shepherd breed, she is constantly aware of her surroundings and is very happy to please, with a little hint of shenanigans here and there to keep her fun! She has ripped to shreds a few cute stuffed toys we had for her arrival and is pretty good at hiding her squeaky balls too. She loves the</span><br />
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<span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfwXQbHAURzWuEZqbtOc9yfH-0-V9X_QPMwq9pcAZKLaUhCBoDPAXFKz70dgAGOsEH3OXjdCFlD2TazC3aN5S7Yy8kVOzhcEWBN7Zwb0MKi1LaXmkdOYVm1Wq9O-kT8nlxPptkD9gNz7Dp/s1600/Blueday12.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjfwXQbHAURzWuEZqbtOc9yfH-0-V9X_QPMwq9pcAZKLaUhCBoDPAXFKz70dgAGOsEH3OXjdCFlD2TazC3aN5S7Yy8kVOzhcEWBN7Zwb0MKi1LaXmkdOYVm1Wq9O-kT8nlxPptkD9gNz7Dp/s1600/Blueday12.jpg" width="240" /></a></span></div>
<span style="color: #674ea7; font-size: large;"> Himalayan Yak Sticks, Bully Sticks and of course, all her yummy treats. Blue knows Leave It, Come, Wait, Down, Heel, Okay, Nine, Check Your Boy, Sit and Break very well! Brett and Brynn have bonded really well with her. They both spend time playing with her and take part in her training as well. Abigail even got in on the training and played a special game with Blue. She has done well with adjusting to our family routine and we have done well adjusting the household to having her home! I know some of you are not on facebook so here are some photos for you to enjoy of our beautiful girl Blue. We are so happy she is home, and look forward to the journey with her!</span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJwdkPPCpSeJuR-loqhbjflpzdRCZotWZ1XWKPTZfbmwKNSb4yyS-Bw4kbYsRH8rCbFonXGwzljLbdqaLkG5PrMP4ovCzjI9FH1EAF9z0NbrToGpwocs-z1p9EqSSMd-xYpYPNv42g9vvo/s1600/11102769_872882936091062_6885148741757067002_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJwdkPPCpSeJuR-loqhbjflpzdRCZotWZ1XWKPTZfbmwKNSb4yyS-Bw4kbYsRH8rCbFonXGwzljLbdqaLkG5PrMP4ovCzjI9FH1EAF9z0NbrToGpwocs-z1p9EqSSMd-xYpYPNv42g9vvo/s1600/11102769_872882936091062_6885148741757067002_n.jpg" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUrmM181NYN7CrIJclyRUPTha_Xtw4BifRMtz92TobxJdBAg63SNXl2dN7wrP-_2A8Y6pThu1UutOtbHUY2fZsxhc07bo8FXaFg5lUtxG668h7k2R1oRAhECjyJgCMq0jLFnRGaWhtCy7j/s1600/10003943_1591441281094375_3603120269106790697_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUrmM181NYN7CrIJclyRUPTha_Xtw4BifRMtz92TobxJdBAg63SNXl2dN7wrP-_2A8Y6pThu1UutOtbHUY2fZsxhc07bo8FXaFg5lUtxG668h7k2R1oRAhECjyJgCMq0jLFnRGaWhtCy7j/s1600/10003943_1591441281094375_3603120269106790697_n.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq7Wd9kw6wz9LZqRrRtHkFi9nbhhSUJaFJJ6sJy7ie_qRanaEKP9XtBXE6edhAmxCl8cYbdRqkz4MzNA-WCfHeCxL4UTQ7UjeE4_ErRFOGMqwD9U3iEVK0kB6n8y6-D5spE7oNcaf2EiSR/s1600/BlueDay13.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhq7Wd9kw6wz9LZqRrRtHkFi9nbhhSUJaFJJ6sJy7ie_qRanaEKP9XtBXE6edhAmxCl8cYbdRqkz4MzNA-WCfHeCxL4UTQ7UjeE4_ErRFOGMqwD9U3iEVK0kB6n8y6-D5spE7oNcaf2EiSR/s1600/BlueDay13.jpg" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3F6t3Msg1zX1gwktR0aRbul6XnkmUvsxmtAiKCGeocIDCMXy3i55lpEbD5LDOWiKATPUxo_KfYgmMvWYBXZsp8u42M3BG9MxWgoVfSqr9UVrOCF4_-aZ6ukDCyceI11fEjh-vilFzSex7/s1600/Blue2229.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj3F6t3Msg1zX1gwktR0aRbul6XnkmUvsxmtAiKCGeocIDCMXy3i55lpEbD5LDOWiKATPUxo_KfYgmMvWYBXZsp8u42M3BG9MxWgoVfSqr9UVrOCF4_-aZ6ukDCyceI11fEjh-vilFzSex7/s1600/Blue2229.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLugMdU11nTy_LfFj1iP-s6xIzRS7Fx6sCfsfudBusX71UK2PPpWWiZHjs6coNCK8kGA3jY_QKt_7GGOb8_TVKZ4NJjLzizzKmShsUnhmFpavrbzOuOI5SKM1pE5NCch2kHZ4YJoI5t8Dc/s1600/Blue2227.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLugMdU11nTy_LfFj1iP-s6xIzRS7Fx6sCfsfudBusX71UK2PPpWWiZHjs6coNCK8kGA3jY_QKt_7GGOb8_TVKZ4NJjLzizzKmShsUnhmFpavrbzOuOI5SKM1pE5NCch2kHZ4YJoI5t8Dc/s1600/Blue2227.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj783rdcoRExDwnqugJdmcos_jNycyP9uAULelKKWX8y05SIs8mNVzya3VGODjewtmqYD6JX5S14ddyThVvGG7NOcUFsDTILmD-7hB500EGkgJnOdm7nhuhs0oOoeGalVwgE3cTRumLW56E/s1600/blue222.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj783rdcoRExDwnqugJdmcos_jNycyP9uAULelKKWX8y05SIs8mNVzya3VGODjewtmqYD6JX5S14ddyThVvGG7NOcUFsDTILmD-7hB500EGkgJnOdm7nhuhs0oOoeGalVwgE3cTRumLW56E/s1600/blue222.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQK2keygBC3yeDJQQFLIruJDfflgIpMzppZpabovTn1umJq5XKzIvhEjB49tangj5gDx9hZUlE5nEuQ8QHB9VhVOP5hsjRIWt8AOtRckfNPrRGrh97ThxH6AZ_jH30yk58vFwf69teQTdd/s1600/Blue2225.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjQK2keygBC3yeDJQQFLIruJDfflgIpMzppZpabovTn1umJq5XKzIvhEjB49tangj5gDx9hZUlE5nEuQ8QHB9VhVOP5hsjRIWt8AOtRckfNPrRGrh97ThxH6AZ_jH30yk58vFwf69teQTdd/s1600/Blue2225.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4zJKU7T5Q26D1D7QZOcuGZxNbuBp48ivxO-YyG9jibxHeWWfXJtlpk0IakOZgWF8eQYV5AQXyLMGreH_m-S8z21m6-tmAJKrmpfeaei0itRIBoIdGvNLoyC9HGNU3dQu74a157ILmRg7U/s1600/blue2221.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh4zJKU7T5Q26D1D7QZOcuGZxNbuBp48ivxO-YyG9jibxHeWWfXJtlpk0IakOZgWF8eQYV5AQXyLMGreH_m-S8z21m6-tmAJKrmpfeaei0itRIBoIdGvNLoyC9HGNU3dQu74a157ILmRg7U/s1600/blue2221.jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWkUuiJ1MepKaUEuHgWkBOEbZaT2xSg0TLZNlk_G2MUSq5A41EV_dH9OnXh8KPkqKozUTBaqlcYDMnbXzjdkLtRzBy9aQrsVJ2AVlID2G2Dw_gEInsebJ2HEPucFIweREs93gIQOAPdGjk/s1600/11163747_1594808154091021_643603751266642478_n+(1).jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWkUuiJ1MepKaUEuHgWkBOEbZaT2xSg0TLZNlk_G2MUSq5A41EV_dH9OnXh8KPkqKozUTBaqlcYDMnbXzjdkLtRzBy9aQrsVJ2AVlID2G2Dw_gEInsebJ2HEPucFIweREs93gIQOAPdGjk/s1600/11163747_1594808154091021_643603751266642478_n+(1).jpg" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLrPHrC48hv3VDIi4bFLauXHCG9KNU_INSbk9-grwZlMwmOOTXDB82GLertntwAHP14M8NRrw2GozEW3in35_XlAWdT81FeOGUdFWYRPzQCyfDRtapNuyq4MtGYFeagoXS-RtXeTXeIpFI/s1600/Blue2228.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjLrPHrC48hv3VDIi4bFLauXHCG9KNU_INSbk9-grwZlMwmOOTXDB82GLertntwAHP14M8NRrw2GozEW3in35_XlAWdT81FeOGUdFWYRPzQCyfDRtapNuyq4MtGYFeagoXS-RtXeTXeIpFI/s1600/Blue2228.jpg" width="320" /></a> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgszuVYAyhLtootkCnk4lrUbyR59HIYNvx5KIFyC_mdzyl2bPDhTzMXnbE1falr21-sIxzawKj6zXX-EQM7h3zhcQ2lgF9kwjBjg66Chw1JZflvv_hnofhTR5Q8lOFjN6LGWihVp_2WD0Eb/s1600/Blue2226.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgszuVYAyhLtootkCnk4lrUbyR59HIYNvx5KIFyC_mdzyl2bPDhTzMXnbE1falr21-sIxzawKj6zXX-EQM7h3zhcQ2lgF9kwjBjg66Chw1JZflvv_hnofhTR5Q8lOFjN6LGWihVp_2WD0Eb/s1600/Blue2226.jpg" width="240" /></a><br />
<span style="color: #674ea7; font-size: large;"><br /><br />Yes, BLUE DOES!!! :) Many thanks to National Seizure Disorders Foundation for sponsoring Blue and enabling us to receive donations through their nonprofit status.<br /><br />*God is still God and God is so good!*</span></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-74068020477308442072015-03-23T23:10:00.002-05:002015-03-23T23:14:18.197-05:00It's been a while UPDATE!<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVnoI0iFHIpcGKIMCQMRVqKkESl23lhhJcOwpnQ16f58c1jxyNVnQD18mZ52fNfAjd70JCynzVtbjhHVVPnX-3AlgujihXJnoGTG5A3FdJOq25IFhf6RMh-wKsedAcCcfOs0IWZmQSPmUm/s1600/1511135_841505662562123_5762895925830371140_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhVnoI0iFHIpcGKIMCQMRVqKkESl23lhhJcOwpnQ16f58c1jxyNVnQD18mZ52fNfAjd70JCynzVtbjhHVVPnX-3AlgujihXJnoGTG5A3FdJOq25IFhf6RMh-wKsedAcCcfOs0IWZmQSPmUm/s1600/1511135_841505662562123_5762895925830371140_n.jpg" height="200" width="150" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVp8boiORMJVdumhMDc9Va4iQsV91ihX5dyaru0MPOHPVf3R5CAqim5VbmlERfgeItbOY2hCd8m0QCqRpeB83UqCPoM8AhM0vCEJuEZpQzmQkwbZYPB37sQZhPivELRPi71a6PdSNViwUr/s1600/10409183_866983330014356_2828485178758353007_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgVp8boiORMJVdumhMDc9Va4iQsV91ihX5dyaru0MPOHPVf3R5CAqim5VbmlERfgeItbOY2hCd8m0QCqRpeB83UqCPoM8AhM0vCEJuEZpQzmQkwbZYPB37sQZhPivELRPi71a6PdSNViwUr/s1600/10409183_866983330014356_2828485178758353007_n.jpg" height="320" width="240" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3v_k9f3DniKfyqan85ah-UooNBYMnExyUFa6aQI_Ig5jUMKUyGnqby5hw78osCfPsCWG7a56HXy5RfXk_2B6hCEB7bw2JZlNywWQ0yie6SWAQFAN4zvHAdjDO4AkMwV19kaHSLsEq29h0/s1600/1797518_842289009150455_7306558617712423851_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi3v_k9f3DniKfyqan85ah-UooNBYMnExyUFa6aQI_Ig5jUMKUyGnqby5hw78osCfPsCWG7a56HXy5RfXk_2B6hCEB7bw2JZlNywWQ0yie6SWAQFAN4zvHAdjDO4AkMwV19kaHSLsEq29h0/s1600/1797518_842289009150455_7306558617712423851_n.jpg" height="320" width="320" /></a><b><span style="color: #674ea7; font-size: large;">Happiest News First! BLUE and BLUE'S DELIVERY IS PAID IN FULL! Yay! Delivery is set for April 9th! We are so excited! We can't wait to have her here and to train with the trainer on how to take her everywhere and keep up with her training as well. Brett is super excited! 17 days and counting down! With the trainer and Blue here we will visit stores, restaurants, bowling alley and theatre to be sure we do not have any access issues. This will help Brynn and Brett learn to handle Blue as well. We have gotten a few homecoming gifts from Blue's wishlist. I will post the link at the bottom. </span></b><b><span style="color: #674ea7; font-size: large;">Brett had a 4th medication added, Depakote. This medication has helped a great deal with controlling the myoclonic and atonic seizures that were making him fall. He is having less Complex Partials with this new medication added on and has only needed Diastat once for rescue. We also got the advice to give Ativan for the "seizurish" activity that often happens before a bigger seizure. It was confirmed that the "seizurish" activity is actually seizure activity. This has helped him to not go into as much clustering having this clarification. Brynn is still doing fabulous on his medication combo.<br />The Geneticist got the results back for the Microarray and the Fragile X, both test were negative for both boys. He believes what we are dealing with is "Metabolic." Ha, after hours of researching I concluded that can mean hundreds of things. They submitted more blood and urine for more test on the 19th, awaiting those results. </span></b><b><span style="color: #674ea7; font-size: large;"></span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFV0-iwCXqhxMZdt4Y3ipbeznOyRbImjq8UWdTaWNrAgdhm-XbPQ3CVkYVOdNViz65smicozpIIBS9plDC_R_rE0E8uSn0ZQPjEQ63cHZaePROLjdjlKPH_syne0i5tqjDQiMCJIrlZIJI/s1600/10891753_863579940354695_4665475851619776400_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhFV0-iwCXqhxMZdt4Y3ipbeznOyRbImjq8UWdTaWNrAgdhm-XbPQ3CVkYVOdNViz65smicozpIIBS9plDC_R_rE0E8uSn0ZQPjEQ63cHZaePROLjdjlKPH_syne0i5tqjDQiMCJIrlZIJI/s1600/10891753_863579940354695_4665475851619776400_n.jpg" height="200" width="156" /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrY6k8IFs5QVq_SljIQYi2xi38gLxAYUdD7jDoZuq_AqQ8_fdBjvuh0AqgllYyld1ktMdAuH78MsNW6stsvakDDFsqHsO-7w_rDcP4YGVfEj1pSP5Se8abRvj05jnU94NIncVa6SneWm7N/s1600/10553525_861101400602549_9111701154369285751_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhrY6k8IFs5QVq_SljIQYi2xi38gLxAYUdD7jDoZuq_AqQ8_fdBjvuh0AqgllYyld1ktMdAuH78MsNW6stsvakDDFsqHsO-7w_rDcP4YGVfEj1pSP5Se8abRvj05jnU94NIncVa6SneWm7N/s1600/10553525_861101400602549_9111701154369285751_n.jpg" height="150" width="200" /></a> <b><span style="color: #674ea7; font-size: large;"></span></b></span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjS2G4gPjppLn8hIGbbh2Al7Gf2YPBy_LJOQOgBq8VAwX5T-kvvttFiiPAZb87-kLDNW6mEC5qD5RQsF9_G3GAhRtFcnsL23sgBcwhCVH0RtQgr4cPuT4ejM_wu1DO6Qop7LMn6614MLg_Q/s1600/11060275_861101273935895_4627730749276663587_n+(1).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjS2G4gPjppLn8hIGbbh2Al7Gf2YPBy_LJOQOgBq8VAwX5T-kvvttFiiPAZb87-kLDNW6mEC5qD5RQsF9_G3GAhRtFcnsL23sgBcwhCVH0RtQgr4cPuT4ejM_wu1DO6Qop7LMn6614MLg_Q/s1600/11060275_861101273935895_4627730749276663587_n+(1).jpg" height="150" width="200" /></a></span></b></div>
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkT9lcgd2l0W453DqBAdhPnLqhNsgdFksLRqrCzALyz-q0K83UKNjO2U266sI27oVvVVV0MgDV-HJfxUqxDWsLAfLZeouJGVA27Or1Cl0gw1foiLPtcNLaTIrx61gBlcLC1eU_YTAD71pN/s1600/10954587_851215468257809_7573559903933088190_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjkT9lcgd2l0W453DqBAdhPnLqhNsgdFksLRqrCzALyz-q0K83UKNjO2U266sI27oVvVVV0MgDV-HJfxUqxDWsLAfLZeouJGVA27Or1Cl0gw1foiLPtcNLaTIrx61gBlcLC1eU_YTAD71pN/s1600/10954587_851215468257809_7573559903933088190_n.jpg" height="240" width="320" /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;">We worked really hard at fundraising to </span></b><b><span style="color: #674ea7; font-size: large;">bring Blue home. As a special Thank You gift for two of the highest donors, we had these made by L&E Creations (they can be found on facebook). We love these mini Brynn and Brett's! We mailed out some other gifts (Bracelets, Shoestrings </span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZoHdhzIp6XoqJGctEBDEWEjI3DH9eUMF18GrdD6rEI1muRYAiLEplubDJ16riPj9PslDUMjt4JX7yVRSIesnkgk52nDMh1Y0XS0XHL5hKnqpmJiVnGvZf7EGocr9TdDtvZEOnhHHdji75/s1600/10959328_842288975817125_7393659903929368944_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZoHdhzIp6XoqJGctEBDEWEjI3DH9eUMF18GrdD6rEI1muRYAiLEplubDJ16riPj9PslDUMjt4JX7yVRSIesnkgk52nDMh1Y0XS0XHL5hKnqpmJiVnGvZf7EGocr9TdDtvZEOnhHHdji75/s1600/10959328_842288975817125_7393659903929368944_n.jpg" height="320" width="320" /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;"> and necklaces) to anyone who donated $250 or more. We learned a lot through this fundraising adventure and hope to help others reach their goals as well! We are so very grateful for the families that helped! We know Blue will be so full of love through everyone's gifts and prayers! Brett's new glasses seem to be helping him to see better. He still cannot wear them when<div class="separator" style="clear: both; text-align: center;">
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he is feeling seizurish, but when his seizure activity is down he doesn't mind wearing them. He will return next month to have his eyes checked again. We are in the process of house hunting for a house in the country. We know it will do both Brynn and Brett good to get the fresh air and freedom that this city life cannot provide them! Things have been pretty busy with my volunteering for National Seizure Disorders Foundation, Wrapping up everything<div class="separator" style="clear: both; text-align: center;">
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to get ready for Blue and seizures mixed here and there. Expect that April will be an even busier month! Really hope by June we can breath some Country Air! :) </span></b><b><span style="color: #674ea7; font-size: large;">Brynn and Brett were recently blessed to participate in the Warrior Beads Program through <a href="http://www.1boy4change.org/">http://www.1boy4change.org/</a><br />Chris and his Mom are a tremendous blessing and this is a great cause to donate to. They are a 501(c)(3) Charity too! <div class="separator" style="clear: both; text-align: center;">
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</span></b><b><span style="color: #674ea7; font-size: large;">I was in tears </span></b><b><span style="color: #674ea7; font-size: large;">when I realized the seizure count estimates. Anyone who knows me, knows that we don't count small seizures. If it's not a few minutes long I don't journal them, except noting seizurish, cognitively slow or Aura. Brynn was not diagnosed until his 11th Birthday October 2010. Brynn's estimated seizure total since diagnosis? 744. Brett was not diagnosed until he was 8, in<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7w2BPYzLngi7uAtP2GFdC65L_bkUQiWX0b3oLVr74ADLWGR32_O6ki2fYDgm0Q6wsXGhyphenhyphenM5YbSKtT6cp8MPFomWdqktYMFc70d4vcGHWTb_u382stNQPh6Q3dw5QBvwfKIUQPMAJZlJNl/s1600/11070794_866418400070849_4513075810083504444_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7w2BPYzLngi7uAtP2GFdC65L_bkUQiWX0b3oLVr74ADLWGR32_O6ki2fYDgm0Q6wsXGhyphenhyphenM5YbSKtT6cp8MPFomWdqktYMFc70d4vcGHWTb_u382stNQPh6Q3dw5QBvwfKIUQPMAJZlJNl/s1600/11070794_866418400070849_4513075810083504444_n.jpg" height="200" width="150" /></a></div>
August 2013. Brett's Seizure Total since they have been journaled? 434. I knew Brett had already surpassed Brynn in status events, and I also knew that his Epilepsy seemed much worse than Brynn's was. I had no idea that either of their numbers would be this high. Our Favorite prior neuro had me give seizure counts at each visit to keep track, especially when we changed medications or doses. The<div class="separator" style="clear: both; text-align: center;">
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estimates are the total of 2014 seizures multiplied by the number of years since diagnosis. We will keep adding beads to journal the Dr. visits, Ambulance rides, blood test, EEG's, Hospital Stays, surgeries and everything else that they go through. I bought some very special<div class="separator" style="clear: both; text-align: center;">
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beads. They are white but change into a color only in the sunlight. We will use these for SEIZURE FREE DAYS! This is a really neat way to keep up with any medical journey. What a blessing 1 Boy 4 Change is to have gifted our Epilepsy Warrior Boys with this! That catches you up! Will try to post again soon! </span><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;"><br />WoooWhooo Just 17 days till Blue comes Home!! Here is the <br /><br />Amazon </span></span></b><b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">Home Coming Wishlist for Blue! We are so excited </span></span></b><b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">for <br /><br />our Beautiful Blue to come home!! <br /><br />Brynn and Brett </span></span></b><b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">LOVE getting the packages addressed to The <br /><br />Epilepsy Warrior </span></span></b><b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">Boys for Blue, when you order through the </span></span></b><br />
<b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;"><br /></span></span></b> <b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">wish list they come </span></span></b><b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">straight to our door!! Take a Look at this </span></span></b><br />
<b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;"><br /></span></span></b> <b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;">link: </span></span></b><br />
<b><span style="color: #8e7cc3; font-family: Times, Times New Roman, serif; font-size: large;"><span style="background-color: white; line-height: 19.3199996948242px;"><br /> </span><a href="http://amzn.com/w/R135IOYHJRDO">http://amzn.com/w/R135IOYHJRDO</a><br />Oh... DON'T FORGET!! Thursday March 26th is Epilepsy Awareness Day!! :)<br /> </span></b></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-80689996040771703432015-01-28T22:23:00.000-06:002015-01-29T00:16:00.301-06:00We are making progress, progress is good!<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJog4zPRks4GwHheJsJnK3PqdSj2jJq5T37g4mNgHAVGy0B7lMci9AZOjjwjp-M174jBoDhyphenhypheneG-DmqF5QzbUf4uffNcW3Jo8qt3wawwwERTNTuuyYphnPS9OE-ZzMAYGkkw6OUcvvFt0oF/s1600/zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzabrynn11.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJog4zPRks4GwHheJsJnK3PqdSj2jJq5T37g4mNgHAVGy0B7lMci9AZOjjwjp-M174jBoDhyphenhypheneG-DmqF5QzbUf4uffNcW3Jo8qt3wawwwERTNTuuyYphnPS9OE-ZzMAYGkkw6OUcvvFt0oF/s1600/zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzabrynn11.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJog4zPRks4GwHheJsJnK3PqdSj2jJq5T37g4mNgHAVGy0B7lMci9AZOjjwjp-M174jBoDhyphenhypheneG-DmqF5QzbUf4uffNcW3Jo8qt3wawwwERTNTuuyYphnPS9OE-ZzMAYGkkw6OUcvvFt0oF/s1600/zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzabrynn11.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><span style="color: #e06666;"><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">It's been a while, here I am again catching up! We are pretty excited that the Neurology Clinic we are going to sent us to a Geneticist! He will be researching the two genes that Brett's Epilepsy Panel came back with. He also ordered a Fragile X and </span><span style="background-color: white; clear: left; font-family: Georgia, 'Times New Roman', serif; font-size: large; margin-bottom: 1em; margin-right: 1em; text-align: left;">CGH+SNP Microarrays. </span><span style="clear: left; font-family: Georgia, 'Times New Roman', serif; font-size: large; margin-bottom: 1em; margin-right: 1em; text-align: left;">He doesn't think they have Fragile X, but he felt that we should do it just to cover that. The Microarray test may or may not give answers, but it will answer some questions.</span></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6dc_LPvCV4Jw-fUTStGZgm41litRYc1SqwtMztT-cx7UKKHoAo8C4_36YgnxcwTEOxQRetR7XuKboxK8aqKuWBIuaLlVGllsXCteP8JawSmRQ9jToJxmTBomWRBjoyz4ICYdnDlG_NACD/s1600/bb3.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><span style="color: #e06666;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6dc_LPvCV4Jw-fUTStGZgm41litRYc1SqwtMztT-cx7UKKHoAo8C4_36YgnxcwTEOxQRetR7XuKboxK8aqKuWBIuaLlVGllsXCteP8JawSmRQ9jToJxmTBomWRBjoyz4ICYdnDlG_NACD/s1600/bb3.jpg" height="320" width="240" /></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV4LYgkMhT2yLlIz2X_mPCqA-GLOZTqjgbH88BXymrF-nY9pqR6BJxaI_yTbdK9dFnGYFxQHJElba7Z0GANRXhppHCKmfcq2hviMUtzAEkRIOGDWeFlKSwM6oeiMCS3RrfrPJZRcx9dOMS/s1600/Blue28.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><span style="color: #e06666;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgV4LYgkMhT2yLlIz2X_mPCqA-GLOZTqjgbH88BXymrF-nY9pqR6BJxaI_yTbdK9dFnGYFxQHJElba7Z0GANRXhppHCKmfcq2hviMUtzAEkRIOGDWeFlKSwM6oeiMCS3RrfrPJZRcx9dOMS/s1600/Blue28.jpg" height="320" width="240" /></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJog4zPRks4GwHheJsJnK3PqdSj2jJq5T37g4mNgHAVGy0B7lMci9AZOjjwjp-M174jBoDhyphenhypheneG-DmqF5QzbUf4uffNcW3Jo8qt3wawwwERTNTuuyYphnPS9OE-ZzMAYGkkw6OUcvvFt0oF/s1600/zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzabrynn11.jpg" imageanchor="1" style="clear: left; float: left; font-family: 'Times New Roman'; font-size: medium; margin-bottom: 1em; margin-right: 1em; text-align: center;"><span style="color: #e06666;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjJog4zPRks4GwHheJsJnK3PqdSj2jJq5T37g4mNgHAVGy0B7lMci9AZOjjwjp-M174jBoDhyphenhypheneG-DmqF5QzbUf4uffNcW3Jo8qt3wawwwERTNTuuyYphnPS9OE-ZzMAYGkkw6OUcvvFt0oF/s1600/zzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzzabrynn11.jpg" height="320" width="240" /></span></a><span style="color: #e06666;"><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">The </span><span style="clear: left; font-family: Georgia, 'Times New Roman', serif; font-size: large; margin-bottom: 1em; margin-right: 1em;">geneticist also feels that whatever we are </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">dealing with is a female carried problem, and all my male children had a 50/50 chance of having it. I suppose only time will tell and it appears that we will wait several weeks to 6 months to get the full test results. YIKES! What is the test? Well, it test for chromosomal imbalances that may be the cause of developmental delay/disability on the boys by looking for any imbalance of genetic </span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">material such as additional copies or loss of whole chromosomes or deletions and/or duplication in segments of chromosomes. </span><span style="clear: left; font-family: Georgia, 'Times New Roman', serif; font-size: large; margin-bottom: 1em; margin-right: 1em; text-align: left;"><span style="text-align: center;">The information we gain may have no clinical value as for treatment protocol, but it is possible it could. If nothing comes back the test will act as a baseline, and we will know what it is not. It will be good to have it done even if we get no answers, so at least we can say well it's not _____. I have taken the test with a grain of salt, as I have seen so many parents hope that it would give answers and they were disappointed. I have also seen a few that did get answers from the test, so I still have hope for answers! It would be a great benefit to have a name for this journey other than Cryptogenic Refractory Epilepsy. Even greater a benefit if we could know for future generations how likely it is that this will be passed on. </span></span><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;">Brett is still having a hard time, </span></span><br />
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<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQgeyDeunNk6bUPz6779Q9g2HJfhmO2IkynhO9mkosnvsa0Lm18FGfqU_PRbG3T70D-ygyYuHTgWAawoLOytPsYphnURs2Z84xqOIX_a0Ur0ohBq0sbVy2x2Qp28k8XNe95FwKRWtQ262E/s1600/ewb40.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQgeyDeunNk6bUPz6779Q9g2HJfhmO2IkynhO9mkosnvsa0Lm18FGfqU_PRbG3T70D-ygyYuHTgWAawoLOytPsYphnURs2Z84xqOIX_a0Ur0ohBq0sbVy2x2Qp28k8XNe95FwKRWtQ262E/s1600/ewb40.jpg" height="320" width="240" /></a></span></div>
<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;">since the hospital admission he has not had cluster or big seizure freedom for more than a few days at a time. He seems to consistently do better after it gets dark until bedtime over the last several weeks. We have the Nasal Versed, Diastat and Ativan to use when they get out of hand. Fortunately, I find that the Ativan given soon enough can help him to not need the others. He is handling it well, and I know he is working at understanding his seizure disorder. </span><br />
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<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzHrzJUSsYgeYa26KUjPBeq_DChiyckqUEZZmww9N_Hlx5IAysgBpkpHBfAWR4X6X_JSY2MODUGEE-zoH0-rVSGNxK1ozL4qvRq63cl5ieO8_Oh-fLHs68YRlZYjfMRJK-b-UQUenP5cnF/s1600/Blue30.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzHrzJUSsYgeYa26KUjPBeq_DChiyckqUEZZmww9N_Hlx5IAysgBpkpHBfAWR4X6X_JSY2MODUGEE-zoH0-rVSGNxK1ozL4qvRq63cl5ieO8_Oh-fLHs68YRlZYjfMRJK-b-UQUenP5cnF/s1600/Blue30.jpg" height="320" width="240" /></a></span></div>
<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"> He knows when his body needs rest and does not have to be told to sleep, he just lays down and sleeps when the "seizurish" feeling hits him. This is a wonderful accomplishment because resting is the first defence against clusters for him it seems. We purchased an awesome Purple Wheelchair for him from a kind seller on ebay. He let me trade a CARE bracelet I had for sale for the wheelchair and I paid the shipping. It is an Invacare Solara Tilt in Space model. It's a bit big for</span><br />
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<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEix-BuVHz0Sm8ld0pEWko3AJ029YzhwO3IlW318kG2pknVflKTh6vs6P0uP7YMEiJ0xCvybQ5qBd_OckikhL2ji_NbaG9zf26Cab31lOYvJgrB7AzjVTTYr3HjwsKE1nrlsz4uJPYr-QcjS/s1600/10943074_835918829787473_8141422014002598701_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEix-BuVHz0Sm8ld0pEWko3AJ029YzhwO3IlW318kG2pknVflKTh6vs6P0uP7YMEiJ0xCvybQ5qBd_OckikhL2ji_NbaG9zf26Cab31lOYvJgrB7AzjVTTYr3HjwsKE1nrlsz4uJPYr-QcjS/s1600/10943074_835918829787473_8141422014002598701_n.jpg" height="320" width="232" /></a></span></div>
<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"> <a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzYHV-3NhVa9U0yJNHyfs0FsPhEjW0ZaWQT9i40dQGXKKlKPiqMA3txGforhDZYMG-DRVed36lXVs74n1HtYJi-vQlNtQhV1MRkBzfc0DrWrI1lWJdAyBLrUX0xZ1vL0l84iYDbd6ZsvDI/s1600/BlueA.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzYHV-3NhVa9U0yJNHyfs0FsPhEjW0ZaWQT9i40dQGXKKlKPiqMA3txGforhDZYMG-DRVed36lXVs74n1HtYJi-vQlNtQhV1MRkBzfc0DrWrI1lWJdAyBLrUX0xZ1vL0l84iYDbd6ZsvDI/s1600/BlueA.jpg" height="320" width="278" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzYHV-3NhVa9U0yJNHyfs0FsPhEjW0ZaWQT9i40dQGXKKlKPiqMA3txGforhDZYMG-DRVed36lXVs74n1HtYJi-vQlNtQhV1MRkBzfc0DrWrI1lWJdAyBLrUX0xZ1vL0l84iYDbd6ZsvDI/s1600/BlueA.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCbg0F9SK7D5qR2JZzbJqvtgXgJuU8uGhtNlMZIo-uAgNZ8TQZIj6CaGDwp2WNqXc4y2_Uatbcd7XSgZd-TAT3EOiWSsVI5UbJ15cI5UmSBKGEdNvicjBaWhfekKhvn86TePQDLi_XPvsj/s1600/bb9.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCbg0F9SK7D5qR2JZzbJqvtgXgJuU8uGhtNlMZIo-uAgNZ8TQZIj6CaGDwp2WNqXc4y2_Uatbcd7XSgZd-TAT3EOiWSsVI5UbJ15cI5UmSBKGEdNvicjBaWhfekKhvn86TePQDLi_XPvsj/s1600/bb9.jpg" height="320" width="177" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCbg0F9SK7D5qR2JZzbJqvtgXgJuU8uGhtNlMZIo-uAgNZ8TQZIj6CaGDwp2WNqXc4y2_Uatbcd7XSgZd-TAT3EOiWSsVI5UbJ15cI5UmSBKGEdNvicjBaWhfekKhvn86TePQDLi_XPvsj/s1600/bb9.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCbg0F9SK7D5qR2JZzbJqvtgXgJuU8uGhtNlMZIo-uAgNZ8TQZIj6CaGDwp2WNqXc4y2_Uatbcd7XSgZd-TAT3EOiWSsVI5UbJ15cI5UmSBKGEdNvicjBaWhfekKhvn86TePQDLi_XPvsj/s1600/bb9.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiCbg0F9SK7D5qR2JZzbJqvtgXgJuU8uGhtNlMZIo-uAgNZ8TQZIj6CaGDwp2WNqXc4y2_Uatbcd7XSgZd-TAT3EOiWSsVI5UbJ15cI5UmSBKGEdNvicjBaWhfekKhvn86TePQDLi_XPvsj/s1600/bb9.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><br /></a><span style="text-align: center;">Brett </span>and we have no way at the moment of transporting it. The idea came about when Brett went into status at the physical therapy office and having the Tonic Clonic seizure in the standard chair we saw how dangerous that was. What we need is a chair that can be adjusted when seizures happen to lean him back and keep him safe. CRS referred us to Easter Seals, who is working with us for a solution. We will need a Hitch for the family vehicle, but the amazing sweet lady at Easter Seals decided that he really needs a smaller chair, with wheels that he can move himself when he is able. They possibly even have a lift available for us to use to attach to the back so that we can still access the hatchback. Blue will be home soon and we will not have a lot of extra space in the family vehicle. We expect to have it for at least a few more years, so we have to adapt it to make it user-friendly as our needs change. We are looking forward to getting out the house and truly obtaining "Positive Seizure Management" when Blue gets HOME! It sure will be wonderful to finally be able to do things in spite of the seizures. As a family, we need to learn to live life to the best of our ability, through the seizures! I find myself in a great amount of gratitude for those that have donated to make Blue possible. Her balance is down to $410 as of today. It is amazing that a few people, churches, and one business came together and got us this far. We all have great happy feelings knowing that people have seen the need, reached out and gave. <br />
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Here is a link to the Red Basket site set up for Brynn and Brett's Seizure Alert K9 Blue:</div>
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<span style="color: #e06666;"><span style="font-family: Georgia, 'Times New Roman', serif; font-size: large;"></span><a href="https://redbasket.org/320/bring-blue-home" style="font-family: Georgia, 'Times New Roman', serif; font-size: x-large;">https://redbasket.org/320/bring-blue-home</a></span><br />
<span style="color: #e06666; font-size: large;">All donations through Red Basket are tax deductible. We would like to thank Red Basket for their help in setting up the boys page. They are really great to work with and verify all askers, so you can feel good about donating to any cause on the site. </span><br />
<span style="color: #e06666; font-size: large;"><span style="font-family: Georgia, 'Times New Roman', serif;"></span><br />I have been volunteering with National Seizure Disorders Foundation and hope to spend many years helping others achieve their goals! I really enjoy being the Treasurer and writing Caregivers Corner! We have some really great folks on the Board of Directors and I am blessed to have them in our lives. We would like to thank National Seizure Disorders Foundation for helping us to believe that Blue was possible and helping me not to loose faith or focus when people were not donating! </span><br />
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<span style="color: #e06666; font-family: Georgia, 'Times New Roman', serif; font-size: large;"><br />Here is a link to the latest edition of Caregivers Corner:<br /><a href="http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-by-denise-marsh-2/">http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-by-denise-marsh-2/</a></span><br />
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCeaifW0lCaR_VglXkRncoK1LJVRXQRrcs3j5aQhtWI2U-pqXuN8ZjFVRzY93du7GoYpNhV__tEW1PdcLIKKEimhHu18bIF_lq4W8E2uMG6gsklJUegOqFTU1tH3W3e7sLSccfJATYhG4w/s1600/lp+(2).jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhCeaifW0lCaR_VglXkRncoK1LJVRXQRrcs3j5aQhtWI2U-pqXuN8ZjFVRzY93du7GoYpNhV__tEW1PdcLIKKEimhHu18bIF_lq4W8E2uMG6gsklJUegOqFTU1tH3W3e7sLSccfJATYhG4w/s1600/lp+(2).jpg" height="233" width="400" /></a><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;"><br /><br /><br /><br /><br /><br /><br /><br /><br /> </span><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-72978631522743049062014-12-15T00:00:00.002-06:002014-12-15T00:01:45.849-06:00Decembers Caregivers Corner NSDF<div dir="ltr" style="text-align: left;" trbidi="on">
<h2 style="border: 0px; font-family: tahoma, sans-serif; font-stretch: inherit; line-height: 36px; margin: 0px 0px 20px; padding: 0px; vertical-align: baseline;">
<span style="background-color: white; font-size: 14px; font-weight: inherit; line-height: 25.2000007629395px;"> </span><strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">This is a special place Found in our NSDF website for Caregivers only. Find comfort, support, and helpful resources here from caregivers just like YOU!<br /> </strong><span style="border: 0px; font-family: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: normal; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><span style="font-size: small;"><a href="http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-2/?utm_medium=facebook&utm_source=NSDF+Blog&utm_campaign=Blog">http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner-2/?utm_medium=facebook&utm_source=NSDF+Blog&utm_campaign=Blog</a></span></span></h2>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
This month, Caregiver Denise shares her thoughts and experiences on <em style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"> stress </strong></em> and a few resources she finds helpful while helping her boys live with Epilepsy.</div>
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<img alt="" class="alignleft size-medium wp-image-5957" src="http://nationalseizuredisordersfoundation.org/wp-content/uploads/2014/12/Corbis-42-60219935-300x300.jpg" height="300" style="border: 0px; float: left; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px 7px 0px 0px; outline: none; padding: 0px; vertical-align: baseline;" width="300" />Let’s talk about <span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">stress</span>. It’s important to understand what stress is and how it affects your body, to fully understand how important is it to find effective measures to reduce it. Stress is a natural part of life, and believe it or not stress is a necessary part of creativity, learning and survival. Too much stress however, can have a negative effect of your daily life and outcome of our survival if not dealt with effectively. When you are feeling overwhelmed by stress, what your feeling is your body’s natural fight or flight response which releases adrenaline and cortisol. A little bit of stress, often referred to as acute stress can be exciting, and it keeps us alert. Long-term, or what is referred to as chronic stress can have long term effects on our well being. I recently went to the Dr. because I honestly felt like I was having a heart problem. The Physician explained to me that the amount of stress I was under, compiled by my pre-existing anxiety had placed my body in a constant state of tension. I researched this and found that when you are feeling that fight or flight response in a crisis your body is going through a lot. The cortisol and adrenaline released in your body is speeding up your pulse rate, breathing, blood circulation, muscle tension and glandular function. When a caregiver of someone with Epilepsy has this happen over and over again, eventually the nervous system stays ready to react to a crisis all the time causing the body to stay in a constant state of tension. This state of tension creates a person that tends to react to small stressors the way you would normally to true emergencies. All those hormones that are created in the stress state must be released to bring our bodies back in balance. If we do not work towards reducing stress and releasing this built up tension, it can only lead to emotional burnout and complete exhaustion. The only way to break this cycle is to find ways that work for you to relieve stress. I encourage you to find ways to reduce stress in your lives. Doing this will help us be better caregivers, by having better health and positive long term health outcomes.</div>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
There are many forms of stress reduction techniques and I will just touch on a few of them.<br />
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~Music and Art Therapy</span><br />
There are many options in this category! Sometimes just putting on your favorite upbeat CD can make a difference if you dance and sing along! My older child with Epilepsy has recently discovered that Art Therapy works for him. He will sit for hours and paint creating wonderful works of art. I also find it very relaxing to draw and paint.</div>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~Prayer/Meditation</span></div>
<blockquote style="border-bottom-style: dotted; border-left-color: rgb(246, 246, 246); border-left-style: solid; border-top-style: dotted; border-width: 0px 0px 0px 2px; color: #666666; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin: 15px 0px 15px 20px; padding: 5px 0px 5px 25px; quotes: none; vertical-align: baseline;">
<div style="background-color: white; border: 0px; color: black; font-family: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">A quiet mind is more important than a positive mind. – Deepak Chopra</span></div>
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Take just 5 minutes a day to be in complete silence, focusing on your body and the effects of stress and learning to relax. This can be achieved in the bath, laying on your back in bed or even while sitting. Start at your feel and pay attention as you move upward focusing on noticing areas of tension and calming them. Once your body is calm and relaxed pray or focus on the positive things.<img alt="meditate" class="alignright wp-image-5959 size-medium" src="http://nationalseizuredisordersfoundation.org/wp-content/uploads/2014/12/meditate-300x129.jpg" height="129" style="border: 0px; float: right; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px 0px 0px 7px; outline: none; padding: 0px; vertical-align: baseline;" width="300" /> Think about all the blessings you have and the good that is in your life. Even if it’s just the pretty sky today or the beautiful flower you saw, find something to focus on that is positive and good. A Physician years ago use to tell patents to breathe in and out deeply. As you breathe in say (Peace, Jesus, Higher Power, Joy, Calm whatever you need) IN and as your release that deep breath slowly say (Stress, Anxiety, Tension, Sadness, Pain) whatever you need out OUT. So I often find myself saying Peace IN Stress out as I take deep breaths and so on. Focusing on releasing it seems to help me in a big way, even when I do not have a lot of time. I find that CD’s that are designed with stress reduction, relaxation and meditation are a good choice for me, such as this one:</div>
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<strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><a href="http://smile.amazon.com/Progressive-Relaxation-Stress-Reduction/dp/1572246391/ref=sr_1_cc_1?s=aps&ie=UTF8&qid=1418098483&sr=1-1-catcorr&keywords=1572246391" style="border: 0px; color: #4e2d8e; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; outline: none; padding: 0px; vertical-align: baseline;" target="_blank">Progressive Relaxation and Breathing</a> </strong></div>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~Laugh</span><span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><br /></span>Laughter is a natural stress reducer that is very effective at reducing stress. Watch funny videos, a funny movie and seriously just Laugh Out Loud!</div>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~Exercise</span><span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><br /></span>Something we all may not want to do or think we have time for, but we all need exercise! Go for a walk, even if it is just up and down the driveway, get moving! Can’t go outside today? Stretch and touch those cute toes! Turn on the music and dance the stress away. Exercise will release those feel good chemicals to help combat those stress feelings.</div>
<div style="background-color: white; border: 0px; font-family: tahoma, sans-serif; font-size: 14px; font-stretch: inherit; line-height: 25.2000007629395px; margin-bottom: 15px; padding: 0px; vertical-align: baseline;">
<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~Practice Gratitude</span><span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><br /></span>When we make a point to keep track of Good, Positive and Beautiful things it helps us to not stay so focused on the Negative, Painful, Stressful things in our lives. I find that when I start to feel overwhelmed, if I start looking for simple little positives it helps combat the stress and overwhelming feelings. Such as, “Brett had a terrible seizure today, but he recovered well and his postictal is not as overwhelming as it could be.”</div>
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<strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">~ Volunteer </strong></div>
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What is available in your community or online to help you live your passion while helping others? Find it and ask about volunteer opportunities. Even as little as 1 hour a week can decrease your stress, help others, and increase your health. Volunteering to do that which you love decreases your stress and increases those feel good hormones instantly! I know from experience as I volunteer my time to reduce stress and feel good at <strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">National Seizure Disorders Foundation</strong> as Board Member and Treasurer. Leave a comment below to ask about our opportunities.</div>
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Life as a caregiver can be tremendously stressful as we endure this roller coaster ride of good and bad days. Often it seems like we may never have a “normal” life again. I hope that today you will focus on ways to combat the stress that comes with this journey. I also hope that if you are feeling overwhelmed and need help you will reach out to those around you. Find other parents who are on the same ride and somehow it doesn’t feel so lonely. Just knowing that there are others experiencing the same stress helps greatly.</div>
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<span style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;"><img alt="Denise Marsh" class="alignleft size-thumbnail wp-image-5919" src="http://nationalseizuredisordersfoundation.org/wp-content/uploads/2014/11/denise-150x150.png" height="150" style="border: 0px; float: left; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; font-weight: inherit; line-height: inherit; margin: 0px 7px 0px 0px; outline: none; padding: 0px; vertical-align: baseline;" width="150" /><strong style="border: 0px; font-family: inherit; font-size: inherit; font-stretch: inherit; font-style: inherit; font-variant: inherit; line-height: inherit; margin: 0px; padding: 0px; vertical-align: baseline;">About the Author:</strong> Denise is a homeschooling mother of six who lives in Alabama. Denise’s two youngest sons, Brynn and Brett have refractory Epilepsy. Denise volunteers her time and energy as National Seizure Disorders Foundation Board Member and Treasurer. Enjoy the monthly feature articles from NSDF Caregivers Corner written by Denise. </span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-86977338522748374882014-12-12T22:44:00.001-06:002014-12-12T22:49:29.574-06:00Year end quick wrap up!<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgH3EPM68Vh78QNziST_FMYgNVqIzO0dTAVwpQH-DBXvL0uEhEcEPh7dbXk85at1a7hvUVwCyJ33sRudB2UjNn7205eohBZejrg88voP5naMI2vcJxyXERKb0TZM50S1jweldW0POYUmg6m/s1600/images+(11).jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgH3EPM68Vh78QNziST_FMYgNVqIzO0dTAVwpQH-DBXvL0uEhEcEPh7dbXk85at1a7hvUVwCyJ33sRudB2UjNn7205eohBZejrg88voP5naMI2vcJxyXERKb0TZM50S1jweldW0POYUmg6m/s1600/images+(11).jpg" /></a><b style="text-align: left;"><span style="color: #674ea7; font-size: large;">I didn't realize it had been so long since I have posted an update. October, November and December have proven to be just as much a Epilepsy Roller Coaster as the prior months... well years. We have seen Brynn do so much better and have just a few small bumps of loss in seizure control.</span></b></div>
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtPMOoEA9Jpar3nSHvEqZ1xoJnVA_qD3-TD15QU2iBE-590emUUocZ9jv7yoCY3Kp-kK2rs9P1OHb9ERUiPtd1qebnsu147OhDCwatklIvTliLLaYYdZCm4beSlZ5Hp84wuQtdbUEi4ZR_/s1600/10615494_10204325110745149_3464566171157501449_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;"> All in all, I would still say that he is better than he has been in years. Brett on the other hand seems to gain some control and in a matter of hours, days or weeks crashes again. Brynn and Brett will see a geneticist in January. We are hoping that we will have some answers from that </span></b><b><span style="color: #674ea7; font-size: large;">appointment instead of more </span></b><b><span style="color: #674ea7; font-size: large;">questions, like the previous Epilepsy </span></b><b><span style="color: #674ea7; font-size: large;">Panel. The Geneticist hopefully can answer some of </span></b><b><span style="color: #674ea7; font-size: large;"></span><span style="color: #674ea7; font-size: large;"></span><span style="color: #674ea7; font-size: large;"></span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIXQ3xpTCztoC7UeCt2iPTlXSq6H3FJt0pvrCUvCi_K4sK0rd108aE_nv3jLPRtCNrXWwDhxy8WUPosLDA3xeM0KFtGqMw7uu9InuoLIFRm-zkRefEqNBVOjkcy5yD-ffq_fTeJXj9RJ_O/s1600/10603563_809613389084684_6311347633919432246_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIXQ3xpTCztoC7UeCt2iPTlXSq6H3FJt0pvrCUvCi_K4sK0rd108aE_nv3jLPRtCNrXWwDhxy8WUPosLDA3xeM0KFtGqMw7uu9InuoLIFRm-zkRefEqNBVOjkcy5yD-ffq_fTeJXj9RJ_O/s1600/10603563_809613389084684_6311347633919432246_n.jpg" height="200" width="150" /></a></span></b></div>
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</span></b><b><span style="color: #674ea7; font-size: large;">the questions about </span></b><b><span style="color: #674ea7; font-size: large;">the two unknown mutations that came back on Brett's previous Panel. (varients of unknown signifigance are 1.) heterozygous for late onset multiple carboxylase def w/biotinidase def p.G1n88Glu 2.) lysomsomal storage disease ds </span></b><b><span style="color: #674ea7; font-size: large;">aspartylglucosaminuria</span></b><b><span style="color: #674ea7; font-size: large;"> p.Leu146Val)</span></b><b><span style="color: #674ea7; font-size: large;"><br />The new Neuro does believe that they have a male dominant, female carried rare genetic female carried epilepsy syndrome similar to LGS. </span></b><b><span style="color: #674ea7; font-size: large;"> We returned </span></b><b><span style="color: #674ea7; font-size: large;">to the Seizure clinic </span></b><b><span style="color: #674ea7; font-size: large;"></span></b><b><span style="color: #674ea7; font-size: large;">this </span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOl92smNggfGsqDQLVsWmenBzXh74L0pPkMb20B8a2YCBqVD9B9O2xodbs9asTVTA4kMb9yk04ZlgOfN14H_9UerSX76BUzV3aHTeFufk3jHtzfQzmkdx-NIFWuy9a6rtxbv3L09a9tzyN/s1600/brynnon7.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOl92smNggfGsqDQLVsWmenBzXh74L0pPkMb20B8a2YCBqVD9B9O2xodbs9asTVTA4kMb9yk04ZlgOfN14H_9UerSX76BUzV3aHTeFufk3jHtzfQzmkdx-NIFWuy9a6rtxbv3L09a9tzyN/s1600/brynnon7.jpg" height="200" width="154" /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;">month, and were referred to the seating clinic to order a bath chair. I brought Brett's wheelchair to ask for a seat belt to be ordered. What a blessing they had one and started installing it right then! Unfortunately, Brett went into a Complex Partial seizure while it was being installed. With no break in between after several minutes the Complex Partial generalized into a Tonic Clonic. </span></b><br />
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUgAeCdcAQahq1LY1irUt-5rFqP5gpys8Jcfs7q_Wl4vQzGONrGGAeyHPQ3CZzl3bznC3EgfaLY6CvpIAX17PSkjolhZGheMR2uAbfCQ8OtTTFU7LwC2lzbgOzxz7JbLFIWEgO1rwFm0pf/s1600/10806208_811939652185391_4792634634538781820_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiUgAeCdcAQahq1LY1irUt-5rFqP5gpys8Jcfs7q_Wl4vQzGONrGGAeyHPQ3CZzl3bznC3EgfaLY6CvpIAX17PSkjolhZGheMR2uAbfCQ8OtTTFU7LwC2lzbgOzxz7JbLFIWEgO1rwFm0pf/s1600/10806208_811939652185391_4792634634538781820_n.jpg" height="200" width="150" /></a></span></b></div>
<b><span style="color: #674ea7; font-size: large;">911 was </span></b><b><span style="color: #674ea7; font-size: large;">called after about 5 or so minutes. The nurse estimated that the Tonic Clonic seizure lasted about 8 minutes. He went to a postictal like state for about two minutes and then his eyes popped open into another seizure he went. Second Complex Partial that also went into a Tonic Clonic. It took an hour before Brett arrived in postictal state by ambulance to the ER. ER was over filled and the hall was being used to treat immediate cases. We <div class="separator" style="clear: both; text-align: center;">
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stayed there until he slept it off and awakened hungry and ready to go home. I got a prescription from the ER Dr. for Nasal Versed after he asked why I didn't have his Diastat on me. I explained that I usually do not carry Diastat when I am fairly close to home, we really do not leave the house often anyway and when we do we are going to the Dr. anyway!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYBQXZoGK5xjqxV6lE2LHb9Qk13XLPQvgFLh8miP06U0MgFf1LRw9XHn1IlZVXYUdOWjfDt0ztDs2j5r032JOgJ5-pj4m6zKKPUX16QNwOkLxY6oMTlh5u8PL3Y-Tlvsbu735tplDphdjk/s1600/10731129_811984955514194_475454232254839630_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYBQXZoGK5xjqxV6lE2LHb9Qk13XLPQvgFLh8miP06U0MgFf1LRw9XHn1IlZVXYUdOWjfDt0ztDs2j5r032JOgJ5-pj4m6zKKPUX16QNwOkLxY6oMTlh5u8PL3Y-Tlvsbu735tplDphdjk/s1600/10731129_811984955514194_475454232254839630_n.jpg" height="200" width="150" /></a></div>
In the off chance we do get to take Brett to a store or restaurant he is 10, weighs close to 100 pounds and I would rather call 911 than try to get his pants down and administer Diastat in that situation in front of so many people. In hindsight, I feel terribly guilty that I did not have any emergency medication on me. I had no idea that it could take so long for Paramedics to get to us in this big huge city either. My thinking will change, once <div class="separator" style="clear: both; text-align: center;">
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again and I am sure my anxiety will not get any better either about leaving home with Brett and without Brett. We were only about 10 minutes from home and it was just a quick appointment, but once again I am reminded that Epilepsy does not have rules. When we left the house he looked great, no clue that a seizure was coming until it was happening. <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi65Zt1clr31GCKK_SixXp8rbYEJJhto7OXjMElc3Se-ygJsXvZAGWdf_cmirdUakWo1oXJnEhY76sVvg90UYqLNeKAGYx5haCoFPy9zLBjJaiW13_TH5CAD0j4fzzHbQLIUeQ5KP0X8g23/s1600/pizap.com14170300395601.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi65Zt1clr31GCKK_SixXp8rbYEJJhto7OXjMElc3Se-ygJsXvZAGWdf_cmirdUakWo1oXJnEhY76sVvg90UYqLNeKAGYx5haCoFPy9zLBjJaiW13_TH5CAD0j4fzzHbQLIUeQ5KP0X8g23/s1600/pizap.com14170300395601.jpg" height="200" width="200" /></a></div>
I certainly didn't expect him to be in status in a matter of minutes like he was. I went ahead and placed the Seizure Alert Dog Medication Inside bag that will be clipped to Blue's vest in my purse with preloaded Nasal Versed and Diastat and will not be leaving home with Brett without it again. Brett will be getting the bath chair and his wheelchair now has a seat belt. We were referred to an Easter<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQfQkTyPVIwqpLMkjCefh7ScoUKttoD5peJ6xZDmI4zR1wywXbU3f8cK3KAqQEwrfpx5hgL3MP-XLBDgmZQBBQ0eFVttINvhBIbgVF0nRtZhFpstmGSgzWvlKe0xYVB2qANOscuh23cFPg/s1600/10806470_809613449084678_4917528334747230551_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQfQkTyPVIwqpLMkjCefh7ScoUKttoD5peJ6xZDmI4zR1wywXbU3f8cK3KAqQEwrfpx5hgL3MP-XLBDgmZQBBQ0eFVttINvhBIbgVF0nRtZhFpstmGSgzWvlKe0xYVB2qANOscuh23cFPg/s1600/10806470_809613449084678_4917528334747230551_n.jpg" height="200" width="150" /></a></div>
Seals program to try to locate a better wheelchair after the physical therapist saw him actually have a seizure in the chair it became evident that he needs a chair that we can recline the back in the even of a seizure for his safety. If we can't locate a used one he will order him a new one. All the children are excited about Hanukkah coming! Hope to update soon, if not I will I will update after the Geneticist appointment. We should have some photos in January of the boys and Blue! She is coming for a practice training visit with Brynn and Brett! Of course we are all really excited about this! Blue's balance is likely sitting around the $900 mark! We are getting so close to getting her paid! God is good, even in the midst of this Epilepsy battle, God is so good and has never left our sides! </span></b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYubO5ge4XR0midjLJPTWVS-E0u3Bfput55htW933G84hrkgI1czFtjXNfzC1KWUx0KtaaVntzxGpQTddAlQPJe9qXuT8p2P-r706fM2gD6hzMMOAPy117Zjkm_LFCGUPPE7bpoHvzkKDo/s1600/header1.png" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjYubO5ge4XR0midjLJPTWVS-E0u3Bfput55htW933G84hrkgI1czFtjXNfzC1KWUx0KtaaVntzxGpQTddAlQPJe9qXuT8p2P-r706fM2gD6hzMMOAPy117Zjkm_LFCGUPPE7bpoHvzkKDo/s1600/header1.png" height="171" width="200" /></a><b><span style="color: #674ea7; font-size: large;"> I have taken on </span></b><b><span style="color: #674ea7; font-size: large;">new responsibility </span></b><b><span style="color: #674ea7; font-size: large;">at </span></b><b><span style="color: #674ea7; font-size: large;">National Seizure Disorders Foundation as the Treasurer and started writing Caregivers Corner as well. </span></b><span style="color: #674ea7; font-size: x-small;"><b><a href="http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner/">http://nationalseizuredisordersfoundation.org/nsdf-caregivers-corner/</a></b></span><b><span style="color: #674ea7; font-size: x-small;"> </span></b><br />
<b><span style="color: #674ea7; font-size: large;">It has been a blessing to be a part of NSDF and I expect really great things to come in the future. </span></b><b><span style="color: #674ea7; font-size: large;"></span></b><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtPMOoEA9Jpar3nSHvEqZ1xoJnVA_qD3-TD15QU2iBE-590emUUocZ9jv7yoCY3Kp-kK2rs9P1OHb9ERUiPtd1qebnsu147OhDCwatklIvTliLLaYYdZCm4beSlZ5Hp84wuQtdbUEi4ZR_/s1600/10615494_10204325110745149_3464566171157501449_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhtPMOoEA9Jpar3nSHvEqZ1xoJnVA_qD3-TD15QU2iBE-590emUUocZ9jv7yoCY3Kp-kK2rs9P1OHb9ERUiPtd1qebnsu147OhDCwatklIvTliLLaYYdZCm4beSlZ5Hp84wuQtdbUEi4ZR_/s1600/10615494_10204325110745149_3464566171157501449_n.jpg" height="239" style="cursor: move;" width="320" /></a></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-17552785136866076802014-10-16T21:48:00.000-05:002014-12-11T20:11:19.341-06:00Emotional mess turns into Thankfulness!<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: #351c75; font-family: Georgia, Times New Roman, serif; font-size: large;"><b>I sat down to write this blog today with so much emotion. Joy, </b><b>Thankfulness, Gratefulness, </b></span><br />
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<span style="color: #351c75; font-family: Georgia, Times New Roman, serif; font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimz1Ur2ir7of4XmLe5oUzs5PNJiV8pKAgrOzdH_2x9kGaXsAMgpZsuwWdZg9jrtC1A3fQQi3BXNr3eN_hp2YV0LC5bqS2TV7k3O2kLFLX2NwQ9OA0UogaG-mA2XtyUCNl1bHMyZ9wf5aD5/s1600/blog1.jpeg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimz1Ur2ir7of4XmLe5oUzs5PNJiV8pKAgrOzdH_2x9kGaXsAMgpZsuwWdZg9jrtC1A3fQQi3BXNr3eN_hp2YV0LC5bqS2TV7k3O2kLFLX2NwQ9OA0UogaG-mA2XtyUCNl1bHMyZ9wf5aD5/s1600/blog1.jpeg" height="200" width="150" /></a></b></span></div>
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Love, Happiness... with a little Pain and Raw Emotions from the past. This past week has brought some of the most wonderful awesome news... In a matter of hours I got word that Brynn will not have to have surgery for his knee! The Orthopedic surgeon said that his kneecap could and likely will pop out of place again some time in his and need surgery, but if Brynn were his child with all that he has going on, </b></span><b style="color: #674ea7; text-align: left;"><span style="color: #351c75; font-family: Georgia, Times New Roman, serif; font-size: large;">he would leave it alone and hope for the best! Wonderful news, I was really dreading the thought of Brynn who is at the moment more stable than he has been in years with his seizures having surgery! Not long after that news came National Seizures Disorders Foundations email with the balance we need to finish Blue's </span></b><b style="font-size: x-large; text-align: left;"><span style="color: #351c75;">training...</span></b></div>
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<b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFyjdMUayPJVlZIWUxA33f8-FBgebJZWygD_h6gIZ1u0E7y0eLh3cRGLYFF_uuTgW6ZU8s6l5QwF2xoFPmV1O0vHUL7zq2XSJI6W6eFM64OQiz-utyTssx2iFCApe_BHoCR9mCfl4QG4tr/s1600/blog12.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span style="color: #351c75;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFyjdMUayPJVlZIWUxA33f8-FBgebJZWygD_h6gIZ1u0E7y0eLh3cRGLYFF_uuTgW6ZU8s6l5QwF2xoFPmV1O0vHUL7zq2XSJI6W6eFM64OQiz-utyTssx2iFCApe_BHoCR9mCfl4QG4tr/s1600/blog12.jpg" height="239" width="320" /></span></a></b></div>
<b><span style="color: #351c75; font-size: large;"> </span><span style="color: #990000; font-size: x-large;"><i>Just under $1,600!</i></span><span style="color: #351c75; font-size: large;"> Amazing that so many have donated and made the impossible possible! What a tremendous blessing to know that so many people have come together and helped make this happen! It should be fairly easy to raise the balance needed and that takes a lot of stress away from our daily</span></b><br />
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<b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRwQqbeP6UxoJzEwV-XddANIMlvBDs-3rfNYEAxE3MgqQlSygb1ZC9WZa0khXE1e3DYafe7tLx8-6p_ltjv7tQx1naABk6Cw4dnzqdSfr5qDgFYsQSMH7r7AERDe9C_aEOnCkq37v7jTTN/s1600/blog4.png" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="color: #351c75;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRwQqbeP6UxoJzEwV-XddANIMlvBDs-3rfNYEAxE3MgqQlSygb1ZC9WZa0khXE1e3DYafe7tLx8-6p_ltjv7tQx1naABk6Cw4dnzqdSfr5qDgFYsQSMH7r7AERDe9C_aEOnCkq37v7jTTN/s1600/blog4.png" height="200" width="200" /></span></a></b></div>
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</b><span style="font-size: large;"><b><span style="color: #351c75;">unknowns. We know that Blue will make such a difference in the quality of life for Brynn and Brett. We can't wait to get her home and feel all the love she is filled with from all of the love, prayers and support that is making her possible. We will always see each of you as a part of Blue, she will always be an amazing beautiful testimony of how God made the impossible possible. We checked</span></b></span><br />
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<span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLJfQEkCt2uC_Zd8OxBKmFL2FV33DZSdsyU11hXW4zSFZnTr7VTHYXJeqtI88TZgONE1Kbq8SEneNHFW1y-1wIxZxOr12aFWU8z2aYnAO8RsRHXRAb74hF_maGHuQKkf3PTZfL_O77gFBc/s1600/blog10.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span style="color: #351c75;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLJfQEkCt2uC_Zd8OxBKmFL2FV33DZSdsyU11hXW4zSFZnTr7VTHYXJeqtI88TZgONE1Kbq8SEneNHFW1y-1wIxZxOr12aFWU8z2aYnAO8RsRHXRAb74hF_maGHuQKkf3PTZfL_O77gFBc/s1600/blog10.jpg" height="240" width="320" /></span></a></b></span></div>
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<span style="color: #351c75;"> the P.O. Box today and found a bunch of amazing Birthday wishes for Brynn and Brett. The cards show them they are thought of and loves by so many people from all over the place! They were amazed that they each got a card from Canada too! The cards will be a beautiful addition to their </span></b></span><b><span style="color: #351c75;"><span style="font-size: large;">wall of Love, Prayers and</span></span></b><br />
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<b><span style="color: #351c75;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-kbciTJGsgu1hlwibUFU4Q1y4j922CTQ77hdBeEBESAhEW2FG9mn0udEIVSBOlW24zRioIGZBItwX-msbseK5vwdrvPdU2EsK_P48-jyjtk-731xlUKXOUZQthxyWWewOMnkYsTADdK8G/s1600/blog9.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi-kbciTJGsgu1hlwibUFU4Q1y4j922CTQ77hdBeEBESAhEW2FG9mn0udEIVSBOlW24zRioIGZBItwX-msbseK5vwdrvPdU2EsK_P48-jyjtk-731xlUKXOUZQthxyWWewOMnkYsTADdK8G/s1600/blog9.jpg" height="240" width="320" /></a></span></b></div>
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<span style="font-size: large;"> support! There was a key in the P.O. Box leading to another box. Which had a Big box from a loving person filled with Paint, Brushes, Paper, Pencils, Cards and even stickers for Abigail! They were so surprised to see that box and were anxious to open it too! <br />They will be painting for a long time with the two beautiful boxes of love they received from two "Strangers" that have become "Family." <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4diu-KheyZgdWcjWYFT2ecaA-zZEeea6hFAvAZyN7R7eO6HAmYv8V7q_Scmr5H6kMPfL3JocOvf-KUQ0MrRqAqcWyC9WpkHBz7I8O_ZVXyNgBVMb9_WxJzjclYrkOQBbvuBxdY9mLwgiq/s1600/blog28.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4diu-KheyZgdWcjWYFT2ecaA-zZEeea6hFAvAZyN7R7eO6HAmYv8V7q_Scmr5H6kMPfL3JocOvf-KUQ0MrRqAqcWyC9WpkHBz7I8O_ZVXyNgBVMb9_WxJzjclYrkOQBbvuBxdY9mLwgiq/s1600/blog28.jpg" height="150" width="200" /></a></div>
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Here are a few samples of Brynn and Brett's work! They both enjoy looking at other paintings and really enjoy painting too! </div>
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDpMJmFBPWpnDo1gUQq9oLn2_xe6vHRIidIHkAHXG2bLOcfBn_ej5_eM2cpd_gtGqyoqxVwEGDh7unkg9x_b-_ShWv64hauUG8u2fmMYjKtxhEIgKcWBtthd5w_AYdZvBY4BCOdrplPW8O/s1600/blog22.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgDpMJmFBPWpnDo1gUQq9oLn2_xe6vHRIidIHkAHXG2bLOcfBn_ej5_eM2cpd_gtGqyoqxVwEGDh7unkg9x_b-_ShWv64hauUG8u2fmMYjKtxhEIgKcWBtthd5w_AYdZvBY4BCOdrplPW8O/s1600/blog22.jpg" height="150" width="200" /></a></span></b></div>
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<b><span style="color: #674ea7; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZnwIg1SIp8hxlOO5S7MtWYU5JOZSIjOi_D6Q1IQwlK65Cvvd4_fYXfBXjYzZe8Thoa6y4LK8mDpdmiTC1GhjPT-kSHYKeFzZlzvGvHwGgKkAgaqU0x9ZMw5pIU5S0ZzQKY_3ATUgG9hnh/s1600/blog27.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZnwIg1SIp8hxlOO5S7MtWYU5JOZSIjOi_D6Q1IQwlK65Cvvd4_fYXfBXjYzZe8Thoa6y4LK8mDpdmiTC1GhjPT-kSHYKeFzZlzvGvHwGgKkAgaqU0x9ZMw5pIU5S0ZzQKY_3ATUgG9hnh/s1600/blog27.jpg" height="150" width="200" /></a></span></b></div>
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<b><span style="color: #351c75; font-size: large;"><b><span style="color: #351c75; font-size: large;">With all that amazing, happy, joyful, grateful and thankful emotion it made me see the coming Birthday of Mom and the Anniversary of her murder differently. Every year about this time before her October 19th Birthday I have this overwhelming sadness and tears flow so easy. I noticed it a few days ago... and </span></b><b><span style="color: #351c75; font-size: large;">as usual pretended to ignore it's looming dark, negative, sad effect on my life. For years, it has become a part of me that </span></b><b><span style="color: #351c75; font-size: large;">I had no control of. I tried </span></b><b><span style="color: #351c75; font-size: large;">year after year to portray to anyone who would listen how wonderful, beautiful she was and how unfair it was that she was taken away so brutally, and so suddenly. It occurred to me today as I was watching the joy on Brynn and Brett's faces from</span></b></span></b></div>
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<b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmv6YQxcysSZnL2iSMqxZm2tDXxnW7DXGzMlKWgsxmQPdOAXl5n9TR-r6iclivTAT18VKCnYkQ7hfQcHSe5DVG3ddOL4B0D7LUdRVtpia_9D3FSY5ACoKASdk_BVYc68s_B_RjeH-I4djm/s1600/blog20.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhmv6YQxcysSZnL2iSMqxZm2tDXxnW7DXGzMlKWgsxmQPdOAXl5n9TR-r6iclivTAT18VKCnYkQ7hfQcHSe5DVG3ddOL4B0D7LUdRVtpia_9D3FSY5ACoKASdk_BVYc68s_B_RjeH-I4djm/s1600/blog20.jpg" height="240" width="320" /></a></b></div>
<b><span style="color: #351c75; font-size: large;">their P.O. Box filled with love... that I can no more convey who Janice Estelle Ashcraft was as I could convey how much it means to Brynn and Brett that they are so loved and thought of. I can post 1,000 photos but they could never convey who she was or how she lived. I could write a million words, but I can never convey the effect her murder has had on her mother, her siblings, her children and even the next generation the effect will go on. </span><span style="color: #990000;"><br /><br /><span style="font-family: Georgia, Times New Roman, serif;">"</span></span></b><span style="color: #990000;"><span style="background-color: white; text-align: left;"><span style="font-family: Georgia, Times New Roman, serif;"><b>Cast your burden on the LORD, and he will sustain you; he will never permit the righteous to be moved.</b></span></span><b><span style="font-family: Georgia, Times New Roman, serif;">" ~Psalm 55:22</span><br /><span style="font-size: large;"> </span></b></span><br />
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<b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcB-o9lyGzVhDLLmmj5MMcMrkKhAiOOGMGJKQ4-OZ4qb3jmKADzXQgKGmREG978AlAM7Jc-c287BrdffqB5yhR9vI5ABiBXBsmR3_3hOrTZUhw1KsRkW4m3Sw5sWgrN33C2H9I7gR3c_Yn/s1600/blog8.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhcB-o9lyGzVhDLLmmj5MMcMrkKhAiOOGMGJKQ4-OZ4qb3jmKADzXQgKGmREG978AlAM7Jc-c287BrdffqB5yhR9vI5ABiBXBsmR3_3hOrTZUhw1KsRkW4m3Sw5sWgrN33C2H9I7gR3c_Yn/s1600/blog8.jpg" /></a></b></div>
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</b><b><span style="color: #351c75; font-size: large;">I can choose however, to try to stay positive. I have chosen to forgive the person that I hold responsible for her death and I will chose to focus on the positive... no matter what life brings my way. </span></b><span style="color: #990000;"><b><span style="background-color: white; font-size: 16px; line-height: 26px; text-align: start;"><br /><span style="font-family: Georgia, Times New Roman, serif;"><br />"</span></span></b></span><span style="background-color: white; line-height: 24px; text-align: start;"><span style="color: #990000; font-family: Georgia, Times New Roman, serif;"><b>For the people shall dwell in Zion at Jerusalem: thou shalt weep no more: he will be very gracious unto thee at the voice of thy cry; when he shall hear it, he will answer thee.</b></span></span><span style="color: #990000;"><b><span style="background-color: white; font-size: 16px; line-height: 26px; text-align: start;"><span style="font-family: Georgia, Times New Roman, serif;">" ~</span></span><span style="font-family: Georgia, Times New Roman, serif;">Isaiah 30:19</span></b></span><b><span style="color: #990000; font-family: Georgia, Times New Roman, serif; font-size: large;"> </span><span style="font-size: large;"><span style="font-family: Georgia, Times New Roman, serif;"><span style="color: #990000;"> </span></span></span></b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPj4eDZVrjiODkCpRAL9b405MG1cF6D15FOi8cawj1DqpAA_LcAduhI6dqZVYrWsUuZF56VCpkEsVLkQAALsTKxxwcioLO_ilb2jQIyREW88BpM3IxXuB2vOGBWNoeewkBlBvyxDaLf42U/s1600/blog2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjPj4eDZVrjiODkCpRAL9b405MG1cF6D15FOi8cawj1DqpAA_LcAduhI6dqZVYrWsUuZF56VCpkEsVLkQAALsTKxxwcioLO_ilb2jQIyREW88BpM3IxXuB2vOGBWNoeewkBlBvyxDaLf42U/s1600/blog2.jpg" height="182" width="320" /></a><b><span style="color: #351c75; font-size: large;"> I will choose to be sure that my </span></b><b><span style="color: #351c75; font-size: large;">children have all the love that they have missed out by having a broken family, by reaching out and letting the strangers that love, support and pray for them know that they need them. </span></b><span style="color: #990000; font-family: Georgia, Times New Roman, serif;"><b><span style="background-color: white; text-align: left;">"So we do not lose heart. Though our outer self is wasting away, our inner self is being renewed day by day. For this light momentary affliction is preparing for us an eternal weight of glory beyond all comparison, as we look not to the things that are seen but to the things that are unseen. For the things that are seen are transient, but the things that are unseen are eternal." ~</span><span style="background-color: white; line-height: 21.9939994812012px; margin: 0px; padding: 0px; text-align: justify;">2 Corinthians 4:16-18</span></b></span><b><span style="color: #351c75; font-size: large;"><br /> </span></b><br />
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They will never get a gift from their Grandmother... or many other relatives who are not in their lives. They are however blessed by God to have the adopted Aunt's and Uncles, Gan Gans and all the wonderful loving people who have stepped up in her place and for that I am forever thankful.<br /><br /></span></b><span style="background-color: white; text-align: left;"><span style="color: #990000; font-family: Georgia, Times New Roman, serif;"><b><br /><br /><br />"The LORD is a stronghold for the oppressed, a stronghold in times of trouble. And those who know your name put their trust in you, for you, O LORD, have not forsaken those who seek you." ~Psalm 9:9</b></span></span><b><span style="color: #351c75; font-size: large;"><br />New Video for Blue!</span></b><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/6hk0LlEFv5s?feature=player_embedded' frameborder='0'></iframe><b><span style="color: #351c75; font-size: large;"><br /><br />Brett's current common Seizure Type... </span></b><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/PcLbJrsBAYo?feature=player_embedded' frameborder='0'></iframe><b><span style="color: #351c75; font-size: large;"><br /><br />Just because Brett is so darn cute! :)</span></b><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/oybEbjgYrmk?feature=player_embedded' frameborder='0'></iframe><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-14368286359256067312014-10-02T19:53:00.001-05:002014-10-03T00:34:43.347-05:00Blessings and update on Brynn and Brett<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif; font-size: large;">We visited the new neurologist yesterday. My head is still swimming with all the information that we were given in just one visit. Abigail and I went to to the back pretty quickly for her EEG and Brandon, Brynn and Brett waited in the waiting room. </span><span style="font-size: large;"></span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">Not long after being back there with her, a nurse came to tell me that Brett was having seizures. He apparently had a cluster of Complex Partial seizures.</span><br />
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">I waited for Abigail's EEG to get started good and asked if I could go check on Brett. I found him with several people, nurses and people that worked there. They were sitting next to him, standing by him and talking to him. I later learned that they didn't just sit by him and talk to him. They snapped their fingers and clapped loudly in his face to be sure that he was not conscious. This is important in partial seizure as a Simple Partial you are aware and a </span><br />
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Complex Partial you are not aware. </span><span style="color: #990000; font-family: Georgia, Times New Roman, serif; font-size: large;">Other than being in the hospital or home, no one had ever assisted us before during a seizure. I am sure it was a good learning experience for all the people that were there and saw it. By the time Abigail's EEG </span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">was completed they had put Brett in a wheel chair and brought them to meet us to get weight, measured and talk to the nutritionist. We then gathered in a large room with the Doctor, 4 Nurses, the EEG Tech, Abigail, Brandon, Brynn, Brett and I. Brett was first and it was obvious that he needed some changes since he had the cluster there. </span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">We talked about Brett's hospital admission to the EMU for 6 days. I told him that I felt that Dr. made him worse by messing with his medications. He has not been the same since he crashed the night before discharge. He slept 10 hours his last night there. Slept through discharge, including having the wires removed and had to get to the vehicle by wheelchair because he could not walk </span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">at all. He slept </span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">four hours after</span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;"> on the way home.</span><br />
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">He started having a new seizure type after he got home, was having tons of little seizures that would only stop with Ativan and would return. His stomach aura was much worse and he was generally off balance and completely not with us most of the time for a few weeks. In the six weeks since he was discharged he was a lot worse than he was in the six weeks before he went. </span><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;">He </span><span style="color: #990000; font-family: Georgia, Times New Roman, serif; font-size: large;">really felt that the Lamictal could actually be causing the Topamax to not work </span><br />
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as effectively or that the Lamictal may not be a good drug choice for Brett. So we decided to add Depakote, since Brynn had a good response on it for so long. We talked about how Brynn and Brett respond so well to Benzo's and even how odd it is that Brynn and Brett both tend to not get sleepy after given a Benzo. He asked curiously how Brynn responded after he started Vimpat.</span><span style="font-size: large;"><span style="clear: right; float: right; font-size: large; margin-bottom: 1em; margin-left: 1em;">
<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">I told him I have a video, that Brynn was so awake and alert after starting Vimpat that we were amazed! Turns out that people that respond like they do to Benzos often have the same response from Vimpat. It has to do with brain chemistry and Vimpat is likely going to be really good for Brett like it was for Brynn. </span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif;">He even talked about the extreme Keppra rage Brett experienced and said that people with their kind </span><span style="color: #990000; font-family: Georgia, Times New Roman, serif;">of brain chemistry actually are the ones to usually have that effect from Keppra, just so much hyper aware that it has a very negative impact of their functioning. So right off the bat I got an answer to a question I had pondered so many times! So of course we decided to try adding Vimpat instead of Depakote for Brett and we agreed that Onfi should be next. We talked about Brett's Left eye and how it often kicks out</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">and gets stuck before and after seizures. He was very educated about what could be the cause of this and he called the eyes bouncing up and down and side to side Nystagmus and said that he also has ataxia. He went in to great detail (a lot of it was over my head) after I came home I did research the words he used and figured it out, Cerebellar Ataxia. I realized after researching that the Nystagmus is actually a symptom of</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;"> it, so is double vision. Boom, another mystery answered! Abigail was next, her EEG was normal and we decided that if I became concerned I could contact him and request a 24 hour or longer study. He felt strongly that whatever we are dealing with is a rare syndrome passed on from me to the boys. He said that the video of Abigail really could be parasomnias. </span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif;">I felt that </span><span style="color: #990000; font-family: Georgia, Times New Roman, serif;">since she was not wetting herself like the boys did and since I had not seen any real evidence of activity while awake I would just keep watching her. Brynn was next, we talked about Brynnon's history and we talked about how Brynnon has been doing so well, having an average of only 1-3 seizures a week is so great for him considering his past history. </span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, 'Times New Roman', serif;">I stressed that I wanted to </span><span style="color: #990000; font-family: Georgia, Times New Roman, serif;">leave things exactly as they are and he agreed. As we were finishing up with Brynn Brett bounced back a bit from the seizure cluster and started to play, rolling around in the wheel chair. We both smiled and I said, see... now that his postictal phase is almost over you get to see the real Brett! He shook his head and said that is really shocking that he can function so well on that high a dose of Topamax. So all in all, that was the best visit we have had in a long time. My heart is in New Orleans with their prior Neuro, but considering where Brett is on the seizure journey and the 5 hour drive for care... my head says it is safe enough to stick with this one. So, that is what we will do! </span><br /><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;"> So after this really neat experience, I must say that is our closest experience to "The Village" that we have ever experienced. I recently read this book by Lowel Evans. I realized as I was reading it that "The Village" is what has been missing in our lives. You know it's sad in this day and time, people rarely take time to call, write or contact people in any way. Even families have so much less contact than previous generations. Epilepsy is a stigmatized, unknown and misunderstood condition to begin with. If you take a family like mine and throw epilepsy in, well you end up feeling like you are all alone!</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">Since my Mother was murdered in 91', we homeschool and we moved for work so many times our children have missed out on a lot. We haven't really had the "family" like most people do for most of my children's lives. I have six children and I can count on one hand the times that my children have had birthday parties where people attended. I can also count on two fingers how many times the boys were hospitalized and someone visited them. The Village concept is one that people reach out and help each other. Not</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">necessarily with money but just general support when people are going through hard times or trials. The Village is the community that the character in the story lives in and when he is targeted for having Epilepsy at his job, the village all comes together and helps him not only get through the hard time in his life but they help him feel loved and wanted. You can read about the book and get a copy here: </span><a href="http://thevillageiscoming.blogspot.com/" style="color: #990000; font-family: Georgia, 'Times New Roman', serif;">http://thevillageiscoming.blogspot.com/</a><br /><span style="color: #cc0000; font-family: Times, Times New Roman, serif;"><b><br /></b></span><span style="color: #990000; font-family: Georgia, Times New Roman, serif;"> So, The Village book got me thinking how much it is needed for the Epilepsy Community to reach the outsiders to educate them and the outsiders to reach them to support them. We started seeing some of this concept in our own lives when a friend donated to make Blue's deposit possible. Through the small donations given by a few people we kept the hope.</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">Through the donation from a Rowan Company of $500 we were amazed! Blue's balance dropped to $2,500 after that generous donation! KONG sending the boys a box filled with goodies for Blue, People sending messages to check on the boys, my sweet friend and her husband praying for the boys and donating, finding out that the Church you use to attend 20 years ago has taken up donations for Blue... All of this is The Village</span><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #990000; font-family: Georgia, Times New Roman, serif;">concept in real life. I can't describe what a blessing it is to know that people want to reach out to Brynn and Brett. I just wanted to say how grateful we are to those that have helped us get closer to getting Blue home! It means so much to Brynn, Brett and our family! She will likely be ready around February, and we believe that the funds will come... that the village will come together and get Blue home!</span><br /><br /><br /><div class="separator" style="clear: both; color: #990000; font-family: Georgia, 'Times New Roman', serif; text-align: center;">
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<span style="color: #cc0000; font-family: Times, 'Times New Roman', serif; font-weight: bold;">~Colossians 3:15-20</span><b style="color: #cc0000; font-family: Times, 'Times New Roman', serif;"> - And let the peace of God rule in your hearts, to the which also ye are called in one body; and be ye thankful. </b><br /><b style="color: #cc0000; font-family: Times, 'Times New Roman', serif;">~</b><b style="color: #cc0000; font-family: Times, 'Times New Roman', serif;">Ephesians 1:16-18 - Cease not to give thanks for you, making mention of you in my prayers...</b><span style="color: #990000; font-family: Georgia, 'Times New Roman', serif; font-size: large;"> </span></span></span><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-53792131211406714192014-08-09T03:48:00.001-05:002014-08-09T15:17:55.697-05:00Got Patience?<div dir="ltr" style="text-align: left;" trbidi="on">
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<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-size: large;"><b><br /></b></span></span></span>
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-size: large;"><b>"The quality of being patient, as </b></span></span></span><br />
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<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-size: large;"><b>the bearing of </b></span></span><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b>provocation, </b></span></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b><br /></b></span></span>
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b>annoyance, misfortune, or pain, </b></span></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b><br /></b></span></span>
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b>without </b></span><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b>complaint, loss of temper, </b></span></span><br />
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b><br /></b></span></span>
<span class="Apple-style-span" style="font-family: Georgia, 'Times New Roman', serif;"><span class="Apple-style-span" style="color: #660000; font-size: large; line-height: 18px;"><b>irritation, or the like." </b></span></span><br />
<span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-family: Times, 'Times New Roman', serif; font-size: large;"><b><br /></b></span></span>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKZKX7FIGl7XjMNJ5hF2nkfrgshP9h24af14OK2cPMwXTzxET_oKI2Zx7eLIjAI60apxXd5EtcD516ar_kYYOgQaCaZs7M8SYIp4WhZa7uP-FpzCMLWOUBMSuApgWqHbzNkmv8Ae2OIAsz/s1600/IMG_0717.PNG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgKZKX7FIGl7XjMNJ5hF2nkfrgshP9h24af14OK2cPMwXTzxET_oKI2Zx7eLIjAI60apxXd5EtcD516ar_kYYOgQaCaZs7M8SYIp4WhZa7uP-FpzCMLWOUBMSuApgWqHbzNkmv8Ae2OIAsz/s1600/IMG_0717.PNG" height="320" width="173" /></a><i><span style="color: #990000;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b>My Momma use to tell me I had the </b></span></span></span></i><br />
<i><span style="color: #990000;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><br /></b></span></span><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b>patience of a saint... I never really knew </b></span></span></span></i>
<br />
<i><span style="color: #990000;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><br /></b></span></span></span></i>
<span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-family: Times, 'Times New Roman', serif; font-size: large;"><b><i><span style="color: #990000;">what she meant, but I sure do now.... </span></i> </b></span></span><br />
<span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-family: Times, 'Times New Roman', serif; font-size: large;"><b><br /></b></span></span>
<span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="color: #660000; font-family: Times, 'Times New Roman', serif; font-size: large;"><b>I have had many lessons in patience.</b></span></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"> I was born graced with more patience than most people I know. Also like most people I know, I find as I get older my patience gets a little thinner. I have had to practice a lot of patience in my life. I have to admit though, I often feel that I have had more than my fair share of the testing of my patience. I can say for certain that I have grown and learned many lessons from practicing being patient. One of my favorite sayings is, "The longer you wait the better it is." I often use this when speaking to others about </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">patience. I know in my life, the things I have really longed for, really prayed for and anxiously awaited for in anticipation... Those are the things that I really appreciated, really enjoyed and really cherished. These past few months I h</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">ave seen a glimpse of a few of those things I had been patient for... </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">Blue, our Seizure Service Dog's name being chosen and at last a dream came true was put in motion. </span></b></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghqWSB1Tn0ndi-dBYzom-xs_zlg4LoWxBi10z-yI04berxWRutULjssAbd5v4NkG8y_N9nSdIvHuDU5FWjIYQTNFV-6E7bTcGMKiMEf7LYbfa3piC8xYOoxCPUQ-88lNXdwj-oSixIZUGE/s1600/The+longer+you+wait+for+something.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghqWSB1Tn0ndi-dBYzom-xs_zlg4LoWxBi10z-yI04berxWRutULjssAbd5v4NkG8y_N9nSdIvHuDU5FWjIYQTNFV-6E7bTcGMKiMEf7LYbfa3piC8xYOoxCPUQ-88lNXdwj-oSixIZUGE/s1600/The+longer+you+wait+for+something.jpg" height="120" width="200" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghqWSB1Tn0ndi-dBYzom-xs_zlg4LoWxBi10z-yI04berxWRutULjssAbd5v4NkG8y_N9nSdIvHuDU5FWjIYQTNFV-6E7bTcGMKiMEf7LYbfa3piC8xYOoxCPUQ-88lNXdwj-oSixIZUGE/s1600/The+longer+you+wait+for+something.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEivpV4n4ihCGiJ_D1aLgyAXL8EkkUy8d_VozR2XN-Ni5mBt1LRR-qsfJYvLbBP_refRodezkJhlZVlpMMcUcVsYB78AmD2j6goOGyUyx6bZaym7gSGvuz_73V5i5MzEJvlciwdGSThGuM_E/s1600/IMG_0497.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br /></a><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">A dear friend who I met on Craigslist, of all places, gave a wonderful miraculous gift of $1,000 to get Blue's deposit paid so she could start training!</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"> When I think back of how we </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">met and how </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">w</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">e became closer than most people I have in my life... </span></b></span><br />
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<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5kzNZpLMm4L4xJd-E_1g9bkZP93VQK2Mzsui2Wn1hF1bF7QtP8zhCny8qvNUuKYolzdyTUmTUmKWenLNr343PRIF1UcXSNcVMU7QOUe_xtfGqByDsmdnyGUT0kFRbC3AxofuElNlzaysn/s1600/IMG_0497.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5kzNZpLMm4L4xJd-E_1g9bkZP93VQK2Mzsui2Wn1hF1bF7QtP8zhCny8qvNUuKYolzdyTUmTUmKWenLNr343PRIF1UcXSNcVMU7QOUe_xtfGqByDsmdnyGUT0kFRbC3AxofuElNlzaysn/s1600/IMG_0497.JPG" height="200" width="150" /></a></span></b></span></div>
<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">I just have to chuckle and just shake my head in awe of it all. It was after all during the breast cancer scare while pregnant with Abigail that we met. </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"> </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">We actually met for the first time in the hospital parking lot. She </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">had responded to an ad I placed on craigslist looking to buy a baby swing. She had the very swing I wanted </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">and also gave me lots of </span></b></span><br />
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<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh12enI4o_1_EfhrDo1L8R4m5FUgFJQBf7XrjhYL45DbXJu1gSLeAt6M3Jrc9h60EYu44eTjksb6NQY-L3zo-jBezfH3ELQmqbi4xgHQs2HUo_NpfFg90lkd2X92u79XQnBRwvRTW-prplP/s1600/IMG_0254.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh12enI4o_1_EfhrDo1L8R4m5FUgFJQBf7XrjhYL45DbXJu1gSLeAt6M3Jrc9h60EYu44eTjksb6NQY-L3zo-jBezfH3ELQmqbi4xgHQs2HUo_NpfFg90lkd2X92u79XQnBRwvRTW-prplP/s1600/IMG_0254.JPG" height="200" width="200" /></a></span></b></span></div>
<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">
burping clothes, a bouncy seat, bibs and other items as well. It was a dream come true, the very "cradle swing" I had oohhed and aahhed over! Over the next few weeks we chatted </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">on facebook and became online friends. Eventually, we </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">exchanged phone numbers and became the greatest "night owl" phone friends ever! I was blessed to have her family </span></b></span><br />
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<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFXot9ZAiWwO_Aq__Ua344rDE5lplT7mhGt1FemzHqRaTn-2FoL8vkYrofFvcirrB5MzlKcoUb03bNKfIZvnPGkKWOULuwYGWHf2DgopJhUv4v6bcNwUkgKctGtthSK-Fi5FvuquV5hPGY/s1600/IMG_0331.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjFXot9ZAiWwO_Aq__Ua344rDE5lplT7mhGt1FemzHqRaTn-2FoL8vkYrofFvcirrB5MzlKcoUb03bNKfIZvnPGkKWOULuwYGWHf2DgopJhUv4v6bcNwUkgKctGtthSK-Fi5FvuquV5hPGY/s1600/IMG_0331.JPG" height="200" width="150" /></a></span></b></span></div>
<span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">
come for a visit recently. Indeed, this was only the second time we actually "saw" each other. Over that four year period we had formed a friendship that was stronger than most </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">of my lifelong friendships. It was as if we had known each other our whole lives... Our entire families gelled together like long lost cousins. It was amazing, to look back and know that this one of a kind friendship has to be a "God thing!" <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhn_Brlf5Epun95HVfUby7nyVg24qYz5fbVeF9vHhdYpjzK6pT_Dd3DO3fMbVWbVB_OQScYMQ5bYY99pDdw8zdBspB9PE6DO06ch-YKnBLyyK3YhXN4XeIMO0gaIBDHkgHLtFN6I-eSICd4/s1600/IMG_0366.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhn_Brlf5Epun95HVfUby7nyVg24qYz5fbVeF9vHhdYpjzK6pT_Dd3DO3fMbVWbVB_OQScYMQ5bYY99pDdw8zdBspB9PE6DO06ch-YKnBLyyK3YhXN4XeIMO0gaIBDHkgHLtFN6I-eSICd4/s1600/IMG_0366.JPG" height="200" width="150" /></a></div>
</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">Just before her visit Brynn had a seizure that caused him to fall. He injured his knee so I</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;"> took </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">him to the ER. The ER referred him to an orthopedic surgeon who said he needed an MRI. After a week of trying to figure out how to do this with the VNS, it was determined that he can only have a MR<span style="font-size: large;">I</span> at Children's Hospital. The VNS has to be turned off for any MRI. His Daddy took him to Children's to see another Orthopedic Surgeon who took better X-Rays and determined that he does have a torn ligament and his kneecap is also out <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBKGnu8kCRGBwe8CCuinmpAOcUSe5g4ikqCYb2VX2Y5Obm73N8ZLDMajycevIFL_32lsuL9q5y1uWB0aLVJjsFsxfmMGzBCacWyRIaUsDVWqDwFd8Z1AfLn23YAzCU5CDwZrgtiivCkN29/s1600/IMG_0726.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBKGnu8kCRGBwe8CCuinmpAOcUSe5g4ikqCYb2VX2Y5Obm73N8ZLDMajycevIFL_32lsuL9q5y1uWB0aLVJjsFsxfmMGzBCacWyRIaUsDVWqDwFd8Z1AfLn23YAzCU5CDwZrgtiivCkN29/s1600/IMG_0726.JPG" height="200" width="150" /></a></div>
of place. He has it braced now and does daily excersises to try t<span style="font-size: large;">o get the kneecap back whe<span style="font-size: large;">re it belongs. If it doesn't he will have t<span style="font-size: large;">o have surgery. </span></span></span>The week Prior to her visit and the week of her visit the boys had their PET scans and MRI test done. Brett developed Petechiae a day or two after each test was done only on his forearms. I couldn't get answers from the Hospital nurses or Radiology staff and took him to two Doctors seeking answers.<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHR_D6PTwz8d8imyXeR7mEqTrN47lMbKjs4T1qt9uTUYMOiqbhP3XUtt-BVPCTABI0JY5MGzAqvt1H_UdKRY7HaiB6DgdbuA0aCK2-6xyCRQypPDUMhw0e3JA1MYKNW7_Pt13_GfBaJ_Nu/s1600/IMG_0572.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjHR_D6PTwz8d8imyXeR7mEqTrN47lMbKjs4T1qt9uTUYMOiqbhP3XUtt-BVPCTABI0JY5MGzAqvt1H_UdKRY7HaiB6DgdbuA0aCK2-6xyCRQypPDUMhw0e3JA1MYKNW7_Pt13_GfBaJ_Nu/s1600/IMG_0572.JPG" height="200" width="150" /></a></div>
</span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">We never did get a definitive answer as to why, except that it may be his med combo causing his capillaries to be weakened and </span></b></span><span class="Apple-style-span" style="font-family: Times, 'Times New Roman', serif; font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">make him prone to bruising. The boys will both go soon for a 5-7 day EMU stay. We hope that we will get some answers from these new test at the new hospital. Brynn has done relatively well the past several months. He has experienced a seizure decline over all, and when he does have them they are generally less dramatic. He is also somewhat stable cognitively, compared to how h<span style="font-size: large;">e has been in the past. We </span><br /><div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVK2Ii7Gqv1ODyayf0qyedTYgM4Tqz-nlheOi3FIvJMYQnPY822lOfPFBbwG6651qhdWqC60TlmDsGwTwV0yW3zZVvTDQfkoQWxwCFUclXY5qYbKv1u4K59mA8Pm3HIYDmIeGRs0_IyU5t/s1600/IMG_0344.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVK2Ii7Gqv1ODyayf0qyedTYgM4Tqz-nlheOi3FIvJMYQnPY822lOfPFBbwG6651qhdWqC60TlmDsGwTwV0yW3zZVvTDQfkoQWxwCFUclXY5qYbKv1u4K59mA8Pm3HIYDmIeGRs0_IyU5t/s1600/IMG_0344.JPG" height="200" width="150" /></a></div>
hope that this will continue! Brett has had a lot less Complex Partial Seizures that spread into his Temporal Lobe causing the extreme euphoria and fear. It is much easier to deal with the seizures when they are not scary for everyone else in the house. We have seen a decrease in daytime seizures overall, but they still tend to cluste<span style="font-size: large;">r when they do appear in </span><br /><div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdRPBb4_NUjv4ZAxu4URT9gobfj-OJiOElDnq0nszR52obCZ2LwWvrXwbuBLh8ufNYXzsT94mJLx5sY7qRLMe7yqdiDIGQ-08OBr0YnCH8AmPYCmFblDgriSG2NKtsb0fVAskV6TvtQ8z0/s1600/IMG_0617.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdRPBb4_NUjv4ZAxu4URT9gobfj-OJiOElDnq0nszR52obCZ2LwWvrXwbuBLh8ufNYXzsT94mJLx5sY7qRLMe7yqdiDIGQ-08OBr0YnCH8AmPYCmFblDgriSG2NKtsb0fVAskV6TvtQ8z0/s1600/IMG_0617.JPG" height="150" width="200" /></a></div>
multiples of 2-4 a day. His visual auras/Simple Partials are persistent and no longer seem to respond to the Topamax. We did initially try to wean the Topamax due to Heat Intolerance, but quickly discovered that it caused his vision to become so poor with flipping images/double vision he couldn't really<br /><div class="separator" style="clear: both; text-align: center;">
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see at all. After increasing it back, he never fully regained control of that seizure type again for more than a few hours at a time. Just this week we finally were blessed with the amazing gift of love that we have wanted for two years now! The SAMi Monitors are here! <div class="separator" style="clear: both; text-align: center;">
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They were given to the boys through the Chelsea Hutshison Foundation. I donated what we had left of the money raised with bracelet sales. I hope to be able to donate more soon. It is a wonderful foundation that is helping so many children with seizure disorders! <span style="font-size: large;">I knew within<span style="font-size: large;"> two </span></span> <div class="separator" style="clear: both; text-align: center;">
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hours of the SAMi's being on that this is a miracle, when it actually alarmed to a Tonic Seizure Brynn had while taking a nap. Such a wonderful feeling of peace, knowing that the SAMi's are watching the boys too while they sleep! Now, back to that patience thing... </span></b></span><br />
<span style="font-family: inherit;"><span class="Apple-style-span" style="font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">Most people when talking about patience think it just means waiting. It's not really about just </span></b></span></span><br />
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<b><span class="Apple-style-span" style="color: #660000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjJcXNowxgypdwTD2aOX4SL6SqZdFp_CskJroUY156bWL7EXPO-5sPMCQGklJc5xtOL_WmCQ17b3c9CAsceOTwcbHrdCdsems3R_4yXkuwwfNxIbDey3MSBop1iA_r0LSmpm5srZyB5VSF/s1600/IMG_0773.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjJcXNowxgypdwTD2aOX4SL6SqZdFp_CskJroUY156bWL7EXPO-5sPMCQGklJc5xtOL_WmCQ17b3c9CAsceOTwcbHrdCdsems3R_4yXkuwwfNxIbDey3MSBop1iA_r0LSmpm5srZyB5VSF/s1600/IMG_0773.JPG" height="131" width="200" /></a></span></b></div>
<span style="font-size: large;"><b><span class="Apple-style-span" style="color: #660000;">waiting, it is waiting while not exhibiting complaining and showing your frustration with not having what you want NOW. I know full well what Momma was talking about at this point in my life. It is seldom easy to wait for something that you need at this moment and not</span></b></span><br />
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get frustrated and complain. Especially when it is something that your child needs, like answers to medical problems or just a matter of being set free from something that is hurting them. In this seizure journey, my patience has been tested almost daily. I recently was thinking about patience and Momma saying I had the patience of a saint. I think I too had fallen prey to the </span></b></span><br />
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overwhelming desire to complain about how unfair things are in my life. How unfair it is that the boys have Epilepsy, that medications are not making them seizure free... and that is when I realized that I had become like the children in the wilderness... bickering and complaining... It's very difficult to watch your child have seizures and practice being patient. All too easy to become frustrated with <div class="separator" style="clear: both; text-align: center;">
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not getting answers and the solutions to make these seizures stop. It was then that I realized, it's not just waiting... It's waiting knowing that it may never come. It's waiting, believing and hoping that it will come... and knowing that our Father is in control and at the right time, perhaps it too will come! Until then, I will keep practicing being patient and like Abigail... Just keep smiling and singing joyfully, knowing that it will come! When I feel the temptation to become inpatient, I think about the children of Israel. They were right there and bickered and complained so much they just stretched out their time waiting... <span style="font-size: large;">I am amazed <span style="font-size: large;">when </span></span>I think about how far we have come. A year ago, I ne<span style="font-size: large;">ver would have thought we would have a Seizure Service Dog in training and Two <span style="font-size: large;">SAMi <span style="font-size: large;">Monitors</span>! GOD IS GOOD! </span></span></span></b></span><br />
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<iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/gat6NPfkuBY?feature=player_embedded' frameborder='0'></iframe></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;">Please find is at Facebook.com/EpilepsyWarriorBoys to help being Blue home to help Brynn and Brett fight this Epilepsy Battle... We do not own or claim to own the song used. The song is Blue Does By: Blue October. It is the inspiration that gave Blue her name! Please help being Blue home!!!! Donations cane be made here: <br /><a href="http://youcaring.com/EpilepsyWarriorBoys">http://youcaring.com/EpilepsyWarriorBoys</a></span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;">Or for tax exempt donations through our sponsor, NSDF, a 501(c)3 non-profit Here:</span></span><br />
<a href="http://nationalseizuredisordersfoundation.org/brothers-winning-the-battle-of-seizure-disorder/"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;">http://nationalseizuredisordersfoundation.org/brothers-winning-the-battle-of-seizure-disorder/</span></span></a><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;">*Please be sure to note that the donation is for the "Epilepsy Warrior Boys" and let us know you donated!</span></span><br />
<span class="Apple-style-span" style="color: #990000; font-family: Verdana, sans-serif; font-size: large;"><i><b style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><br /></b></i></span>
<span class="Apple-style-span" style="color: #990000; font-family: Verdana, sans-serif; font-size: large;"><i><b style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">Hebrews 6:11-12</b> <span style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">And we desire each one of you to show the same earnestness to have the full assurance of hope until the end, so that you may not be sluggish, but imitators of those who through faith and patience inherit the promises.</span></i></span><br />
<span class="Apple-style-span" style="font-family: Verdana, sans-serif; font-size: 10px;"><span style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><br style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;" /></span></span></div>
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<b>We have moved, settled... Been to the Biggest Children's Hospital we have ever seen (3rd largest in the U.S.) and saw a new Epileptologist. We moved to Alabama, and have adjusted to a lot of changes pretty well so far. We are in the city, never lived in a city like this before! A big shock and change for us, having been primarily in the country for the last 20 years! Had a visit with a new Epileptologist, that was "interesting." A bit different than what we have grown accustomed to. </b><b><b> </b></b><br />
<b><b>Brynn and Brett will both be having PET scans, better MRI's </b>and 5-7 day Epilepsy Monitoring Unit EEG's. Our last visit in New </b><br />
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<b>Orleans, was bitter sweet. I really hated leaving the Neurologist that we all loved and we all knew he cared for the boys greatly. It will be good for the boys to have better testing done and we can only hope that through this we will get answers and prayerfully solutions. The boys were not very impressed with the new Dr., perhaps just a little sad about loosing what they were comfortable </b><br />
<b> </b><b>with. I will remain positive and keep pushing through until the
testing is done, and we feel the new facility out a little better. </b><b>I did manage to get a copy of Brett's 10 minute Complex Partial
picked up in N.O.'s EMU, although it's just the EEG and not him like I
wanted.</b><br />
<b></b><br />
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<b> We successfully weaned Brynn of Zonegran and switched to Fycompa, a new drug. Brynn's random jerks have returned, we are unsure if it is a seizure type or a side effect only the test will give that answer... He is overdue an EEG to look at activity/background , so it will be good to have another, and an extended EMU stay can catch so much more than a shorter stay too. The drawback is that it is outside their normal envirement, and sometimes that makes it harder to catch seizures. </b><br />
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</b><b><b><b><b>Brynnon is still going strong, </b>having his better than ever
baseline of seizures. Not exactly sure whether to give the credit to the
VNS or Onfi... or even both, but we are very grateful for the
reduction! </b>Brett, who had been doing a bit better seizure wise, developed heat </b>intolerance and gets a fever when he goes outside. It is a side effect of Topamax so we added Lamictal and tried to wean the Topamax, only to see a return of the constant visual auras, tummy auras and the longer Complex Partials. We raised it back, but haven't been able to get the same level of control yet. Brett is having somewhat of a good response to the medications he is currently taking. We are seeing a lot less fear involved in the seizures and they are much less dramatic. Actually, they are a lot like Brynnon's daytime seizures now. Brett's nighttime activity is still much better as well. </b><b><br /></b><b><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzfy3qtEyf4i2s8u5t32hC396wceS0wOO1WQ5NfNBpwTmsvULbuHE5z46F-no8diFUYsw9Kofr0HpymUu5GbdXtMjHV2dz2An7m8Kbi1GgzpVcuc1aAorWK-NhW__XkqjMnp-UWrqbiiT7/s1600/1150719505pizapw1403899065.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhzfy3qtEyf4i2s8u5t32hC396wceS0wOO1WQ5NfNBpwTmsvULbuHE5z46F-no8diFUYsw9Kofr0HpymUu5GbdXtMjHV2dz2An7m8Kbi1GgzpVcuc1aAorWK-NhW__XkqjMnp-UWrqbiiT7/s1600/1150719505pizapw1403899065.jpg" height="239" width="320" /></a></b>We have picked a trainer and are fund raising for a Seizure Service Dog. Her name is Blue! We were inspired to name her Blue after hearing the song Blue Does, By: Blue October. <br />She is a German Shepherd and will be trained by Guardian of the Night K9. She will be trained to alert for seizures, assist the boys when postictal and so many other things! We are pretty excited about Blue! We have already raised her deposit and only have $3,500 left to get her trained and home! I bet we will all sleep better with Blue in the house and finaly not feel on edge all the time! She will be an official, vested, certified ADI Service Dog and will go everywhere we go! So, there ya go... an update! Short and sweet, just the way you like them! <br />As always, thanks for your Love, Prayers and Support!!<br />~Denise and Family</b><br />
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<b>............</b><b><iframe allowfullscreen='allowfullscreen' webkitallowfullscreen='webkitallowfullscreen' mozallowfullscreen='mozallowfullscreen' width='320' height='266' src='https://www.youtube.com/embed/YEu2dLknGms?feature=player_embedded' frameborder='0'></iframe>.............<br /><br /> </b></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-64161714595286494372014-05-20T13:46:00.002-05:002014-05-20T14:04:44.403-05:00Brett's Surgery complete and other ramblings! <div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgg1YaOIMDkjabHjAEHm5dNkjNy9S-kaUtFW2KSkeV9un3TdsAT5tDyIJB9ufJgQLPYGDRlJnOYEtWyl1lE9dLWyGpWRoPiFiRXnCQBag25QC_hhgQU3ThRBRBljb9Oo5pqh_APOUA2Vxto/s1600/10171704_10203617838143776_1403804112455023114_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgg1YaOIMDkjabHjAEHm5dNkjNy9S-kaUtFW2KSkeV9un3TdsAT5tDyIJB9ufJgQLPYGDRlJnOYEtWyl1lE9dLWyGpWRoPiFiRXnCQBag25QC_hhgQU3ThRBRBljb9Oo5pqh_APOUA2Vxto/s1600/10171704_10203617838143776_1403804112455023114_n.jpg" height="240" width="320" /></a></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Brett finally had his VNS implant surgery on 5/12. The original surgery was postponed due to both Brynn and Brett being infected with Mycoplasma (Walking Pneumonia), which aggravated his asthma. So 6 weeks was needed before he could be put to sleep for his </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQk0o_UxbvCepaykSEz9ERRMo_b_KJOCYRPMjpHoSNYbiatAn41JUd-eKiCakPq02jY-GpZoUFtMycgvFlKPCTpl8o2A0F0Y3WzQBgVBbkLARQ17vxCrh1omCWW7yh0528x_zSZopzkXRf/s1600/10330498_709924855720205_8317952309917747672_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQk0o_UxbvCepaykSEz9ERRMo_b_KJOCYRPMjpHoSNYbiatAn41JUd-eKiCakPq02jY-GpZoUFtMycgvFlKPCTpl8o2A0F0Y3WzQBgVBbkLARQ17vxCrh1omCWW7yh0528x_zSZopzkXRf/s1600/10330498_709924855720205_8317952309917747672_n.jpg" height="320" width="320" /></a></span></span></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">lungs to heal. </span><span style="font-size: large;">Surgery went well, other than his heart rate dropping when it was tested, no problems. It was tested twice after the wire was moved and assumed it was the wire position so it got to stay! His VNS, like Brynn's was left on at lowest setting when they closed and he will return to get checked by neurosurgeon next week, </span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqylQknpW7yJZ4yrAbcuzJl1t8cpRWIdGq34F_6z1YjAC553pe4bHCVQAOAA5POYzxUkuKWXtbE9Zf2e43nyQrd7K883uW5fzK193TIkiurzmqLa2Ls38GGh8eiN-04edrwT85XRsgFd0O/s1600/10382149_713005458745478_5925343277770475501_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhqylQknpW7yJZ4yrAbcuzJl1t8cpRWIdGq34F_6z1YjAC553pe4bHCVQAOAA5POYzxUkuKWXtbE9Zf2e43nyQrd7K883uW5fzK193TIkiurzmqLa2Ls38GGh8eiN-04edrwT85XRsgFd0O/s1600/10382149_713005458745478_5925343277770475501_n.jpg" height="320" width="320" /></a></span></span></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">as well as both boys get to visit with their most favorite Neuro Dr. D. Today is Day 8 and his incisions look great! He did have some possible pus at the chest incision, as well as an ear infection last week, so he has been on antibiotics since Thursday. We are anxious, of course, to see how this will help his seizures. <br /><br /> At present, Brett is having clusters a few times a </span></span><div class="separator" style="clear: both; text-align: center;">
<span style="font-family: Georgia,"Times New Roman",serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEYjzL-2TLey12yBTr6sV1QDU3wJvgsT_qE-_Z-hBAKAbcLOVubPZwvolKEe5OIyHRCDHCWu2naGpH_4nYeMwUXwZ4gxRXab1Po8ximnEp8EYXel5W9HTnuodDB9-QIA2st9uTbn7xvorC/s1600/10369204_709968625715828_4851310589299199394_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhEYjzL-2TLey12yBTr6sV1QDU3wJvgsT_qE-_Z-hBAKAbcLOVubPZwvolKEe5OIyHRCDHCWu2naGpH_4nYeMwUXwZ4gxRXab1Po8ximnEp8EYXel5W9HTnuodDB9-QIA2st9uTbn7xvorC/s1600/10369204_709968625715828_4851310589299199394_n.jpg" height="200" width="150" /></a></span></div>
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week, with days in between with some night time seizures now and again or none at all. This is an improvement from the everyday seizures we saw over the past few months<span style="font-size: large;">. We are learning to be thankful for every little thing<span style="font-size: large;">!</span></span><br /></span></span><br /><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">“Prayer is not overcoming God’s reluctance, but laying hold of His willingness.”</span></span></span></span></span></span></span></span></span><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"> </span>~Martin Luther</span></span></span></span></span></span></span></span></span></b><br /><span style="font-size: x-large;"><span style="font-family: Times,"Times New Roman",serif;"><b><br /></b></span></span> Brynn, however, is holding strong with the greatest seizure freedom he has ever had. Only having small seizures most nights and daytime he is having only really small "lost moments" not obvious bigger complex partials like before. VNS? Onfi? Med combo? All of the above? </span></span><br /><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Who knows, </span></span></span></span><div class="separator" style="clear: both; text-align: left;">
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJa7XCach40934SQ-AVBT8QO4Ve0RtaVUINDFxjBWwpJupcELqeWGlO1osogVK3z3URx3u-K77s8ZXbYFVU3XpxrjyOM9Kl9q5bPv2qsw-hJY1uBn357AqzdpAw25k43qerbRYvx5653sX/s1600/1601036_703435883035769_1196737655982673636_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiJa7XCach40934SQ-AVBT8QO4Ve0RtaVUINDFxjBWwpJupcELqeWGlO1osogVK3z3URx3u-K77s8ZXbYFVU3XpxrjyOM9Kl9q5bPv2qsw-hJY1uBn357AqzdpAw25k43qerbRYvx5653sX/s1600/1601036_703435883035769_1196737655982673636_n.jpg" height="200" width="320" /></a>but we are very happy with his current condition! He is having improvements in his general cognition, and we will likely talk about weaning one of his medications this neuro visit. Pretty exciting stuff! </span></span></div>
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"></span><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRpnWHhqu2WP4kNfJar_oKAWCH7OkvJT7Ty8OUn2JmMK-51mv3JPfAv2Z1QQ8spZs-6ltL6_wqRsUDUBpUzhF1q-RgusRUYe3xb3bC-2d6CXJN9h_9fcb9FOBTeUaDBo4NM_JhVcwpQffP/s1600/10337760_712615748784449_3228747254271673820_n.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhRpnWHhqu2WP4kNfJar_oKAWCH7OkvJT7Ty8OUn2JmMK-51mv3JPfAv2Z1QQ8spZs-6ltL6_wqRsUDUBpUzhF1q-RgusRUYe3xb3bC-2d6CXJN9h_9fcb9FOBTeUaDBo4NM_JhVcwpQffP/s1600/10337760_712615748784449_3228747254271673820_n.jpg" height="320" width="320" /></a> We have a lot of changes <br />coming over the next<span style="font-size: large;"> few <br />weeks, many new experiences... The possibilities are endless! We are all excited!! :) More on that later! ~Denise<br /></span></span></span></span></span></span></span></span></span></span><br /><span style="font-size: x-large;"><span style="font-family: Times,"Times New Roman",serif;"><b><br /></b></span></span><div style="text-align: justify;">
<span style="font-size: x-large;"><span style="font-family: Times,"Times New Roman",serif;"><strong><em><br /><br /><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">"So
we are always of good courage. We know that while we are at home in the
body we are away from the Lord, for we walk by faith, not by sight." </span></span></em><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">~2 Corinthians 5:6-7</span></span></strong></span></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-76682338859935418442014-04-07T22:03:00.000-05:002014-04-08T13:00:41.484-05:00Circles of Reality....<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMcrSnuEoNnxieLpYprZ_nPRnC0f8HnvA48kTHGHxYosdsKFur9_SqkCuoqZzzwCZ0oC4lVq2vyGnLomkxEjtvxcKTDEz0ZJKrYbnZevOAOG72my7LRunJv-RaW_hLXkhYAil8nokBRFhi/s1600/reality2.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjMcrSnuEoNnxieLpYprZ_nPRnC0f8HnvA48kTHGHxYosdsKFur9_SqkCuoqZzzwCZ0oC4lVq2vyGnLomkxEjtvxcKTDEz0ZJKrYbnZevOAOG72my7LRunJv-RaW_hLXkhYAil8nokBRFhi/s1600/reality2.jpg" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7XXGd6lNE6uZsDh4emsVx56U3AM99ckFReym1t20mFAKuzi_VVz-sbf88XWPT5j6_wLS-wUEVN_5a0y75nN8oP4EzaQIWuJgJFgYGj-Jsec1Px405NKaQ5-6f38tmSSecGpkQ6SZn4v4Y/s1600/Picture+16.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a><span style="font-size: large;">Ever feel like your going in circles? I mean really going in circles, in life. When something happens it doesn't seem new, just a repeat of the same circle. I find myself feeling this way a lot now, </span><span style="font-size: large;">especially with the boys. So much of what they are going through is the same, watching Brett is just like watching Brynn all over again. I have a tendency to obsess over things. (Pretty sure you may have already figured that out with my past ramblings.) I suspect it roots from Mommas murder. It's hard not to think that had I asked the right questions or researched it better, maybe the truth would have been known. </span></div>
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0nXMmpsmiQvlhkkOoRCKWU9iFlPZ-gAoVD0fCPBZUtzXyBh4N9gi7l0APXXVtngPtH_awEM4B_L1momEA3xD2vOqFtQc1YRcEC2TJ8-7swJnwNDP4ElQDvAQRuMAp3TK063rCpcL3qs7M/s1600/images98776545427.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh0nXMmpsmiQvlhkkOoRCKWU9iFlPZ-gAoVD0fCPBZUtzXyBh4N9gi7l0APXXVtngPtH_awEM4B_L1momEA3xD2vOqFtQc1YRcEC2TJ8-7swJnwNDP4ElQDvAQRuMAp3TK063rCpcL3qs7M/s1600/images98776545427.jpg" /></a></span></div>
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<span style="font-size: large;"> There comes a time when you have to just accept things as they come to preserve your sanity. That's where I am with this monster called Epilepsy. It has stolen so much from Brynn and to see Brett affected by it is just heartbreaking. The reality is that I can do nothing to change it, I can do nothing to fix it and I have done everything I can do. I pray every day for a cure and the </span></div>
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOvJz5OJVcjR7fW5piBEBuPMwtuYftdwRAMJKtprxbItphsvr5euPfebH5QgMaFkq8KjOEyJyeSENHgqZ6LtzZonCPn_ljGt8zKAZsn0rV34HOVqEWQMYI8apt97D0T3JvwViFomFMUISw/s1600/images7674542.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiOvJz5OJVcjR7fW5piBEBuPMwtuYftdwRAMJKtprxbItphsvr5euPfebH5QgMaFkq8KjOEyJyeSENHgqZ6LtzZonCPn_ljGt8zKAZsn0rV34HOVqEWQMYI8apt97D0T3JvwViFomFMUISw/s1600/images7674542.jpg" /></a></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7XXGd6lNE6uZsDh4emsVx56U3AM99ckFReym1t20mFAKuzi_VVz-sbf88XWPT5j6_wLS-wUEVN_5a0y75nN8oP4EzaQIWuJgJFgYGj-Jsec1Px405NKaQ5-6f38tmSSecGpkQ6SZn4v4Y/s1600/Picture+16.png" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><span style="font-size: large;"> seizures to stop, have spent days, weeks and months researching and trying to figure it out. I have tried a few diets, omissions in diet and even several herbal and even homeopathic remedies with no success. The answer is obviously not a simple one and maybe I am just not meant to have it today. I have accepted that, although that will not stop me from looking or praying it will! </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7XXGd6lNE6uZsDh4emsVx56U3AM99ckFReym1t20mFAKuzi_VVz-sbf88XWPT5j6_wLS-wUEVN_5a0y75nN8oP4EzaQIWuJgJFgYGj-Jsec1Px405NKaQ5-6f38tmSSecGpkQ6SZn4v4Y/s1600/Picture+16.png" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj7XXGd6lNE6uZsDh4emsVx56U3AM99ckFReym1t20mFAKuzi_VVz-sbf88XWPT5j6_wLS-wUEVN_5a0y75nN8oP4EzaQIWuJgJFgYGj-Jsec1Px405NKaQ5-6f38tmSSecGpkQ6SZn4v4Y/s1600/Picture+16.png" height="238" width="320" /></a><span style="font-size: large;">Brett's VNS surgery was scheduled for April 4th. We spent Epilepsy Awareness Day </span><span style="font-size: large;">(March 26, 2014) </span><span style="font-size: large;">at the Zoo, celebrating Purple Day and having a fun family day before Brett's surgery. It </span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOQAd5RNN5I-w1m609miX1-gaQIgHL8qMQqNIZmz5h1Q-7yijBHLK5xP7W9okvLZdRl1XYB5noQQ1hyphenhyphenYFhht2QUxnWVW2UIuhVHp-qPes1lNHKDCbiWplipdRlq2dJVGVybZFOx0CWZxan/s1600/19593370_10203277372712353_1648063845_n.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOQAd5RNN5I-w1m609miX1-gaQIgHL8qMQqNIZmz5h1Q-7yijBHLK5xP7W9okvLZdRl1XYB5noQQ1hyphenhyphenYFhht2QUxnWVW2UIuhVHp-qPes1lNHKDCbiWplipdRlq2dJVGVybZFOx0CWZxan/s1600/19593370_10203277372712353_1648063845_n.jpg" height="230" width="320" /></a><span style="font-size: large;">was a </span>l<span style="font-size: large;">ovely day! We handed out lots of Purple Bags with Cards, pictures, Purple Epilepsy Warrior Boys Bracelets and had so much fun! Met some realy nice people and got to talk about Epilepsy with some really nice people. I hope we can go to a bigger "Real" event next year! </span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxxZyIPCs_kGcdzw7KfnZDvgP8AOuPhnNTtgyOuYMFT745zEpmJ-qsuntHrTt8h7fx0Nothi-QzPfFk6sO6yhmnLuUAm-FmT4PT89AbxkxwMnUvsBHbVXpDvCtDmuEA2bcGfRAipbbAKvC/s1600/1979697_10203275850354295_1877365217_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjxxZyIPCs_kGcdzw7KfnZDvgP8AOuPhnNTtgyOuYMFT745zEpmJ-qsuntHrTt8h7fx0Nothi-QzPfFk6sO6yhmnLuUAm-FmT4PT89AbxkxwMnUvsBHbVXpDvCtDmuEA2bcGfRAipbbAKvC/s1600/1979697_10203275850354295_1877365217_n.jpg" height="320" width="240" /></a></div>
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<span style="font-size: large;">I took Brynn to the ER on Sunday, with seizure clustering, fever, congestion and he had become lethargic. He was given</span><span style="font-size: large;"> the diagnosis of Mycoplasma infection. This is the third time Brynn has had Walking Pneumonia. I kept them separated as much as possible, used Lysol like crazy... but it wasn't enough. On Tuesday, Brett</span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1SGEmQE2rhjOr4ZvLKu4fKmCPS6Y7Zr-vhtYCCX5wEYIyMZLtUnNmVDk1kFU9d9IPEmmjMlQNZ4yKb32nIbCzJiMkP1-aBDNGWGh_YmzFhSziMFAOrXnVucL9V0LvPripVqiHhQCi6-_1/s1600/IMG_20140402_015427-1.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj1SGEmQE2rhjOr4ZvLKu4fKmCPS6Y7Zr-vhtYCCX5wEYIyMZLtUnNmVDk1kFU9d9IPEmmjMlQNZ4yKb32nIbCzJiMkP1-aBDNGWGh_YmzFhSziMFAOrXnVucL9V0LvPripVqiHhQCi6-_1/s1600/IMG_20140402_015427-1.jpg" height="320" width="311" /></a> <span style="font-size: large;">was at the Dr. and given the diagnosis of Acute Bronchitis, likely the start of Mycoplasma Infection. He was given a Steroid and an Antibiotic Shot to try to ward it off as well as scripts for Oral Antibiotics and Steroids. Thursday morning it became apparent that he was not going for surgery on Friday. Now that it was established that he had Mycoplasma, surgery could not be scheduled for 6 weeks. So Brett's surgery has been rescheduled for mid May. </span></h1>
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The whole house ended up with Mycoplasma, and that stuff was brutal for Brynn and Brett. Pretty mild for everyone else, except Abigail's ear infections. Brynn's seizures were irritated by being sick. He was given oral antibiotics, as he cannot take steroids due to psychosis reaction to them. He is returning back to normal baseline now, and for that we are thankful. </span></div>
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<span style="font-size: large;">Brett is also doing pretty good now, his asthma reared it's ugly head but seizures have returned back to his baseline already. I will keep my eyes on the road, keep my heart on the goal and keep moving forward! </span></div>
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<span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTylnRxPO9l_WNbElIOE9JCmu92QL5F6RzUjBfkzXm7lEzLhVPnLt7LIWUJOoYqn42M1QJezMGQWiTAFm25MiPFqgK-hqXXGjt8Oghw_pFsjzHDej62l8nbjWJaUoUmf1vMJqiMiuwQ6Xw/s1600/blogth45.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTylnRxPO9l_WNbElIOE9JCmu92QL5F6RzUjBfkzXm7lEzLhVPnLt7LIWUJOoYqn42M1QJezMGQWiTAFm25MiPFqgK-hqXXGjt8Oghw_pFsjzHDej62l8nbjWJaUoUmf1vMJqiMiuwQ6Xw/s1600/blogth45.jpg" height="244" width="320" /></a></span></div>
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</span><span style="color: #660000; font-family: Georgia,"Times New Roman",serif; font-size: large;">We were working today on adding and </span><span style="color: #660000; font-family: Georgia,"Times New Roman",serif; font-size: large;">subtracting fractions. It was wonderful to see that "Aha Moment" in Brynn, when he beamed as he said 1/2 + 1/2 = a whole! It has been a while since I got to see such a big Aha Moment in him, very refreshing after such a bad few weeks! I have been doing the Sequential Spelling with them both again. Brett has no problem in Spelling except those "little sparks" that make him write the word wrong when he knows how to spell it. Reading <div class="separator" style="clear: both; text-align: center;">
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is an issue as his eyes will not work the way they need to, likely a result of the Convergence Insufficiency and his Occipital Lobe Epilepsy strong focus fighting to keep him from being able to see correctly. Math seems to cause Brett to struggle most, especially once he looses focus or gets frustrated. Comprehension is good when I read to them both. Brynn is still struggling in Reading, even at an early second grade level. <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZSwRVetABbKipfdr_h61m7HM_bJX9HzsKKaCvfn0FhnsTfUqELrnLHFdUwAG2fVt_YDpO1CMTRqDqK-cdjuLp2bbHFldbw-AaVSQmwPB10udYNiVKNweFrriLMLuprnqDCvTHEEbtspfG/s1600/blog987394875.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiZSwRVetABbKipfdr_h61m7HM_bJX9HzsKKaCvfn0FhnsTfUqELrnLHFdUwAG2fVt_YDpO1CMTRqDqK-cdjuLp2bbHFldbw-AaVSQmwPB10udYNiVKNweFrriLMLuprnqDCvTHEEbtspfG/s1600/blog987394875.jpg" /></a></div>
I suspect that his Convergence Insufficiency may be the root cause complicating his lower IQ and Cognitive Disorder NOS. He knows some bigger words by sight from memory, but really doesn't seem to have the memory and processing capabilities for much higher "Fluent" reading. He does perform well at the 3rd Grade Math level, verbally and working in group, as long as we stay in the same area long enough and revisit often. I think we will stay on factions for some time now... with some multiplication mixed in! It is working well to do Brynn and Brett's home School together. As for the circles I seem to be going in, I have accepted that at least for now this is just how it will be. I can make changes to better the experience. If I am going to go in circles, I want them to be filled with as much love, peace and joy as possible! Here's to more of those things for our family! </span><div style="color: #660000; font-family: Georgia,"Times New Roman",serif;">
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-17316627773003974022014-03-21T02:23:00.002-05:002014-03-21T02:26:41.177-05:00Epilepsy Awareness Day, March 26th!<div dir="ltr" style="text-align: left;" trbidi="on">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhroERz-tYP2VCZjhyphenhyphen5L0EK61Ht7bwUtM0J1L16YcXMO1VHSjL3ZFhInugfpum7wimTMw2pikHjCfM1gxQpWfgvuhEbmNpZ1ZwGSNmtGio2SsXeXcv_OQ-U_MNsowP7SbLj5ge4b7GpV4bW/s1600/EAD7.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8CVz848icORsFUQA7vHVtJ1WKHGhuAdzqt35vjsnIbB09o9hucNzPritNDc3iYce6pVZfjFAxytXAOr8dVoULG8U5fbFkagpzQZDvcr0iTyQB_528rcpS0uH1QhM9cB4Z6yKs-4AFhf_H/s1600/EAD8.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi8CVz848icORsFUQA7vHVtJ1WKHGhuAdzqt35vjsnIbB09o9hucNzPritNDc3iYce6pVZfjFAxytXAOr8dVoULG8U5fbFkagpzQZDvcr0iTyQB_528rcpS0uH1QhM9cB4Z6yKs-4AFhf_H/s1600/EAD8.jpg" height="239" width="320" /></a><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="color: purple;"><span style="font-size: x-large;">It's Almost Time!!! </span><br /><span style="font-size: x-large;">Epilepsy Awareness Day is March 26th!! </span><br /><br />What will YOU do to raise awareness?</span></b></span><br /><span style="color: purple;"><br /><br /> We went to our Children's Appointment to meet with the Neurosurgeon who will do Brett's VNS implant surgery this week. </span></span><span style="font-size: large;"><span style="color: purple;"><span style="font-size: large;"><span style="color: purple;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLhdDQL3G6yHGam5v1xq-MOkl7aGHoayS-k1yEwS0O3RrOoApjI68Mkeg-2P7eBG-IEeaY4sXuwlyxVaEJLy5BV6kZqy-3pVEro37dUIcYcKOVe_oBDh-G1CUuIsgWSLUhMIP5sN5L_Tb7/s1600/EAD1.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhLhdDQL3G6yHGam5v1xq-MOkl7aGHoayS-k1yEwS0O3RrOoApjI68Mkeg-2P7eBG-IEeaY4sXuwlyxVaEJLy5BV6kZqy-3pVEro37dUIcYcKOVe_oBDh-G1CUuIsgWSLUhMIP5sN5L_Tb7/s1600/EAD1.jpg" height="320" width="240" /></a></span></span>We brought Purple Bags with Purple Goodies (Lavender Awareness Ribbon Butter-mints, Wings of Hope Purple Ribbon Pens, White Purple Ribbon Grip Pens, Wings of Hope Purple Ribbon Calendar Cards) to the Office Staff, our Neuro, the first Neuro Brett saw there, the Epileptologist who does the Video EEG testing and our most favorite </span></span><span style="font-size: large;"><span style="color: purple;">Nurse ever who is so great and works hard for Brynn and Brett.<span style="font-family: Georgia,"Times New Roman",serif;"> </span><span style="font-family: Georgia,"Times New Roman",serif;">I had a really cute Dr. and Nurse character made for our Neuro & Epilepsy Nurse. They are wonderful and are always there for us, always respond when we are in crisis, have a question or a need. They both go above and beyond what we could ever have imagined in care for our Epilepsy Warrior Boys, Brynn and Brett. The boys signed them and I wrote a card of thanks. We will be going out asking businesses to let us put up Brynn and Brett's photos and giving out pens next week. I thought I would write about Epilepsy, as if I do not write enough about it! </span></span></span><br />
<span style="color: purple; font-size: large;"><br /><b>Did you know that 1 in 26 people will develop Epilepsy in their lifetime?</b></span><span style="color: purple; font-size: large;"><span style="font-size: large;"><span style="color: purple;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipvQQw7HpIuOyY-wADC6WkYry7-kv481u33G1goQhP7ZzjV12B_e2kRXdR5Ub_9C9aL1T9WAPHUPyA5F2CZf7i85vLspCQeGlhp1yrskUfSLAHMlw8a5Bb8jaFgXY3frU-kYsVbjDEcPL8/s1600/EAD3.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEipvQQw7HpIuOyY-wADC6WkYry7-kv481u33G1goQhP7ZzjV12B_e2kRXdR5Ub_9C9aL1T9WAPHUPyA5F2CZf7i85vLspCQeGlhp1yrskUfSLAHMlw8a5Bb8jaFgXY3frU-kYsVbjDEcPL8/s1600/EAD3.jpg" height="200" width="150" /></a></span></span>D</span><span style="color: purple; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzeF7gyQP8wMn3m0QnS8Hw3Jzh6rcCpTspprbKJncWIxzTbostS8GiOp-25qchRs7dWdHL2a6PqJ7yhBypcWH-wdwzW6r3VvZX3oxzIOCK8GnJuwfjQuQzqD8KEyGSKJ4U3RdOsTvbJvxv/s1600/EAD4.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a>id you know </span><span style="color: purple; font-size: large;">that there are many different types of seizures. Symptoms can vary from disruption of the senses lasting seconds, to short periods of unconsciousness to the full convulsions most people associate with Epilepsy.<br /><br /><b>Did you kno</b></span><span style="color: purple; font-size: large;"><b>w </b><span style="font-family: Georgia,"Times New Roman",serif;"><b>that Epilepsy affects more people than multiple sclerosis, </b></span></span><span style="color: purple;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b>cerebral palsy,
muscular dystrophy and Parkinson's combined?<b> Historically, epilepsy research has been under-funded. Each
year NIH spends $30 billion of medical research, but only ½ of 1% is
spent on epilepsy.</b></b></span></span></span><br />
<span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"></span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><br /></span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: purple;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghPYTKSi5zLdht2kxGJML6dT-dg0QvcIKpzo4bzJQWeuQ0x5mKVxRrIwq_ekSSckAYarYCerJ9IP_Lvx75H5FfQbC4Q6f0nuedIIXkbTisowVYwirWASIX1SHmuY9GNc_bO1ycx52TnoMF/s1600/EAD2.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEghPYTKSi5zLdht2kxGJML6dT-dg0QvcIKpzo4bzJQWeuQ0x5mKVxRrIwq_ekSSckAYarYCerJ9IP_Lvx75H5FfQbC4Q6f0nuedIIXkbTisowVYwirWASIX1SHmuY9GNc_bO1ycx52TnoMF/s1600/EAD2.jpg" height="200" width="150" /></a></span></span>Did you know </span><span style="font-family: Georgia,"Times New Roman",serif;">Sudden Unexpected Death in Epilepsy (SUDEP) accounts for 34% of all sudden deaths in children?<br /><b><br />Did you know Only in about 30% of cases is the cause of epilepsy determined. The
other 70% remain unanswered, in what is referred to as idiopathic
epilepsy?</b></span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;">Did you know about 150,000 new cases of epilepsy will be diagnosed in the United States each year?</span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="color: purple; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzeF7gyQP8wMn3m0QnS8Hw3Jzh6rcCpTspprbKJncWIxzTbostS8GiOp-25qchRs7dWdHL2a6PqJ7yhBypcWH-wdwzW6r3VvZX3oxzIOCK8GnJuwfjQuQzqD8KEyGSKJ4U3RdOsTvbJvxv/s1600/EAD4.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjzeF7gyQP8wMn3m0QnS8Hw3Jzh6rcCpTspprbKJncWIxzTbostS8GiOp-25qchRs7dWdHL2a6PqJ7yhBypcWH-wdwzW6r3VvZX3oxzIOCK8GnJuwfjQuQzqD8KEyGSKJ4U3RdOsTvbJvxv/s1600/EAD4.jpg" height="200" width="150" /></a></span>Did you know early in the 19th century, people with severe epilepsy were cared for in
asylums?</b><br /><br />Did you know estimates are that up to 50,000 deaths occur annually
in the U.S. from status epilepticus, Sudden
Unexpected Death in Epilepsy (SUDEP), and other seizure-related causes?<br /><br /><b>Did you know an estimated 3 million Americans and 65 million people worldwide currently live with epilepsy?</b></span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8uyOjjuM-v-ptWskHSP7Px5wXQ8RkfbL9mFmooiOY9HCWfyR-yA3BYdU74VCqy80VT-59zxl6fNbeH1bgWVr02fKNHkR6NDM7UA3t8ZUNWUWzEsF3zxrQin1EGMqIv6m0Cu7SbZkCvI0R/s1600/EAD5.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh8uyOjjuM-v-ptWskHSP7Px5wXQ8RkfbL9mFmooiOY9HCWfyR-yA3BYdU74VCqy80VT-59zxl6fNbeH1bgWVr02fKNHkR6NDM7UA3t8ZUNWUWzEsF3zxrQin1EGMqIv6m0Cu7SbZkCvI0R/s1600/EAD5.jpg" height="150" width="200" /></a></b></span></span>Did you know </span><span style="font-family: Georgia,"Times New Roman",serif;">the Greek philosopher Hippocrates was the first person to think that epilepsy starts in the brain (460-377 BC)?</span></span><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b>Did you know With the right AEDs, up to 70% of people with epilepsy could have their seizures controlled, leaving 30% uncontrollable/medically refractory?</b></span></span><span style="font-size: large;"><br /><br /><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple;">Did you know </span><span style="color: purple;">in America, Epilepsy is as common as Breast Cancer, and takes as many lives?</span></span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple;"><b><span style="color: purple; font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnLBpWwSZU_ysaIVkaNFZ5WwOdx5cqkqfSpox6rJ53p63tulljvDYP9UEDEsh4YeQ_kfZjvNQ2IFZhyphenhypheniYSfChp4ZmBHqNCwvSLDnz8j1Vg_uUnbMLajdND7Tt4vR_iap4g3eQM7v-imoz-/s1600/EAD2014-2.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhnLBpWwSZU_ysaIVkaNFZ5WwOdx5cqkqfSpox6rJ53p63tulljvDYP9UEDEsh4YeQ_kfZjvNQ2IFZhyphenhypheniYSfChp4ZmBHqNCwvSLDnz8j1Vg_uUnbMLajdND7Tt4vR_iap4g3eQM7v-imoz-/s1600/EAD2014-2.jpg" height="143" width="200" /></a></span></span>Did you know Epilepsy can develop at any age and can be a result of genetics, stroke, head injury, and many other factors?</b><br /><br />Did you know the mortality rate among people with Epilepsy is two to three times higher than the general population?<b><br /></b></span></span><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple;"><b>Risk of sudden death among those with Epilepsy is twenty-four times greater.<br /><br /> </b></span></span></b></span><br />
<span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple;">Did you know about 30% of those diagnosed with Epilepsy are children?<br /><br />Now that you know... We hope you will wear Purple or Lavender this March 26th and tell people about Epilepsy. Not just for Brynn and Brett, but for the 65 million people worldwide living with Epilepsy. <br />(((((hugs)))) <br />~Denise, Brynn and Brett</span></span></span><br />
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<span style="font-size: large;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: purple;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhykAlCjtIoakK2NNqubZXp5EIneTTJw007UycPe__z5Bude9R1W-A5tx-Kaj3kor_dHaAHtJB0bq3J6tKunR-RTt9GjP-cFAxZD61tXnGMSnMIWjr0_jqwrNSqxhv7BP-Sdr2enH-5aPvW/s1600/EAD11.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhykAlCjtIoakK2NNqubZXp5EIneTTJw007UycPe__z5Bude9R1W-A5tx-Kaj3kor_dHaAHtJB0bq3J6tKunR-RTt9GjP-cFAxZD61tXnGMSnMIWjr0_jqwrNSqxhv7BP-Sdr2enH-5aPvW/s1600/EAD11.jpg" height="240" width="320" /></a></b></span></span></b></span><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-53137772668949305082014-03-05T22:58:00.000-06:002014-03-05T23:02:47.493-06:00Comfort through the why... <div dir="ltr" style="text-align: left;" trbidi="on">
<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAcYJ8LZzamxC_2t8qrDcRFAAASWpCc9mmXhpp0FiEHtV1mb4edeayfAkGhRPlLSB_zhV1AOgB4RP9E7_lzkgoFHKD8cTTDeNB3oIxGvRf5Dk7K3H-r89DwNDl2qOg2ZLi-eKf61lc18aI/s1600/1795789_670976056281752_474303481_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhAcYJ8LZzamxC_2t8qrDcRFAAASWpCc9mmXhpp0FiEHtV1mb4edeayfAkGhRPlLSB_zhV1AOgB4RP9E7_lzkgoFHKD8cTTDeNB3oIxGvRf5Dk7K3H-r89DwNDl2qOg2ZLi-eKf61lc18aI/s1600/1795789_670976056281752_474303481_n.jpg" height="320" width="240" /></a> <span style="font-size: small;"><br /><br />2 Corinthians 1:3-7 <span class="text 2Cor-1-3">Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort,</span><sup> </sup><span class="text 2Cor-1-4" id="en-NIV-28805"><sup class="versenum"> </sup>who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves receive from God.</span><span class="text 2Cor-1-5" id="en-NIV-28806"><sup class="versenum"> </sup>For just as we share abundantly in the sufferings of Christ, so also our comfort abounds through Christ.</span> <span class="text 2Cor-1-6" id="en-NIV-28807">If we are distressed, it is for your comfort and salvation; if we are comforted, it is for your comfort, which produces in you patient endurance of the same sufferings we suffer.</span> </span><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: small;"><sup class="versenum"> </sup>And our hope for you is firm, because we know that just as you share in our sufferings, so also you share in our comfort.</span></span></span></span></b></span><br />
<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><br /></span></span></span></span></b></span>
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<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaygPnAxxxVESaCOY-76sE-Lkz7wM3UH86I0PtChJB0enY3N8j_fCOBVKUug2uJWjuxIz4_4R53qZeDAtFnsLuFySwmzbqkiiTwTRnevq9eij7fEFB2DWwVz9PvebsVbAaYImupoX2sGRm/s1600/t10.JPG" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhaygPnAxxxVESaCOY-76sE-Lkz7wM3UH86I0PtChJB0enY3N8j_fCOBVKUug2uJWjuxIz4_4R53qZeDAtFnsLuFySwmzbqkiiTwTRnevq9eij7fEFB2DWwVz9PvebsVbAaYImupoX2sGRm/s1600/t10.JPG" height="320" width="240" /></a></span></span></span></b></span></div>
<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span style="font-size: large;"><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;">At times in this Epilepsy journey, I find </span></span></span></span></b></span>myself questioning WHY? Why do my boys have to suffer like this. It doesn't seem fair that they have seizures, that they struggle to hold memories, that they struggle to learn. It doesn't seem fair that we have to face<span style="font-size: large;"> every day, not knowing what the day will hold<span style="font-size: large;">, not knowing at any moment when another seizure will hit. It doesn't seem fair at all<span style="font-size: large;">, I know it must not seem fair to them. As with most things in<span style="font-size: large;"> my life I struggle with, I think about what I </span></span></span></span></span></span></span></b></span><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhC846y-Uu4xSU6XFYwBpwBaUf9Si4YD2STAWosoDTqbrS4-_tkouWET6Ua3Ce6TO7t3o9m91VyZpkT9pOzqcQNMUmveComBQ0vvJVQCz6X4NoIpfdjnEC7gEpvQMTpe5hyphenhyphenGvmRrFiChj-j/s1600/images.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhC846y-Uu4xSU6XFYwBpwBaUf9Si4YD2STAWosoDTqbrS4-_tkouWET6Ua3Ce6TO7t3o9m91VyZpkT9pOzqcQNMUmveComBQ0vvJVQCz6X4NoIpfdjnEC7gEpvQMTpe5hyphenhyphenGvmRrFiChj-j/s1600/images.jpg" /></a></span></b></span>would tell someone who came to me with the same struggle. The answer is simple... The Father is not going to g<span style="font-size: large;">ive us all the same struggle, but every human being will struggle with something. I never imagined that we would be in this struggle. Life was so wonderful looking back, b<span style="font-size: large;">ut I remember <span style="font-size: large;"><span style="font-size: large;">struggle</span> then too. Of cour<span style="font-size: large;">se looking back, I have to giggle at myself at the little stuff that I thought was so <span style="font-size: large;">awful</span>, so heavy, so overwhelming at the time. At the time it seemed like the worst, now it seems like it was no big deal. It's about perspective. We hold the ability as humans to keep a </span></span></span></span></span></span></span></span></span></span></span></b></span><b><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO7qz3YDaD0hqq-iauORYlhNI0KXI8egk_dwCeLYSYkYgRljUvQ7vOHk356wy_rFd9PiePrAP82B3wHmimTnGX3WsyptrFWJOpq_H3im41wiJVDOtlB16fhiEaGODehlihyj6vV9RM2AgG/s1600/1795688_671012989611392_1734100355_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhO7qz3YDaD0hqq-iauORYlhNI0KXI8egk_dwCeLYSYkYgRljUvQ7vOHk356wy_rFd9PiePrAP82B3wHmimTnGX3WsyptrFWJOpq_H3im41wiJVDOtlB16fhiEaGODehlihyj6vV9RM2AgG/s1600/1795688_671012989611392_1734100355_n.jpg" height="200" width="139" /></a><span style="color: #783f04;"><span style="font-family: Georgia,"Times New Roman",serif;">positive o<span style="font-size: large;">r negative perspective. It's difficult at times to keep a positive perspective<span style="font-size: large;">, especially when you feel overwhelmed. The more you focus on the negative the bigger it seems and the greater difficulty you face in finding positive again<span style="font-size: large;">.</span> I am reminding myself daily, that the Father is still in control... and no matter how it looks or feels He has a plan. I look<span style="font-size: large;"> at Brynn and Brett<span style="font-size: large;">, amazed a<span style="font-size: large;">t their strength and perseverance. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b><br />
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<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjofDv6FE2pY2el8LETPmdbSOboz90u2d0LAtYUuEROLfyCicEQkvOdo7yvJpkBexdrAITxyzinNURvDq-NGV_XSVAghlsanX2X1hYSUopEOLjG5Y3j5S1k45whBy1JD2hiK3oNM2M-xna-/s1600/brynn372370577_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjofDv6FE2pY2el8LETPmdbSOboz90u2d0LAtYUuEROLfyCicEQkvOdo7yvJpkBexdrAITxyzinNURvDq-NGV_XSVAghlsanX2X1hYSUopEOLjG5Y3j5S1k45whBy1JD2hiK3oNM2M-xna-/s1600/brynn372370577_n.jpg" height="200" width="150" /></a></span></span></span></span></span></span></b></span></div>
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Surely, the Father has a wonderful plan for their lives. How many people will they be able to help years from now<span style="font-size: large;">, who are struggling with seizures. They are true Warriors, Fighting Epilepsy one day and one seizure at a time. What a wonderful testimony they will have, to stand firm one day and tell their stories. </span></span></span></span></span></span></span></b></span><b><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><br /></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b><b><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiW_vGOA9FM6m9kYqKigTV9wbKPtZyEg6pD2P0wI6hYnzZ-yyaVtonqQ-nczdqDfL9BGEK-lrWN9HIFalsVM2qyOy481Sy2wjpCS9yZVa4n1dD1jRDU0h3ibw2DXR5m6Y8N32_JeiZnIH4D/s1600/pizap.com10.88094523362815381393108140414.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiW_vGOA9FM6m9kYqKigTV9wbKPtZyEg6pD2P0wI6hYnzZ-yyaVtonqQ-nczdqDfL9BGEK-lrWN9HIFalsVM2qyOy481Sy2wjpCS9yZVa4n1dD1jRDU0h3ibw2DXR5m6Y8N32_JeiZnIH4D/s1600/pizap.com10.88094523362815381393108140414.jpg" height="240" width="320" /></a><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">Brett received a lovely Hernando Bear to comfort <span style="font-size: large;">him during his <span style="font-size: large;">VNS implant surgery and healing</span>. It was sponsored by: Angels 4 Epilepsy, TG Bears and donations by group members<span style="font-size: large;">. </span></span>He will be going in less than two weeks to meet with the neurosurgeon <span style="font-size: large;">about his VNS implant surgery. Brynn had his implanted on Oct. 25, 2012, <span style="font-size: large;">we believe it has helped reduce the number of seizures that <span style="font-size: large;">generalize and perhaps even reduce his postictal lengths as well</span>. </span>We feel it is a good option for Brett too and should be at <span style="font-size: large;">least somewhat <span style="font-size: large;">beneficial</span></span><span style="font-size: large;"><span style="font-size: large;">. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3TpFTKq5ElNvXih5pwXOC3z3pmpLymphK3tjmczamDdT6FPdRd3q6Yu1C4e2UsbKDq8jjgSRiNTTS8MYhY1fvEk9WNPurBkfpOg8AX1qYUSWdpb_f5g8bpySjJTWOypqic0_Tfls4181u/s1600/DSC04028.JPG" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3TpFTKq5ElNvXih5pwXOC3z3pmpLymphK3tjmczamDdT6FPdRd3q6Yu1C4e2UsbKDq8jjgSRiNTTS8MYhY1fvEk9WNPurBkfpOg8AX1qYUSWdpb_f5g8bpySjJTWOypqic0_Tfls4181u/s1600/DSC04028.JPG" height="174" width="200" /></a>Brynn has </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"> recently had either a<span style="font-size: large;"> return </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">of daytime seizures </span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">or a</span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">n awakening to realize they are happening, no way to know really. It's new for him to "know and ex<span style="font-size: large;">press</span>" that he has had a seizure. He </span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">has remained somewhat stable over the past several months</span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #783f04;">.</span></span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span> </b><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;">Staying at the baseline of </span></span></b></span><br />
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<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4d8iMvfmrijHbhB3XlodxOCKPpDbk5fmpiYd2dxOJE70roVaIE9sbegKGA3vlmG06jAzOcRPP_1jor-ZYJpANksk3r7GLmRfh1tMx-wMpb_UzCMtGqG4hP2y8xPRreUw8x66dEKPb28QG/s1600/pizap.com10.0135794109664857391390969111097.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi4d8iMvfmrijHbhB3XlodxOCKPpDbk5fmpiYd2dxOJE70roVaIE9sbegKGA3vlmG06jAzOcRPP_1jor-ZYJpANksk3r7GLmRfh1tMx-wMpb_UzCMtGqG4hP2y8xPRreUw8x66dEKPb28QG/s1600/pizap.com10.0135794109664857391390969111097.jpg" height="239" width="320" /></a></span></span></b></span></div>
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2-4 seizures a week. Brett is still on a roller coaster, having one, two or clusters of 6 or more almost daily. Both boys now have the diagn<span style="font-size: large;">osis of Refractory Cryptogen<span style="font-size: large;">ic Focal Epilepsy. </span></span>(Meaning they have a cause that is unidentified, are resistant to medical treatment and have foc<span style="font-size: large;">us areas where the seizures start)</span></span></span></b></span><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLZOAyAAH4hqTiJhhS63gY93X2D1ycXRJnSPslwJJKNh3JYye8P1cles5iv5szy-QqRdyibojwebjRbgUsbJReROCXDDlcC7aq3jt54V1d65oZtimoVaKZo5xEzhM9vdEIuY1LP5vVYw8J/s1600/pizap.com10.293712569400668141391928734908.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgLZOAyAAH4hqTiJhhS63gY93X2D1ycXRJnSPslwJJKNh3JYye8P1cles5iv5szy-QqRdyibojwebjRbgUsbJReROCXDDlcC7aq3jt54V1d65oZtimoVaKZo5xEzhM9vdEIuY1LP5vVYw8J/s1600/pizap.com10.293712569400668141391928734908.jpg" height="239" width="320" /></a><span style="font-size: large;">The Courtagen<span style="font-size: large;"> Epilepsy Panel revealed no answers as to the cause of <span style="font-size: large;">Brett and <span style="font-size: large;">we assume</span> Brynn's Epilepsy cause. </span></span>We obtained and are now using seizure journals from the National Seizure Disorders Foundation (the Foundation that is sponsoring Brynn & Brett's Seizure Service Dogs fund raising). They are beautiful and make seizure journaling so much easier than our printed pages, which were hard to keep together! They can be found here, if anyone is interested: </span></span></b></span><b><br /><span style="font-size: small;"><a href="http://nationalseizuredisordersfoundation.org/my-seizure-journal-2014/" target="_blank"><span class="text 2Cor-1-7" id="en-NIV-28808">http://nationalseizuredisordersfoundation.org/my-seizure-journal-2014/ </span></a></span></b><span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><br /></span></b></span>
<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi123rRlvBMeo71noLGwtZIR9jmurEAQpSjXt3-3k1f_wBgHyRD1_v4kJ14670XW61fEMSMw39T0kkfMldw3xvN-Bu9d17AVOWikXWiTcRajI2eUaj-Fmg9d9LmN8WJkR43hlUQe8epX_aE/s1600/0707-Comfort+sm.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi123rRlvBMeo71noLGwtZIR9jmurEAQpSjXt3-3k1f_wBgHyRD1_v4kJ14670XW61fEMSMw39T0kkfMldw3xvN-Bu9d17AVOWikXWiTcRajI2eUaj-Fmg9d9LmN8WJkR43hlUQe8epX_aE/s1600/0707-Comfort+sm.jpg" height="292" width="320" /></a>....Back to the scripture I started with. I think people may assume that when it says comfort, that it means <span style="font-size: large;">rescue</span>. The Father comforts us by encouraging, strengthening <span style="font-size: large;">you and giving you hope.<span style="font-size: large;"> When you come out on the other side you will be ab<span style="font-size: large;">le to comfort others.</span></span></span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span><b><span style="color: #783f04;"><span style="font-family: Georgia,"Times New Roman",serif;"> I hope that you will be comforted, in whatever struggle you are going through. I hope that through Brynn and Brett's Epilepsy Journey, we will<span style="font-size: large;"> always find a way to see the good and focus on the positive<span style="font-size: large;">. I HOPE for the day<span style="font-size: large;"> that we can comfort others in the same path, having overcame the struggle, the pain and the uncertainty of Epilepsy. </span></span></span><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">We must remain steadfast in faith<span style="font-size: large;">,</span> that one day, videos like this one will no longer be recorded our home.</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span class="text 2Cor-1-7" id="en-NIV-28808"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><object class="BLOGGER-youtube-video" classid="clsid:D27CDB6E-AE6D-11cf-96B8-444553540000" codebase="http://download.macromedia.com/pub/shockwave/cabs/flash/swflash.cab#version=6,0,40,0" data-thumbnail-src="https://i1.ytimg.com/vi/At_12Ru4i30/0.jpg" height="266" width="320"><param name="movie" value="https://www.youtube.com/v/At_12Ru4i30?version=3&f=user_uploads&c=google-webdrive-0&app=youtube_gdata" /><param name="bgcolor" value="#FFFFFF" /><param name="allowFullScreen" value="true" /><embed width="320" height="266" src="https://www.youtube.com/v/At_12Ru4i30?version=3&f=user_uploads&c=google-webdrive-0&app=youtube_gdata" type="application/x-shockwave-flash" allowfullscreen="true"></embed></object></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span> </b><br />
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<span style="color: #783f04;"><b><span style="font-family: Georgia,"Times New Roman",serif;">.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCTLUjgcDWAaJygs8MUfY-JxMnGfl2vsHXlGt90TZmxhrX5XiEUz1SVUnY6F1zRRmLqO3MttLHwOpqaq3H6PSn9OMsFyXdmLAQFxNj7Rkt4qJZUn4aiNb8dfkN5mMiXXaU3CTChfa6bpmf/s1600/pizap.com10.97448848560452461391552066254.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgCTLUjgcDWAaJygs8MUfY-JxMnGfl2vsHXlGt90TZmxhrX5XiEUz1SVUnY6F1zRRmLqO3MttLHwOpqaq3H6PSn9OMsFyXdmLAQFxNj7Rkt4qJZUn4aiNb8dfkN5mMiXXaU3CTChfa6bpmf/s1600/pizap.com10.97448848560452461391552066254.jpg" height="300" width="400" /></a></span></b></span></div>
Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-5729116755329720512014-02-10T22:16:00.001-06:002014-02-10T22:16:54.356-06:00In His hands...<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhygxts6r-55IJJnvjF_FX3WH-_J6MMzsEp_xo3DURnITt30mc7N0GmrOwc8qonYnhnwZ-XI0bDdNZTQSvchF9yjrh3tiMY5nAUeWJtBaoUHunHrG6j1Dfho6RMd_I68f4s-FBIIiqsL9IZ/s1600/10-26-2007+006.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhygxts6r-55IJJnvjF_FX3WH-_J6MMzsEp_xo3DURnITt30mc7N0GmrOwc8qonYnhnwZ-XI0bDdNZTQSvchF9yjrh3tiMY5nAUeWJtBaoUHunHrG6j1Dfho6RMd_I68f4s-FBIIiqsL9IZ/s1600/10-26-2007+006.jpg" height="150" width="200" /></a></div>
<span style="font-family: "Courier New",Courier,monospace;"><span style="color: #660000;"><span style="font-size: large;">the mental
capacity or faculty of retaining and reviving facts, events,
impressions, etc., or of recalling or recognizing previous experiences </span></span></span><span style="font-family: "Courier New",Courier,monospace;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: "Courier New",Courier,monospace;"><span style="color: #660000;"><span style="font-size: x-small;"><span class="url" id="yui_3_10_0_1_1392083888792_291">(dictionary.reference.com)</span></span></span></span></span></span> </span></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><strong><i><span style="color: #351c75;"><br /></span></i><span style="font-family: Verdana,sans-serif;"><i><span style="color: #351c75;"><em>For in this hope we were saved.
<br /> Now hope that is seen is not hope. <br /> For who hopes for what he sees? <br /> But
if we hope for what we do not see, <br /> we wait for it with patience. -</em></span></i></span></strong></span><span style="font-family: Georgia,"Times New Roman",serif;"><strong><span style="font-family: Verdana,sans-serif;"><i><span style="color: #351c75;">Romans 8:24-25 </span></i></span><i><span style="color: #351c75;"><em></em></span></i></strong></span><br />
<span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: inherit;"> </span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-family: inherit;"> <span style="color: #990000;">I find myself reliving the old memories, I would much rather forget. Watching Brett's Epilepsy get out of control, the medications not stopping the seizures, watching him struggle to do what he would have <span style="font-size: large;">said was "baby work" two years ago</span> and the fear of what could happen is at times more than I <span style="font-size: large;">think I can bare</span>. </span><br /><br /><span style="font-size: small;"><span style="font-family: Georgia,"Times New Roman",serif;"><i><span style="color: #660000;"><b>Yesterday, Brett had a bad. He was eating lunch and his head dropped hitting the counter. Eyes rolled back, drooling, unresponsive for what seemed like an eternity. After a few moments he raised his head looked straight into my eyes until the rolled up and to the right. Both arms started jerking... His eyes came<span style="font-size: small;"> </span>down as he babbled nonsense words lost... completely lost in a seizure..... </b> </span> </i></span></span><br /><span style="color: #990000;">Of course it is not me who should carry this burden, at times it is difficult to put all of this in the Fathers hands and leave it there. It's more than I can handle and there is nothing I can do to fix it. All I can really do is surrender it to the Father and</span></span><span style="font-size: large;"><span style="font-family: inherit;"><span style="color: #990000;"> trust Him and Him alone. </span></span></span></span></span></span><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-family: inherit;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-family: inherit;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: Georgia,"Times New Roman",serif;"><br /><b><span style="color: #660000;">Two more Complex Partial seizures followed, rescue medication given... <br />I thought he seemed okay three hours later and traveled to town to pick up a few things. In the parking lot a Tonic Clonic <span style="font-size: small;">occurred</span>... Made it home with my </span></b></span><span style="font-size: small;"><b><span style="color: #660000;"><span style="font-family: Georgia,"Times New Roman",serif;">now wobbly and confused boy... only to see him endure 5 more seizures... </span></span></b><br /><br /> </span></span></span></i></span></span></span></span></span></span></span></span></span></span></span><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-family: inherit;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-family: inherit;"><span style="font-family: "Helvetica Neue",Arial,Helvetica,sans-serif;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-family: inherit;"></span></span></span></span></span></span></span><span style="color: #990000;"><i><span style="font-size: small;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-family: inherit;">Aftermath... I sit here sometimes and I get so frustrated. Hearing Brynn sto<span style="font-size: large;">mp loudly enjoying the pleasure of making noise, tap with and on just about e<span style="font-size: large;">verything</span>, yelp & bark<span style="font-size: large;">..</span></span>. I sit<span style="font-size: large;"> frustrated and then I think <span style="font-size: large;">back, realizing what a battle he has been through. Realizing how blessed we are they he is doing so well. Realizing just how special he really is. It's hard sometimes to look at this BIG 14 year old boy and accept him where he is. To accept that to him it is perfectly <span style="font-size: large;">acceptable to get such pleas<span style="font-size: large;">ure from such noi<span style="font-size: large;">se making adventures. I am his Momma and I have to remind myself at times that he <span style="font-size: large;">may be 150+ pounds and although he has hair on his upper li<span style="font-size: large;">p, his br<span style="font-size: large;">ain has not caught <span style="font-size: large;">up with his b<span style="font-size: large;">ody</span></span></span>. I do worry w<span style="font-size: large;">ill someone be able to see him as the beautiful blessing he is<span style="font-size: large;">, a child at heart when I am gone. I watched him gain and loose so many things over his lifetime. <span style="font-size: large;">I watched as parts of him slipped away and never returned. I<span style="font-size: large;"> watched his struggle and I <span style="font-size: large;">fought</span> to keep him, every part of him here with us. I</span></span> struggle not knowing with every seizure what memories may be lost or what parts of my sweet Brett may return<span style="font-size: large;">. </span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></i></span></span></span></span></span></span></span></span></span></span></span><i> </i></span><i> </i><br />
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<span style="font-size: large;"><span style="font-family: Arial,Helvetica,sans-serif;"></span></span><span style="font-size: large;"><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><span style="font-size: large;"><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i></i></span></span></span></i></span></span></span><span style="font-size: large;"><span style="font-family: Arial,Helvetica,sans-serif;"><span style="font-size: small;"><i><br /></i></span></span></span></div>
<span style="font-size: large;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><i><span style="color: #351c75;"><em>Rejoice in hope, <br /> be patient in tribulation, <br /> be constant in prayer</em>. </span></i></b><br /><b><i><span style="color: #351c75;"> </span></i></b></span></span><b><i><span style="color: #351c75;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">-Romans 12:12 </span></span><em></em></span></span></i></b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKSPyuQDCoCX7TbRdl6PyYZudfWlbNwBc3GOJHipKoSAHOxN4cy3ogerMTrfpNW_xRBGeHKAL92DxJkjpHlXxtZoq3FCGHYemUl3LkvOwz4QTafUNrXTyi5b3MdtlmVEJixNt4vHfLHQCU/s1600/th_DSC04580.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><br /></a></div>
</span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKSPyuQDCoCX7TbRdl6PyYZudfWlbNwBc3GOJHipKoSAHOxN4cy3ogerMTrfpNW_xRBGeHKAL92DxJkjpHlXxtZoq3FCGHYemUl3LkvOwz4QTafUNrXTyi5b3MdtlmVEJixNt4vHfLHQCU/s1600/th_DSC04580.jpg" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiKSPyuQDCoCX7TbRdl6PyYZudfWlbNwBc3GOJHipKoSAHOxN4cy3ogerMTrfpNW_xRBGeHKAL92DxJkjpHlXxtZoq3FCGHYemUl3LkvOwz4QTafUNrXTyi5b3MdtlmVEJixNt4vHfLHQCU/s1600/th_DSC04580.jpg" /></a></span></span></span></span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmm5SPNYDs70L1GmHZZ88PMwUgZMah4Uyws_wW_x0212AcOjWbgIXv4LLe8L7v-1sfyDfM_mKrL9fFyszw32Im8fEebFMF1L7BlFKHiG3xjmUoDEbpH3WrwMQ1Bv4UT66gSWKR5Fmh74jA/s1600/IMG_20140206_150702.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjmm5SPNYDs70L1GmHZZ88PMwUgZMah4Uyws_wW_x0212AcOjWbgIXv4LLe8L7v-1sfyDfM_mKrL9fFyszw32Im8fEebFMF1L7BlFKHiG3xjmUoDEbpH3WrwMQ1Bv4UT66gSWKR5Fmh74jA/s1600/IMG_20140206_150702.jpg" height="200" width="150" /></a></span></span></span><br />I find myself in struggle between Brett's now and Brynn's past. </span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;">I </span></span></span>struggle because we have been here before. We have seen what can happen. What we are seeing Brett struggle with Epilepsy worse than Brynnon was at this point. Brett was a yea<span style="font-size: large;">r ahead in his home schooling, over the last two years he has regressed to struggling to work at grade level. At this moment he is likely almos<span style="font-size: large;">t a year behind in some areas. Brett's loss of ability is more profound as Brynn was never ahead on anything or even <span style="font-size: large;">on level<span style="font-size: large;">. </span></span></span></span>Same age, 9... Same seizure types... Same behavior... It was horrible enough to see it once. My heart breaks even thinking that I am watching it all over again and knowing that there is nothing I can do to stop it. I thought I knew what it felt like to watch a train screaming by at 100 miles an hour toward a broken bridge. That is exactly what this feels like. One thing that comes from struggle, from pain, from any battle is FAITH. <span style="font-size: large;"> <br /><div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg836AwHOGyZPYXT4D_fdb0eZJJlzWcJ4kOZmRENM6x9ErKbioQRrc0QCYhQhU-MlGWpmlyvUA_87cp096rNA8XPb8Vl9WhdxyHfXD6zc2lR70yek4hJyGtqTfFI_G9pFHYjnTHzrLgfY1E/s1600/1604872_10202421956366705_1801086173_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg836AwHOGyZPYXT4D_fdb0eZJJlzWcJ4kOZmRENM6x9ErKbioQRrc0QCYhQhU-MlGWpmlyvUA_87cp096rNA8XPb8Vl9WhdxyHfXD6zc2lR70yek4hJyGtqTfFI_G9pFHYjnTHzrLgfY1E/s1600/1604872_10202421956366705_1801086173_n.jpg" height="320" width="320" /></a></div>
</span></span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-size: large;"><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-size: large;">Reminding </span></span></span></span>myself tonight that my strength doesn't come from within myself<span style="font-size: large;">, it comes through my faith the the Father. My Hope that everything is going to be okay... in HIS time.<span style="font-size: large;"> All th<span style="font-size: large;">ose years I spent wondering arou<span style="font-size: large;">nd in the des<span style="font-size: large;">sert<span style="font-size: large;">, I had no idea I was being trained for battle. Just when I thought I may be home free, all relaxed and ready to settle into the promises... I came acro<span style="font-size: large;">ss this wall called <span style="font-size: large;">ePiLePsY. It's huge, it can be deadly, doct<span style="font-size: large;">ors don<span style="font-size: large;">'</span>t know how to <span style="font-size: large;">take it down, no one knows why it is there<span style="font-size: large;">, when it was put there<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsrv48AvRtA7Y9QrJ40Luqr9sk5ysVKB5LxuVALBVNn7ikROoT0_2xtvOAjY_6CSjZdjlHknUhLzKEex55JWE0V1o0aoqEEMJ7eJctT5hPxb7BKGFxGihKOOesEMbqh-F15R09iGw-4xLr/s1600/epilepsy_awareness_hope_love_cure_s.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhsrv48AvRtA7Y9QrJ40Luqr9sk5ysVKB5LxuVALBVNn7ikROoT0_2xtvOAjY_6CSjZdjlHknUhLzKEex55JWE0V1o0aoqEEMJ7eJctT5hPxb7BKGFxGihKOOesEMbqh-F15R09iGw-4xLr/s1600/epilepsy_awareness_hope_love_cure_s.jpg" height="320" width="320" /></a></div>
... but we DO know that the Father <span style="font-size: large;">knows. Not only does He know, but <span style="font-size: large;">He has <span style="font-size: large;">the master plan for these precious Epilepsy Warrior Boys He has blessed us with. Now some people think faith <span style="font-size: large;">is looking at a situation and expecting the Father to move fast and fix it. No, faith is putting the situation in His hands and trusting <span style="font-size: large;">HIM to do with it as He wills. That is exactly what we intend to do... </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5PrbIG_UQGlkzDDBENJ4lwkPPFtCMqj2MeMct0wFoDWB7-KevP2zStiukL8D1W_rDJtc5E78zBzf7VQuN91wAf33sbqDDx-nRJQ9FKYPL-AitinANmQ4N_z8xAhb-fj3D90qar563MN5Q/s1600/pizap.com10.60086477221921091391494149788.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5PrbIG_UQGlkzDDBENJ4lwkPPFtCMqj2MeMct0wFoDWB7-KevP2zStiukL8D1W_rDJtc5E78zBzf7VQuN91wAf33sbqDDx-nRJQ9FKYPL-AitinANmQ4N_z8xAhb-fj3D90qar563MN5Q/s1600/pizap.com10.60086477221921091391494149788.jpg" height="233" width="640" /></a><br /><span style="font-size: small;"><span style="font-family: inherit;"><span style="color: #990000;"><span style="font-family: "Courier New",Courier,monospace;"><b><span style="color: #990000;">!HAVE FAITH!<span style="font-size: small;"> </span>!SURRENDER!<span style="font-size: small;"> </span>!TRUST HIM! !BELIEVE! !NEVER LOOSE HOPE!</span></b></span></span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><br /></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #990000;"> </span></span></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-57162144761412561402014-02-01T13:37:00.002-06:002014-02-01T13:58:57.841-06:00Fund Raising Flier<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://www.blogger.com/blogger.g?blogID=4380024808238497867&pli=1" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTG6R54mpqJAB9CQHVsNsD02h6m8w4xRAu7j5FnOtM7x0kNcW6FB0tFWnudQww8pp5_VS4BaXQCXEYXM_F0EmBylBn5Ntpe3xrqI_q6HvAKSeo2Mzen0uambG1Q_0XnNeLjVQe2C1yjLqY/s1600/pizap.com10.75625300686806441388539804216.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhTG6R54mpqJAB9CQHVsNsD02h6m8w4xRAu7j5FnOtM7x0kNcW6FB0tFWnudQww8pp5_VS4BaXQCXEYXM_F0EmBylBn5Ntpe3xrqI_q6HvAKSeo2Mzen0uambG1Q_0XnNeLjVQe2C1yjLqY/s1600/pizap.com10.75625300686806441388539804216.jpg" height="146" width="400" /></a><a href="https://www.blogger.com/blogger.g?blogID=4380024808238497867&pli=1" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"></a></div>
<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;">Both brothers have numerous life altering seizures. Brett recently went through a day of experiencing 14 seizures and Brynn, regardless of medications and a VNS implant, still experiences unpredictable seizures. <br /><b><br /></b></span></span></span><br />
<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b>About The Family</b></span></span></span><br />
<a href="https://www.blogger.com/blogger.g?blogID=4380024808238497867&pli=1" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;">“We’re doing all we are able and we are on the right track. A seizure service & alert dog for the boys will give them a sense of safety and increased confidence while giving me much needed Peace and stress relief.” says mom Denise.</span><br /><span style="font-family: Georgia,"Times New Roman",serif;">They are winning because they have a strong support circle surrounding them. Their mother, Denise is a strong prayer warrior believing in healing and standing in Faith. Their dad, Brian is hard working. The Brothers also have four other siblings. The family has the National Seizure Disorders Foundation, our resources and support at a moment’s notice.</span><br /><span style="font-family: Georgia,"Times New Roman",serif;">Consider the life these brothers lead. Their seizures, although diagnosed, are uncontrolled and unpredictable. This leaves the whole host at unrest. The family needs peace, mom needs rest, and the boys need healing.</span><br /><br /><span style="font-family: Georgia,"Times New Roman",serif;"><b>What You Can Do</b><br />National Seizure Disorders believes to achieve positive seizure management, the only true and positive journey to healing with seizure disorders, one must believe and practice Hope, Faith, and Love. Among these, Love is the emotion that heals. Brynnon and Brett need the Love of those around them, those that know them, and strangers right now. Everyone reading this has the opportunity to Love these brothers through positive thoughts, prayers, donation, and sharing this story with others. National Seizure Disorders Foundation has made it easy to donate. </span></span></span><span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b></b></span></span></span></div>
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<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEic3EAts8Nza9qCdW6vJvJgjvQHIvirVK2LScpHuyAclVgViMIywmwxlDy6_u2lyyeGIghCgBNGcyju72IkgIkhKfla4M43tIvhHxGfMzFEAw8atxZllnXLfDZ6JDZxnsareU20oJOk3Lw0/s1600/Picture+4.png" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEic3EAts8Nza9qCdW6vJvJgjvQHIvirVK2LScpHuyAclVgViMIywmwxlDy6_u2lyyeGIghCgBNGcyju72IkgIkhKfla4M43tIvhHxGfMzFEAw8atxZllnXLfDZ6JDZxnsareU20oJOk3Lw0/s1600/Picture+4.png" height="175" width="200" /></a></b></span></span></span></div>
<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><br /></b></span></span><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b>We are Fund Raising to get the boys a Seizure Service Dog!! Brynn and Brett are sponsored by: </b></span></span></span><br />
<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b> The National Seizure Disorders Foundation <a href="http://nsdf.us /" target="_blank">http://nsdf.us</a><a href="https://www.blogger.com/blogger.g?blogID=4380024808238497867&pli=1"> </a></b></span></span></span><br />
<span style="color: #351c75;"><span style="background-color: white;"><span style="font-family: Georgia,"Times New Roman",serif;"><b>Please Find, Like and Share: <a href="http://facebook.com/EpilepsyWarriorBoys%E2%80%A8" target="_blank">http://Facebook.com/EpilepsyWarriorBoys </a></b></span></span></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-39545419279551121782014-01-16T02:39:00.001-06:002014-01-16T03:01:45.156-06:00Abba Father is always faithful...<div dir="ltr" style="text-align: left;" trbidi="on">
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9xQ2v8_CLdzS2ZBJEgnnAmu_dVFKd_KP-sCfk7E9hvXSn83dr0L3v3XSyUTv-aVdS0Sr8-zlSQXpnZKCcfbZrDeDuovxizkFxtNDFZFpRJKGpN5Rg4xuTLv_tmoS0WHzrN0NlLouA1Q2q/s1600/blog76574643.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9xQ2v8_CLdzS2ZBJEgnnAmu_dVFKd_KP-sCfk7E9hvXSn83dr0L3v3XSyUTv-aVdS0Sr8-zlSQXpnZKCcfbZrDeDuovxizkFxtNDFZFpRJKGpN5Rg4xuTLv_tmoS0WHzrN0NlLouA1Q2q/s1600/blog76574643.jpg" height="133" width="200" /></a></div>
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<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"> </span>The
past few weeks have been filled with so many different emotions. The
strength and endurance that only faith can bring, remained<span style="font-size: large;"> constant<span style="font-size: large;"> and </span></span>persistent, I am ever so grateful for the peace that only <span style="font-size: large;">Abba Father gives, remaining steadfast in my heart, regardless of how things look or how they feel</span>. Regardless of the fear that comes<span style="font-size: large;">... the thoughts that race through my mind... </span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></span></b></span></span></span><b> </b><b> <span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><br /></i></span></span></b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><br />¸...¸</span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></i></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></i></span></span></b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">•</span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span><b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i>*´¯`*•.¸<span style="font-size: small;">He
who dwells in the shelter of the Most High will abide in the shadow of
the Almighty. I will say to the LORD, “My refuge and my fortress,<span style="font-size: small;"> </span>my
God, in whom I trust.” </span>~Psalms 91:1,2</i></span><span style="font-family: Verdana,sans-serif;"><i><b><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><i><b><span style="font-family: Verdana,sans-serif;"><b><b>´¯`*•.¸¸...¸</b></b></span></b></i></span></b><br /> </i></span></b></i></span><i><span style="color: #990000;"><i><br /></i></span></i></span></b><b>
</b></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuiYT-2wpwFXoP648nQm15cH6NaULu-cxDuHOTff2jemKIIMLtKJC5efMK1_k4STkFl3m2si-Z2Yz97iwjlzLbS-Dbpy_ZtypXqc0AyOVq35R86Vlg8kiopBVjRtZP12m7aPMkIqhdc2ST/s1600/blog240533651_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhuiYT-2wpwFXoP648nQm15cH6NaULu-cxDuHOTff2jemKIIMLtKJC5efMK1_k4STkFl3m2si-Z2Yz97iwjlzLbS-Dbpy_ZtypXqc0AyOVq35R86Vlg8kiopBVjRtZP12m7aPMkIqhdc2ST/s1600/blog240533651_n.jpg" height="320" width="240" /></a></div>
<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b>Brett's
seizures have persisted during the day, then went back to just at
night, then they balanced out to both night and day seizures. It has
been difficult for the entire family, a whole new experience of not
knowing when they will hit. Not knowing if the Simple Partial <span style="font-size: large;">visual symptoms wi<span style="font-size: large;">ll stay, go<span style="font-size: large;"> </span>away or continue to a Complex Pa<span style="font-size: large;">rtial. <span style="font-size: large;">He experie<span style="font-size: large;">nced a dramatic increase on Sunday and had to be taken to the Emergency Room after having <span style="font-size: large;">3 long <span style="font-size: large;">Complex Partials followed by 4 back to back with little or no recovery in between.</span></span></span></span></span></span></span></b></span></span></span><b> <span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #660000;">He
had seizures continue on the way to the hospital and while in the
Emergency Room. Our oldest Son was with us and counted 14 seizures...
Ativan was given for the first time to help stop the clustering,
thankfully it worked. The after effects were terrible, bouts of crying
that were hard to determine if they were repetitive seizures or after
shocks in his brain from all the seizures. </span></span></span></b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="color: #660000;"><b>Abba Father is always faithful...</b></span></span></span><br />
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<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><i><br /></i></b></span></span><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><i><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">¸...¸</span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></i></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></i></b></span></span><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">•</span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span><span style="font-family: Verdana,sans-serif;"><i><b>*´¯`*•.¸<span style="font-size: small;">Trust
in the LORD with all your heart, and do not lean on your own
understanding. In all your ways acknowledge him, and he will make
straight your paths. ~Proverbs 3:5,6</span></b></i></span><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">´¯`*•.¸¸...¸<br /></span></b></b></span></span></b></i></span></span></b> </b></span></span></div>
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikLFn6bF3gah1cX7S_zjMYAXMPk5Y0TcRrBPmgDjBmYWsyBNVhtsiJcflQ-XHqzIvpgHV9lp11f9DyhkkHSBuYdikQQo2Qem7fCK6OQsBt6pOGPe-M4PHfQVQoBaLbygndDf7DIQpveCkp/s1600/blog18235383_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikLFn6bF3gah1cX7S_zjMYAXMPk5Y0TcRrBPmgDjBmYWsyBNVhtsiJcflQ-XHqzIvpgHV9lp11f9DyhkkHSBuYdikQQo2Qem7fCK6OQsBt6pOGPe-M4PHfQVQoBaLbygndDf7DIQpveCkp/s1600/blog18235383_n.jpg" height="240" width="320" /></a><br />
<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;">Monday, we<span style="font-size: large;"> went to Children's and he was still in a pretty bad postictal state. Off balance, conf<span style="font-size: large;">used, irritable, extreme sen<span style="font-size: large;">sory <span style="font-size: large;">sensitive... <span style="font-size: large;">That visit <span style="font-size: large;">was a good one, we made tremendous progress. N<span style="font-size: large;">euro agrees<span style="font-size: large;">, Brett is likely multifocal, since I have video showing Left side postur<span style="font-size: large;">ing with Complex Partial onset as well as Right side. The decision was made to go forward with the VNS implant like Brynn has<span style="font-size: large;">. </span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #990000;"><i><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><br /></b></span></span></i></span><i><b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><br />¸...¸</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><span style="color: #990000;">•</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b><b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;">*´¯`*•.¸“Come to me, all who
labor and are heavy laden, and I will give you rest. Take my yoke upon
you, and learn from me, for I am gentle and lowly in heart, and you will
find rest for your souls. For my yoke is easy, and my burden is light.”</span> <span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;">~Matthew 11:28-30</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></i><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><b><span style="color: #990000;"><i><span style="font-family: Verdana,sans-serif;"><span style="font-size: small;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">´¯`*•.¸¸...¸</span></b></b></span></span></b></i></span></span></b></span></span></i></span></b></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="font-size: large;"> </span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_7Zf0CL4S7cOOKm0g8v_xcbYXvgHN5iia30A-bf7aE0yd95q6GnjVvaP0f0kF_4l_1QB6WzfA2J8lb9OHtalh5_5FCocgBmfLhDAOmMro5E90sB3Ja5sR_yuki3l17kG7PfMY_dt-AJUW/s1600/blog879466901_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_7Zf0CL4S7cOOKm0g8v_xcbYXvgHN5iia30A-bf7aE0yd95q6GnjVvaP0f0kF_4l_1QB6WzfA2J8lb9OHtalh5_5FCocgBmfLhDAOmMro5E90sB3Ja5sR_yuki3l17kG7PfMY_dt-AJUW/s1600/blog879466901_n.jpg" height="320" width="240" /></a></div>
<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">YES,
We Will DO Genetic Testing Before even considering brain surgery again.
Brett was chosen by his neuro to be the patient that gets a <span style="font-size: large;">complimentary</span> genetic <span style="font-size: large;">Epilepsy Panel done. W<span style="font-size: large;">e have been blessed by Brynn and Brett's neuro in that he chose Brett to get the test. This <span style="font-size: large;">wa</span>s far away from our reach, very costly and our insurance would not cover it. This is a mirac<span style="font-size: large;">le for <span style="font-size: large;">us to have this <span style="font-size: large;">opportunity, just when I had made my mind up that it had to be done as soon as possible</span>. I was so amazed by how this worked out perfectly, as usual just in time as Abba Father <span style="font-size: large;">always does things... Just when you are about to throw your arms up in complete frustration and despair. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></span></span><span style="color: #990000;"><b><i><br /></i></b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b><i><span style="font-size: small;"><b><span style="font-family: Verdana,sans-serif;"><i><b><i><b><span style="font-family: Verdana,sans-serif;"><i><b><span style="font-family: Verdana,sans-serif;"><b><b><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><i><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><i><b><span style="font-family: Verdana,sans-serif;"><i><b><span style="font-family: Verdana,sans-serif;"><b><b><b><span style="font-family: Verdana,sans-serif;"><i><b><span style="font-family: Verdana,sans-serif;"><b><b><br />¸</b></b></span></b></i></span></b></b></b></span></b></i></span></b></i></span></b></b></i></span></i></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></b></b></span></b></i></span></b></i></b></i></span></b></span></i></b></span></span></span><b><i><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;">•*´¯`*•.<span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;">¸</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span>But you, O Lord, are a compassionate; gracious God, slow to anger, abounding in love & faithfulness.<span style="font-size: small;"><span style="font-size: small;"> </span></span><span style="font-size: small;"><span style="font-size: small;">~</span></span>Psalm<span style="font-size: small;"> </span>86:15</span></span><span style="font-size: small;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">´¯`*•.¸¸...¸</span></b></b></span></span></b></i></span></span></b></span></i></b><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpYPcswhsMJvmxUQcaI4cVaXWf1B5rIHcpCmq7InOSEh4Itik-n9FNYs9vj_phJN2IOnN5QfFAwvs0Tl3SjNaLOP4HzNeeqGsuSIj_wwFaCp9Dq26oMvvNAC_Vwim-b41-rpz4WIQUL-Tr/s1600/blog605158051_o.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><br /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5mQlpJELrWSgNBNdhyphenhyphenwgVY3PJLY5IWNM5xKxmdZXvo3eceEE2N3JzCrJuX8Fz8LEfy8ozvpsskqPrtnG4H5nkcU0IYymT6oJsd2ZAs4rm3Riu7IDOp2dBiZtTW82INGl_ZMR1cAhhAi_C/s1600/blog307422_n.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5mQlpJELrWSgNBNdhyphenhyphenwgVY3PJLY5IWNM5xKxmdZXvo3eceEE2N3JzCrJuX8Fz8LEfy8ozvpsskqPrtnG4H5nkcU0IYymT6oJsd2ZAs4rm3Riu7IDOp2dBiZtTW82INGl_ZMR1cAhhAi_C/s1600/blog307422_n.jpg" height="240" width="320" /></a></div>
<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Brynn
has remained so stable over the past several months. He is now staying
at baseline some weeks better, only averaging 3-4 seizures a week. Even a
bigger wonderful blessing, he has only had ONE <span style="font-size: large;">Tonic Clonic Seizure in the past 3 months and only averaging <span style="font-size: large;">ONE Tonic Seizure a month. He has remained stable<span style="font-size: large;"> long enough to conclude that the medicine combo and the VNS is keeping him more stable than he has been in a long time. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><b><span style="color: #990000;"><br /></span></b><span style="color: #990000;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><b><i><b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><br />´¯`*•.¸</span></b></b></span></span></b></i></span></span></b></i></span></b></i></span></span></b></i></b></span></span></span><span style="font-family: Verdana,sans-serif;"><b><i>May the God of hope fill you with all
joy and peace in believing, so that by the power of the Holy Spirit you
may abound in hope. ~</i><i>Romans 15:13</i><i><i>´¯`*•.¸¸...¸</i></i></b></span><span style="font-size: large;"> </span><br />
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpYPcswhsMJvmxUQcaI4cVaXWf1B5rIHcpCmq7InOSEh4Itik-n9FNYs9vj_phJN2IOnN5QfFAwvs0Tl3SjNaLOP4HzNeeqGsuSIj_wwFaCp9Dq26oMvvNAC_Vwim-b41-rpz4WIQUL-Tr/s1600/blog605158051_o.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjpYPcswhsMJvmxUQcaI4cVaXWf1B5rIHcpCmq7InOSEh4Itik-n9FNYs9vj_phJN2IOnN5QfFAwvs0Tl3SjNaLOP4HzNeeqGsuSIj_wwFaCp9Dq26oMvvNAC_Vwim-b41-rpz4WIQUL-Tr/s1600/blog605158051_o.jpg" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: #990000;">Brynn, Brett & Abigail ~May 2010</span></b>~</td></tr>
</tbody></table>
<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">What a journey this has been over the last several years... <br />Thinking back it is difficult<span style="font-size: large;">, Brett is the same age that Brynn was when he entered the seizure sick <span style="font-size: large;"> world. Both</span></span></span> boys were born in October. It was January 25<span style="font-size: large;">, 2009 the first<span style="font-size: large;"> time Brynn went to the ER after his first <span style="font-size: large;">recognized</span> 10+ minute Tonic Clonic seizure. Here Brett is, same chronicological age as Brynn was in the same month... and his seizures a<span style="font-size: large;">re worse than they have ever been<span style="font-size: large;">. </span></span>I do not believe<span style="font-size: large;">
in coincidence and there is no such thing as "bad luck," I hope that we
will have answers soon through that test for my blond hair, blue eye<span style="font-size: large;">d boys that have so many <span style="font-size: large;">similarities</span></span>... </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="font-size: small;"><br /></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #660000;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><br />¸...¸</span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></i></span></span></b></span></span></i></span></span></b></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">•</span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span><span style="font-family: Verdana,sans-serif;"><b><i>*´¯`*•.¸<span style="font-size: small;">Count
it all joy, my brothers, when you meet trials of various kinds, for you
know that the testing of your faith produces steadfastness. And let
steadfastness have its full effect, that you may be perfect and
complete, lacking in nothing. ~</span>James 1:2-4</i></b></span><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><span style="font-size: small;">´¯`*•.¸¸...¸<br /></span></span></b></b></span></span></b></i></span></span></b><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6Z3W6We5XLNwUTp3s4ZzT-JCMarkfm3gm5OFRMyolBtL9vPOiId51jRdOsNpS2aVzHlZpbqscBHz5kRvU2X2TjKVb8eUYSpZJGYpPVasGYJF7hHDTJmCmmK9qHmYx5D4INU_ktVBbgPsg/s1600/blog863876.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6Z3W6We5XLNwUTp3s4ZzT-JCMarkfm3gm5OFRMyolBtL9vPOiId51jRdOsNpS2aVzHlZpbqscBHz5kRvU2X2TjKVb8eUYSpZJGYpPVasGYJF7hHDTJmCmmK9qHmYx5D4INU_ktVBbgPsg/s1600/blog863876.jpg" height="320" width="320" /></a></div>
<div style="text-align: justify;">
<b><span style="font-size: large;"><span style="color: #660000;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Georgia,"Times New Roman",serif;">I
made a video for awareness of Complex Partial Seizures, since Brett's
are unusual and I had a hard time finding a video that showed a seizure
anything like his. I <span style="font-size: large;">hope it w<span style="font-size: large;">ill bring awareness to this type of seizure and will help others who <span style="font-size: large;">may be looking for answers<span style="font-size: large;">, and knowing that you are not alone<span style="font-size: large;">! </span></span></span></span></span></span></span></span></span></span></b><b><span style="font-size: large;"><span style="color: #660000;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Verdana,sans-serif;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></span></span></span></span></span></span></span></span></span></span> <br /><a href="http://www.youtube.com/watch?v=_orIXJ8CrbA"><br />http://www.youtube.com/watch?v=_orIXJ8CrbA</a><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><a href="http://www.youtube.com/watch?v=_orIXJ8CrbA"><br /></a></i></span></span></b>
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<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><i>¸...¸•*´¯`*•.¸F<span class="text Rom-8-15" id="en-KJV-28132">or ye have not received
the spirit of bondage again to fear; but ye have received the Spirit of
adoption, whereby we cry, Abba, Father.</span> ~Romans 8:15´¯`*•.¸¸...¸</i></b></span></span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXQ4hzWu7icMo1aSoFaYaVUtll10h5UQPTMAeRGeQN0hdLFC96CkdohXFbKoewJ3cFF2PFKv7BtVsSJ3o5NT2iFDhQwkAeAjjt9z4768pnVm-TkcBoDR_lYRPkAbWlEa9L6wh7T42IMwZG/s1600/blog2949675_n.jpg" style="margin-left: 1em; margin-right: 1em;"><br /></a></div>
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<table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXQ4hzWu7icMo1aSoFaYaVUtll10h5UQPTMAeRGeQN0hdLFC96CkdohXFbKoewJ3cFF2PFKv7BtVsSJ3o5NT2iFDhQwkAeAjjt9z4768pnVm-TkcBoDR_lYRPkAbWlEa9L6wh7T42IMwZG/s1600/blog2949675_n.jpg" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgXQ4hzWu7icMo1aSoFaYaVUtll10h5UQPTMAeRGeQN0hdLFC96CkdohXFbKoewJ3cFF2PFKv7BtVsSJ3o5NT2iFDhQwkAeAjjt9z4768pnVm-TkcBoDR_lYRPkAbWlEa9L6wh7T42IMwZG/s1600/blog2949675_n.jpg" height="240" width="320" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b><span style="color: #990000;">Brynn, Brett & Abigail ~January 2014~</span></b></td></tr>
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<span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">So, after that <span style="font-size: large;">exhausting</span> Sunday filled with seizures, Monday filled with 5 hours of driving, both boys seeing the neuro, Brett being so<span style="font-size: large;"> <span style="font-size: large;">postictal,
the joy of knowing Brett would have a genetic test done, the
uncertainty of why his seizures are so out of control... and the
decision to do the VNS... This Momma was done! I was just at<span style="font-size: large;"> the end of my rope and so <span style="font-size: large;">exhausted....</span></span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></div>
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<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><br /></b></i></span></span>
<span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;">¸...¸</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></i></span></span><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b>•*´¯`*•.¸A merryheart doeth good like a medicine: but a broken spirit drieth the bones. <span class="keywordresultextras">~Proverbs 17:21-23</span></b></i></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span class="keywordresultextras"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">´¯`*•.¸¸...¸<br /></span></b></b></span></span></b></i></span></span></b></span></i></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge4s6yNlYPTfXkCJXtcqgTHRhugWYASI0CFajSY5Djfxr3nzzrlpCxSfIv8QLmY4Oi73gPnwIj3f6D81f1Aok3pKUvdhEFwEI1HW-XWkvJ7N2upimCLJ_QyZtygdIgaBZ4_0YKRoeHhFad/s1600/bloggodisfaithful.jpg" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEge4s6yNlYPTfXkCJXtcqgTHRhugWYASI0CFajSY5Djfxr3nzzrlpCxSfIv8QLmY4Oi73gPnwIj3f6D81f1Aok3pKUvdhEFwEI1HW-XWkvJ7N2upimCLJ_QyZtygdIgaBZ4_0YKRoeHhFad/s1600/bloggodisfaithful.jpg" height="400" width="313" /></a>Then T<span style="font-size: large;">uesday... </span>Your never going to guess what happened<span style="font-size: large;">! The National Seizures Disorder<span style="font-size: large;"> Foundation<span style="font-size: large;">'s Founder, Tonya sent me a link for the boys... She is <span style="font-size: large;">sponsoring</span> a <span style="font-size: large;">fund raising</span> <span style="font-size: large;">campaign</span> to <span style="font-size: large;">raise the money for <span style="font-size: large;">the boys to get their very own Seizure Alert Response Service Dogs! This is going to <span style="font-size: large;">require</span> a <span style="font-size: large;">lot of work, and prayerfully, a lot of help from a lot of people... </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">What a blessing <span style="font-size: large;">i</span>ndeed... and yes, just when your at the end of your rope... Abba Father is alwa<span style="font-size: large;">ys faithful... Very grateful and feeling so blessed! </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">However, for the first time ever I BELIEVE it not only Can Happen, but <span style="font-size: large;">IT WILL HAPPEN</span></span></span>! Can you help?? Here is the link, please share! </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">Abba Father is alwa<span style="font-size: large;">ys faithful...</span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><br /></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span> <br />
<a href="http://nationalseizuredisordersfoundation.org/brothers-winning-the-battle-of-seizure-disorder/"><span style="font-size: large;"><span style="color: #990000;"><b>http://nationalseizuredisordersfoundation.org/brothers-winning-the-battle-of-seizure-disorder/</b></span></span></a><br />
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.<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6gpdpwimCbp_0EBHnC5Ydjiv7q_B7G-5qRoHyHkbrpYYeCZuNCHMHP747VV7ISCefnm6BffN6WuuqsAx-Z0Jei3dnaQPu7f997dwVgZXimoUAlxjDiqgIvEbm5LqvsaDPD915o3dG7KcF/s1600/blog28881179_n.jpg" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6gpdpwimCbp_0EBHnC5Ydjiv7q_B7G-5qRoHyHkbrpYYeCZuNCHMHP747VV7ISCefnm6BffN6WuuqsAx-Z0Jei3dnaQPu7f997dwVgZXimoUAlxjDiqgIvEbm5LqvsaDPD915o3dG7KcF/s1600/blog28881179_n.jpg" height="235" width="640" /></a>.<i><span style="color: #990000;"><b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><br /></span></span></b></span></i><br />
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<i><span style="color: #990000;"><b><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><i><span style="color: #660000;"><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: small;"><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">¸...¸</span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></i></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></span></span></i></span></span></b></span></i><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;"><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i><b><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><i><b><span style="font-family: Verdana,sans-serif;"><span style="color: #990000;"><b><b><span style="color: #990000;">•</span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span></span></b></b></span></span></b></i></span></span></b></span></b></b></span></span></b></i></span></span></b></i></span></span></b></b></i></span></span>*´¯`*•.¸<b><span style="color: #990000;"><span style="font-family: Verdana,sans-serif;"><i>You
keep him in perfect peace whose mind is stayed on you, because he trusts
in you. Trust in the LORD forever,<span style="font-size: small;"> </span>for the LORD GOD is an everlasting
rock. ~Isaiah 26:3,4</i></span>´¯`*•.¸¸...¸</span></b></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-40128781661364199442013-12-12T14:33:00.002-06:002013-12-13T17:51:58.424-06:00Fast Forward Realities... <div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNaCOWxv8jgJPvWCzbtK8Bomzk8V06-WNtE8mjPraxNaUtW-b7QIT28GOTTNLaM1dj2ikXwcqr2noYFeEHoFPsojOP8zK5ug6I7oVgGGKlcdWw168u2Ge8YEIuGfQ7tzJ1ZZ_Nwc04s4Mf/s1600/childrens285685_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNaCOWxv8jgJPvWCzbtK8Bomzk8V06-WNtE8mjPraxNaUtW-b7QIT28GOTTNLaM1dj2ikXwcqr2noYFeEHoFPsojOP8zK5ug6I7oVgGGKlcdWw168u2Ge8YEIuGfQ7tzJ1ZZ_Nwc04s4Mf/s320/childrens285685_n.jpg" height="240" width="320" /></a></span></span></span></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b>It is with a heavy heart that I sit to write this blog update.</b> <b><b> A lot has happened since my last
post so I will try to catch up with pictures as I give the most recent update on Brett. <br /><br /> </b></b></span></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu-sbJzQ-dLL1Hup7x8PJS4dzWYbYhEte7WO0yOuMUydIpkJSvYXOvrNVXzegrjOPOqaT2rYQy5Xxa1YxFxjdSoNnBUqRalijD6vXYU9bti0MGHmO7o_iI9wnN_Z-KYpMkBezWUrdTxRe9/s1600/CeCe7692624_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhu-sbJzQ-dLL1Hup7x8PJS4dzWYbYhEte7WO0yOuMUydIpkJSvYXOvrNVXzegrjOPOqaT2rYQy5Xxa1YxFxjdSoNnBUqRalijD6vXYU9bti0MGHmO7o_iI9wnN_Z-KYpMkBezWUrdTxRe9/s320/CeCe7692624_n.jpg" height="320" width="240" /></a></b></b></span></span></span></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><b><span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><b>We had a wonderful </b></b></span></span></span>Hanukkah! Abigail
really enjoyed it this year and even helped light the candles. The Boys
both enjoyed the Epilepsy Awareness in Disneyland bears and T-shirts that I got them! They both love their new cool beanie helmets I got them! </b></b></span><span style="font-size: large;"><b> Last year at this time I was seeing cognitive decline in Brett, behaviors similar to Brynnon's in Brett. I saw an increase in what I could only describe as extreme emotional outburst for no known reason and he </b></span></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGJCJaIBJ0ioxaOj1R4s6QD_xtmsjpa6M_me1uceOuDsIjUb7No1O7erw20N3VEGwgdPkC_AxYjO-we-6ezl-odTy2a6F8h6vHl0F8rn5IbXDt7UWQhllLKLleB5IYO0NX1PjajWfK-UoH/s1600/CeCe7802084_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjGJCJaIBJ0ioxaOj1R4s6QD_xtmsjpa6M_me1uceOuDsIjUb7No1O7erw20N3VEGwgdPkC_AxYjO-we-6ezl-odTy2a6F8h6vHl0F8rn5IbXDt7UWQhllLKLleB5IYO0NX1PjajWfK-UoH/s320/CeCe7802084_n.jpg" height="320" width="240" /></a></b></span></span></span></div>
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couldn't explain it either. He would say things like he couldn't see the words while Reading or he didn't know how to borrow or carry in Math. A bright boy since birth, Brett was struggling to work at grade level when a year prior he was a year ahead. I tried to see it for what it wasn't as long as I could. I had been catching events that looked like seizures in Brett for a few years while recording Brynn. </b></span></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtzNeQAVPvPinbcb7BFXjC5UrownEB_ZxaVtjQoR5mO9L6sW2f4htoGl6-m8TfgSu32t4W4rNhk3TcBpRTguznhOSVz7S6JEaEBbMdCBFIqIYSTZiPvoq0ifKjszHzAwp3xtGcGvFtucNM/s1600/CeCe67290_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtzNeQAVPvPinbcb7BFXjC5UrownEB_ZxaVtjQoR5mO9L6sW2f4htoGl6-m8TfgSu32t4W4rNhk3TcBpRTguznhOSVz7S6JEaEBbMdCBFIqIYSTZiPvoq0ifKjszHzAwp3xtGcGvFtucNM/s320/CeCe67290_n.jpg" height="320" width="240" /></a></b></span></span></span></div>
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After being told by the Pediatrician he was faking seizures and peeing himself for attention, it eventually became easier to believe her, than to even think it really was seizures. One night while watching a movie Brett fell asleep. He got up and was completely blank looking. He stood and was making hand motions like he was touching something. I watched, tried to talk to him with no response and thought, well<span style="font-size: large;"> </span>whatever that is it's not normal. I researched... and I finally came to the conclusion it could be seizures and that Dr. was wrong or it could be Parasomnias. Ah, yeah </b></span></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="color: #674ea7;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikF2F-FSyPgMWxcPM3YOi-rOPhpECrcSWnSHHTRymqucqnAjzuKNan54hc3qq7jnHl3fPi-CCHcDNFJsepFsSPjxOWEKi1Se8ScS-oskqfH67gnVyEARUm6NaMl8Py2Qy04yePyldqY_gg/s1600/CeCe841126338_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEikF2F-FSyPgMWxcPM3YOi-rOPhpECrcSWnSHHTRymqucqnAjzuKNan54hc3qq7jnHl3fPi-CCHcDNFJsepFsSPjxOWEKi1Se8ScS-oskqfH67gnVyEARUm6NaMl8Py2Qy04yePyldqY_gg/s200/CeCe841126338_n.jpg" height="150" width="200" /></a></b></span></span></span></div>
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<span style="color: #674ea7;">Parasomnias make more sense and the cognitive decline likely just the effects of having so much go on in his sleep. I took him to a local Family Physician showed her a few videos and said I am not saying these are seizures, but they are similar to what Brynn does, maybe they are Parasomnias. She agreed and thankfully Brett was referred to Children's. We<span style="font-size: large;"> </span>went for the first visit and I think I may have been the only person who saw the video there that was convinced that it was Parasomnias. He had a sleep deprived video EEG and was diagnosed with Epilepsy in September. He started Keppra, which caused horrible rage and anger. </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOXDYGyNDsd3Y-ir-i3kLktJcVecf3QjQJOjxZsFP10pcAhQGx6IShr32Yp3JKjnfLdFAS8m5iKmOHX2i86Wu7m65QC7zjR-wqd_SkkZkeqHUxgtc4sDH5kdYqw3cMoLkO6Z3Y_Tz5pCGU/s1600/childrens43641_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgOXDYGyNDsd3Y-ir-i3kLktJcVecf3QjQJOjxZsFP10pcAhQGx6IShr32Yp3JKjnfLdFAS8m5iKmOHX2i86Wu7m65QC7zjR-wqd_SkkZkeqHUxgtc4sDH5kdYqw3cMoLkO6Z3Y_Tz5pCGU/s320/childrens43641_n.jpg" height="320" width="240" /></a></b></span></span></div>
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</span></b></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">We switched to Trileptal </span></b></span></span>and over time it did seem to help his daytime become a little better. I did not see much change in his nighttime. We went to his first visit with Brynn's neuro Oct. 1st, and at that visit he said he would not wait until he is maxed out on five drugs to consider Epilepsy Surgery and that he was concerned about genetics. </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio-4h5tvvxqi8Om33h1V2gSHCxbE8EDMiVINQXyQd8rqKllAIPrndXsHd6laoxQ-IRELSKEOPCHESW4Y3D6mgzLkKISxSMrsuyfISJ4RXr9XaDUTmgykb2NsIxOcNVqw8KTpMd1sJtViga/s1600/childrens779071_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEio-4h5tvvxqi8Om33h1V2gSHCxbE8EDMiVINQXyQd8rqKllAIPrndXsHd6laoxQ-IRELSKEOPCHESW4Y3D6mgzLkKISxSMrsuyfISJ4RXr9XaDUTmgykb2NsIxOcNVqw8KTpMd1sJtViga/s320/childrens779071_n.jpg" height="320" width="240" /></a></b></span></span></div>
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All of a sudden, just when I got comfortable a few weeks later, he became very verbal about what was happening to him visually. All those crazy symptoms he had complained about blurred vision, altered perception of what he was seeing, altered sizes of things, his vision moving... </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9RlVhNX_7bgG5QOGDIrIhV1cUl8tD9IIvAEQ7KN4_j62mWLm4MCFDfOGfP8OsimFgB2aqpFYPSafXm1hgR48VuEG1awDZ-VPz4OuKbKcSFTLoJX6-SvvyKTwVZmUBlRk6h_4Z4_cIGChD/s1600/CeCe56842515_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh9RlVhNX_7bgG5QOGDIrIhV1cUl8tD9IIvAEQ7KN4_j62mWLm4MCFDfOGfP8OsimFgB2aqpFYPSafXm1hgR48VuEG1awDZ-VPz4OuKbKcSFTLoJX6-SvvyKTwVZmUBlRk6h_4Z4_cIGChD/s320/CeCe56842515_n.jpg" height="320" width="240" /></a></b></span></span></div>
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</span></b></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">The more </span></b></span></span>questions I asked, the clearer the picture became. I reported these things to the Neuro. It was decided that he needed another medication added, so we added Topamax. The dose was to be 25 mg AM & 100 mg PM to avoid any further problems in his schooling. It was great at first, he slept soundly and peacefully more<span style="font-size: large;"> nights.</span> </span></b></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"> </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtzNeQAVPvPinbcb7BFXjC5UrownEB_ZxaVtjQoR5mO9L6sW2f4htoGl6-m8TfgSu32t4W4rNhk3TcBpRTguznhOSVz7S6JEaEBbMdCBFIqIYSTZiPvoq0ifKjszHzAwp3xtGcGvFtucNM/s1600/CeCe67290_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjtzNeQAVPvPinbcb7BFXjC5UrownEB_ZxaVtjQoR5mO9L6sW2f4htoGl6-m8TfgSu32t4W4rNhk3TcBpRTguznhOSVz7S6JEaEBbMdCBFIqIYSTZiPvoq0ifKjszHzAwp3xtGcGvFtucNM/s320/CeCe67290_n.jpg" height="320" width="240" /></a></b></span></span></div>
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</span></b></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">His daytime seemed </span></b></span></span>much better... but over the next few weeks my life became a whirlwind. Brett started having bigger daytime events that terrorized him and everyone who saw it. I did not know if he was loosing contact with reality or having symptoms of a terrible mental disorder... </span></b></span></span><br />
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">but he started having something happen after </span></b></span></span><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">the Complex Partials that I did not know could happen. </span></b></span></span></span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZrWOr7QEcolZNX0Vv9rarkY9ys3km2K_eLEI9tyuc3HvjMxaC86bFXcTS3PcTci2aa46TO7UbcIWKo_8ekJbh5O8orOswcYjZVRTWr22lzIB20ZkCPm9RSs_TLGJhLiDl0PxcuyJ6bDVT/s1600/Childrens.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgZrWOr7QEcolZNX0Vv9rarkY9ys3km2K_eLEI9tyuc3HvjMxaC86bFXcTS3PcTci2aa46TO7UbcIWKo_8ekJbh5O8orOswcYjZVRTWr22lzIB20ZkCPm9RSs_TLGJhLiDl0PxcuyJ6bDVT/s320/Childrens.jpg" height="320" width="240" /></a></b></span></span></div>
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TERROR, Irrational Fear, Screaming, Wandering and if being restrained or stopped RUNNING. We started recording the events on the third day. Something was happening that never happened before. I called the Neuro to report these events after I researched and figured out that the fear could be part of the Complex Partials. I suggested that perhaps the daytime dose being so much lower wasn't protecting him well enough in the daytime, because now his nighttime events had disappeared. The neuro agreed and we doubled the daytime dose. After a few days it was evident it was helping some. I called again and was told to go ahead and get the doses even. It spaced out the events for several days. </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjXAgh3EEXivGYtmsdKs2HA9W1cChxgD3a-Ugwj8Zax6uysu-WXu6Q7JGhhY-KCFxXEL21Oo2IIeO3bFBjsk7Ky5PAVai6jsDcC_dIu6kTVDhXyevCn59PZYpTuBgaG-GTC8xdjW6f5o0j/s1600/childrens127592_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjjXAgh3EEXivGYtmsdKs2HA9W1cChxgD3a-Ugwj8Zax6uysu-WXu6Q7JGhhY-KCFxXEL21Oo2IIeO3bFBjsk7Ky5PAVai6jsDcC_dIu6kTVDhXyevCn59PZYpTuBgaG-GTC8xdjW6f5o0j/s400/childrens127592_n.jpg" height="400" width="300" /></a></span></b></span></span></div>
<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;">Then as if nothing had changed it went </span></b></span></span>back to every day. I decided the best action I could take was to request the neuro watch the videos. After he viewed them, it was decided that we needed to take action and have him go in for an extended EEG to see if he could be a possible brain surgery candidate. We returned home yesterday from Brett's first Children's Hospital admission. Brett had a seizure while being hooked up to the EEG leads, which made me think that may be a wasted visit. I did have the nurse that helped keep him on the table as well as the EEG Tech witness what happened, but I knew without it being on EEG it wasn't enough. </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitMJhjCKKJDqiXJ1wli1neJQ9LVugaGtc7Jfdonp01a9ud0s8QUn8XQW-MB4DqszzV-__ZZommu04d38SPQCo_-o8vBjdwRzVn0BF0CnSJR2Xn4-L2oNqb0-oxZReox8MfYdnbr3k4hegP/s1600/childrens700213_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEitMJhjCKKJDqiXJ1wli1neJQ9LVugaGtc7Jfdonp01a9ud0s8QUn8XQW-MB4DqszzV-__ZZommu04d38SPQCo_-o8vBjdwRzVn0BF0CnSJR2Xn4-L2oNqb0-oxZReox8MfYdnbr3k4hegP/s400/childrens700213_n.jpg" height="400" width="300" /></a></span></b></span></span></div>
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That first day while hooked up he had a few auras that I didn't push the button for. That night he was a teeny bit restless but not anything to push the button for. The next morning he got his breakfast tray and was not excited about that bagel he asked for once he saw it. He picked at the bagel and the rest of his tray. A bit later he asked when is lunch... at 10:30 lunch is a bit far away for a growing boy, so I offered to go buy him one of those Red Baron personal pizzas out the machine downstairs. After asking him if he was sure he didn<span style="font-size: large;">'</span>t have the vision thing or feel like he was going to have a seizure, I asked his nurse if she could </span></b></span></span><br />
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<span style="font-family: Georgia,"Times New Roman",serif;"><span style="font-size: large;"><b><span style="color: #674ea7;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUhKpWeZ4jREbxzBtK_f04pU9Go9kP64WenIMKsl8NTLLpR6uf7GBfoityvXxINl2mvBJXsmllA3ualxouKCegSjBSI-U2pflD-A_xjCTNghYOmGknbySZEdaHdlNKKJF39F3qIVoDjB5o/s1600/IMG_20120109_112239.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgUhKpWeZ4jREbxzBtK_f04pU9Go9kP64WenIMKsl8NTLLpR6uf7GBfoityvXxINl2mvBJXsmllA3ualxouKCegSjBSI-U2pflD-A_xjCTNghYOmGknbySZEdaHdlNKKJF39F3qIVoDjB5o/s320/IMG_20120109_112239.jpg" height="320" width="240" /></a></span></b></span></span></div>
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keep an eye on him and she agreed. I waited for a while for the elevator, and eventually made it down. I anxiously looked for it... the shiny package that he wanted... Cheesy goodness, there it was! The machine wouldn't take my debit card so I scrounged up a few bucks from my wallet. I grabbed a Green Tea for myself and was out of there... a guy called Ma'am your change! I grabbed that and again was on my way. Made it back up... and found the Nurse next to Brett in an obvious seizure... tears in running down his face... I spoke to him and he had that fearful look... </span></b></span></span><br />
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My little boy was lost, completely lost. Didn't know where he was or even who I was. I told the nurse he is having a seizure, pushed the button... Dr. M came in soon after and asked if that was a typical seizure. I didn't see onset, but knew by the last part I saw it likely was, other than he didn't try to get out the bed or take the wires off. So she said she would look it over and if it was enough, we may be able to leave.It seemed like forever before she came back. When she did she said you never want a neurologist to say your child is fascinating, but his seizures are very fascinating. He appears to be a good brain surgery candidate based on that seizure and it was such a good example she </span></b></span></span><br />
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will be using it in the future. She totally got how it was diagnosed as "Night Terrors" and how it was confusing to me that it could be a seizure, because his awareness comes and goes. It's an unusual etiology and the progression of the seizure was very unusual. With the amount of Auras he was having she suggested that we stay the extra night and try to capture more. <div class="separator" style="clear: both; text-align: center;">
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I was done, and felt like I needed to go home. So I opted to do just that. So... all those crazy visual symptoms are Simple Partial seizures confirmed by EEG, as well as the Complex Partial seizures confirmed. She <span style="font-size: large;">confirmed</span> as well that a seizure he had a few days prior with jerking in both legs that eventually became whole body jerking was indeed a Tonic Clonic. He had the Right side only jerking every now and again at night and eventually during the day. When the seizure focus goes off it in the Occipital Lobe it moves to the Left Visual Assoc. Cortex causing the crazy Visual symptoms. At that point it is considered a Simple Partial seizure. It it keeps going and shoots through his Temporal Lobe causing the fear, euphoria and <div class="separator" style="clear: both; text-align: center;">
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more obvious Complex Partial it is considered an Aura. An Aura is a sign that a bigger seizure in coming experienced by much of the people with Temporal Lobe seizures. When his right side starts jerking it has spread through to the Motor strip and that time it was both sides jerking it had generalized (spread to the other side of the brain) into a Tonic Clonic. It is a good thing to have answers and know that there are options. I still have a lot of questions before Brett will be having Brain Surgery. The main question is Genetics. I cannot <div class="separator" style="clear: both; text-align: center;">
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think that it is "bad luck" as she put it. It's too much like Brynnon. Both boys have the same genetic makeup, you can see it by looking at them, by the seizure type and progression and by so many other signs. I think it would be very traumatic to have Brett go through Brain Surgery, and it is a step I am not willing to even consider without genetic testing. Brynn only had one Focal area at one time, now he has three. So in my mind, why would you go through that kind of trauma and hope for seizure freedom if eventually it will return and what if it is worse? <div class="separator" style="clear: both; text-align: center;">
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I don't think I have the courage to even explore the surgical option without knowing a whole lot more. Whatever happens, I know without a doubt that our Abba Father is in control. No matter how it looks or feels, I have full confidence that Abba Father has Brynn and Brett in his hands and they are perfectly made. </span><span style="color: #674ea7;"><br /><br /><span style="font-family: Times,"Times New Roman",serif;">The <span style="font-size: large;">beanie Helmets I got the boys are from:<br /> </span><a href="http://crasche.com/">http://crasche.com/</a></span></span></b></span></span><span style="font-family: Times,"Times New Roman",serif;"><span style="color: #674ea7;"></span></span><span style="font-size: large;"><b><span style="font-family: Times,"Times New Roman",serif;"><span style="color: #674ea7;"><br />The Cute bear Brett has with him at the hospital was a gift from CeCe Cares:<br /><a href="https://www.cececares.org/">https://www.cececares.org/</a></span> <span style="color: #674ea7;"><br /><br />The wonderful totes, bears and awesome T-Shirts came from<span style="font-size: large;">:</span></span></span><a href="http://www.epilepsyawarenessday.org/"><span style="font-family: Times,"Times New Roman",serif;"><span style="color: #674ea7;"><br />http://www.epilepsyawarenessday.org/</span></span></a></b></span><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-37989115153566502002013-11-05T10:42:00.001-06:002013-11-05T11:11:56.703-06:00Feeling Lost in Familiar Territory...<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">As a parent in my younger years, I would worry about such different things. Even without considering Epilepsy, life was different then. I remember my oldest child being so clean. Never letting her experience getting dirty, playing in the mud or even splash in a puddle. There is clear photo evidence that with my second oldest child, I relaxed as a parent and he did get dirty. I am pretty sure that my third child was the first to actually play in the mud and when they all played blissfully, sitting joyfully in a big mud puddle waist deep... I learned that it does indeed come off. By the time Brynn, our fourth child was born just about anything was game. It was like I had a different kind of child. He would spend hours playing in the dirt with his trucks. He was all over the place... so much energy... so much determination... He would literally fall asleep standing up and wake up running. When Brett came along I clearly remember thinking that he too was in Bryan's league. He had that same hyper, curious look in those same big blue eyes from early on. </span></span></div>
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">Ah, those blissful days of not knowing what was going on… </span></span><br />
<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #660000; font-size: large;"><br /></span></span>
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px;"><span class="Apple-style-span" style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>It is the Lord who goes before you. He will be with you; he will not fail you or forsake you. Do not fear or be dismayed. </i></span></span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px;"><span class="Apple-style-span" style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>(Deuteronomy 31:8)</i></span></span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; font-family: Arial; font-size: small;"><span class="Apple-style-span" style="color: #660000;"><br /></span></span>
<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">I watch and listen in the quiet of the night… </span></span><br />
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">A jerking hand, a leg twitching… a gasp, snort, giggle, a moan or grunt… </span></span></div>
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">Things I would have never heard 3 years ago take on a whole new meaning. Listening and watching… hand raises, eyes open, pupils dilate… Will he pick at the blanket? Will he chew a hole in his inner cheek or will it be his toungue? Will it stop or will it go on? I feel like I am reliving a nightmare. It is so much worse when you already know what can happen. I don’t want to watch, I just want it to go away. I don’t want to see his sparkle taken away. I am out of my comfort zone. </span></span></div>
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">Feeling lost in a place I have never been before, yet it feels familiar...</span></span><br />
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<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px;"><span class="Apple-style-span" style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>The Lord is a refuge for the oppressed, </i></span></span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px;"><span class="Apple-style-span" style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>a stronghold in times of trouble. (Psalm 9:9-10)</i></span></span><br />
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">Just like in my early days of Motherhood when I thought I knew it all… Here I am once again, questioning all I know and learning more about Epilepsy and seizures than I thought possible. I found out after the first two children that playing in dirt was actually good for them. Who knew that getting dirty actually was healthy for children? I found out with Brett’s diagnosis that a simple Partial seizure can be just as frightening as a Complex Partial. I found out too that I don’t know as much as I thought I did about Seizures. For the first time in a long time, I find myself questioning what I have missed in Brynn. Brett is teaching me so much about seizures that do not have stiffening, shaking or postering involved. Visual disturbances, floating and odd feelings seem to be a big part of his days. </span></span><br />
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<span class="Apple-style-span" style="color: #660000; font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi30Kdvvbg0fOOBbs1hat8QCWh0yMpdnZXboe7maRaLJLaixhl0sjprMN2Zm4zlfWVpcBMJ2peJvo1MmRne1IJNPtXpDtNaSK72olYCWum4wNpi-Svp6QYBQtVvRDyOZGr3FUBD0uRVhTze/s1600/epilepsy+warrior+boys3974885_n.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="146" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEi30Kdvvbg0fOOBbs1hat8QCWh0yMpdnZXboe7maRaLJLaixhl0sjprMN2Zm4zlfWVpcBMJ2peJvo1MmRne1IJNPtXpDtNaSK72olYCWum4wNpi-Svp6QYBQtVvRDyOZGr3FUBD0uRVhTze/s400/epilepsy+warrior+boys3974885_n.jpg" width="400" /></a></span></div>
<span class="Apple-style-span" style="color: #674ea7; font-size: large;">Who knew a child could feel this way and they actually think it’s normal? I would like to go back someday to those giddy days of parenthood when my heart didn’t skip a beat every time I heard an odd sound through the monitor. I honestly don’t remember what it’s like not waiting for the big one… To softly, gently drift off to sleep without a worry, besides how to remove the dirt from that new Elmo shirt. Epilepsy has stolen a lot from our family. It has stolen parts of Brynn that we can't get back. It has stolen time, laughter, peace... I can only pray that whatever this is can be stopped in Brett. My heart hurts looking at his sparkle flickering... It hurts to even think that seizures could at any moment take his sparkle away... It's like watching a train move slow motion straight for a mountain... when you can't see the opening. I cry out to the Father, please let that opening be there, please don't let this do to Brett what it did to Brynn. Daily, I struggle to keep it positive, no matter what... I did find out how to remove the mud from that new Elmo shirt. Just a long soak in the sink and it was gone. Much like that mud stain, it will take time to let Brett's diagnosis sink in and become clear. Likely, Much time will pass before we have full answers and prayerfully one day we will all be able to not worry about seizures... I have never had a sense of direction. When I get lost I have no way of determining where I am or how to get where I need to be. Recently, this led to me being lost for an hour in one smaller part os a larger city, thinking I was somewhere else. In this situation, the worst thing you can do is keep driving. Without assistance from anyone, you make it worse by getting further disoriented and likely driving away from the solution. Looking at the map when I got home, it was easy to see what I had done. Such is our Epilepsy journey. With a great Doctor, Brynn's history and Brett's diagnosis we will have to work together to try to get this figured out and be where we need to be. I don't just want to know the genetic side of things, now I "need" to know. Most of all I will be depending on God to keep us sane in the process. It's a scary place to be... but with God's strength, mercy, grace and peace we can too get through this. </span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; font-family: Arial;"><span class="Apple-style-span" style="color: #660000;"><br /></span></span>
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px;"><i><span class="Apple-style-span" style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;">Hear my cry, O God; listen to my prayer. From the ends of the earth I call to you, I call as my heart grows faint; lead me to the rock that is higher than I. For you have been my refuge, a strong tower against the foe. I long to dwell in your tent forever and take refuge in the shelter of your wings. (Psalm 61:1-4)</span></i></span><br />
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-family: Georgia, 'Times New Roman', serif; font-size: x-large;"><b>November is Epilepsy Awareness Month.</b></span></span></div>
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="color: #674ea7; font-size: large;">If you would like to send Brynn and Brett a card or a letter, email me at:</span></span></div>
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<span class="Apple-style-span" style="color: #674ea7;"><span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="font-size: large;"> PrayerOfFaith4u @ gmail . com </span></span><span class="Apple-style-span" style="font-size: large; letter-spacing: 4px;">(no spaces) </span></span></div>
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<span class="Apple-style-span" style="color: #674ea7; font-size: large; letter-spacing: 4px;">with "Epilepsy Warrior Boys" in the subject and I will send you our P.O. Box address.</span><br />
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="font-size: large;">If you would like to know more about this newly revealed seizure type for us, (Simple Partial) this is a great resource: </span></span></div>
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<span style="letter-spacing: 4.1px;"><span class="Apple-style-span" style="font-size: small;"><a href="https://www.epilepsyfoundation.org/aboutepilepsy/seizures/partialseizures/simplepartial/">https://www.epilepsyfoundation.org/aboutepilepsy/seizures/partialseizures/simplepartial/</a></span></span><br />
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<span style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large; letter-spacing: 4.1px;"><span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; letter-spacing: normal;"><i>Peace I leave with you; my peace I give you. </i></span></span><br />
<span style="color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large; letter-spacing: 4.1px;"><span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; letter-spacing: normal;"><i>I do not give to you as the world gives. </i></span></span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>Do not let your hearts be troubled and do not be afraid. </i></span><br />
<span class="Apple-style-span" style="-webkit-border-horizontal-spacing: 2px; -webkit-border-vertical-spacing: 2px; color: #990000; font-family: Times, 'Times New Roman', serif; font-size: large;"><i>(John 14:27)</i></span></div>
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com0tag:blogger.com,1999:blog-4380024808238497867.post-51472671229014211642013-10-19T15:29:00.002-05:002016-04-14T22:13:46.959-05:00Birthdays and Bittersweet Realities... and what I have learned... <div dir="ltr" style="text-align: left;" trbidi="on">
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<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>Tomorrow is Brynnon's 14th Birthday!!!</b></span><br />
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>On this day it was at 2 AM exactly 3 years ago that my life changed forever. Brynon had experienced his first known 5+ minute Tonic Clonic Seizure in Jan. 2009. We were told that everyone is allowed one seizure and he wouldn't have a seizure while sleeping again, it was very rare. We were also told it would be very unlikely that he would ever have a seizure again if he remained seizure free for a few weeks. After a year, we could no longer worry... </b></span><br />
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<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>Three years ago.... Brynn requested to sleep on the sofa bed that night after a friend had come for the weekend and gone home. As I sat blissfully nursing Abigail in the early morning hours... Brynn peacefully sleeping on the sofa bed. I saw him look at me, his face filled with terror. I called his name and his eyes rolled back as his body flexed and stiffened. I cried out to God and kept calling his name with no response... His lips turned blue as time seemed to stand still... I screamed for anyone in the house to come to no avail... </b></span></div>
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<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I placed Abigail down and turned him to his side as his body violently convulsed... </b></span></div>
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<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>Mouth foaming and the painful reality that had I not let him sleep on that sofa bed, </b></span><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I may have never known... 911 was called... still not breathing... </b></span></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>Fire engine came just as he was entering the postical stage </b></span><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>and his body in a deep sleep finally starting to breathe... </b></span><br />
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>The intense Fear of the unknown was overwhelming... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiI2CKOKJadRR9JhwRDSXPvJoMwm83McyWjahqaDeS4Q5lgqDsngbhL_4AFu_PguLr_jfLdbdUYFT3lsCL1lhYHYZZxMFtu0S6HoxSLIMGjx69oeEsSFZdLJz9Bl6vIhbMh8t-GpFq9CE-n/s1600/Brynnon+and+Brett+doing+Dirty+Work%252C+LOL.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiI2CKOKJadRR9JhwRDSXPvJoMwm83McyWjahqaDeS4Q5lgqDsngbhL_4AFu_PguLr_jfLdbdUYFT3lsCL1lhYHYZZxMFtu0S6HoxSLIMGjx69oeEsSFZdLJz9Bl6vIhbMh8t-GpFq9CE-n/s200/Brynnon+and+Brett+doing+Dirty+Work%252C+LOL.jpg" width="200" /></b></span></a><span class="Apple-style-span" style="font-size: large;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b>I watched Brynn sleep for several months on that sofa bed and began to identify different seizure types. I learned fairly quickly that he was seizing almost every night and that not all seizures were Tonic Clonic. In the year that followed I researched and learned more about Epilepsy than I had ever believed possible. </b></span><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b>I learned too that Moms have an instinct that no one else has when it comes to their precious children. I also learned that this wasn't a simple take your medicine and it will go away issue.</b></span></span></div>
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<b style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="font-size: large;"><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH4hHfBo0VQpHAPFVKmDKm9M9y9WTirCCQTFoP8tzV-UNz7QYhORlcUkQdPe8YMYn1r1v_pu8-v_8u1aHMjzpUSwVe-SUzDJW-hgO7o4bS8dVvbyvAXyTsmUo4E6noF5FdDnFgSGzvTkRK/s200/IMG_20111128_202449.jpg" width="200" /></span></b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWeG7XlTpeuQaGKc41FVYh2JXDCZX0xT_H6fd16lwDlVEZL3LyevK8WEykX3DAo_78HTE2mIdJtBeYNiVqnVbRinkaeA7eypwQeD5OTi65VGgTmTOoSxj3NQnedfHvMZhrkID_FAZNJfKF/s1600/IMG_20110912_204203.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgWeG7XlTpeuQaGKc41FVYh2JXDCZX0xT_H6fd16lwDlVEZL3LyevK8WEykX3DAo_78HTE2mIdJtBeYNiVqnVbRinkaeA7eypwQeD5OTi65VGgTmTOoSxj3NQnedfHvMZhrkID_FAZNJfKF/s200/IMG_20110912_204203.jpg" width="150" /></b></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH4hHfBo0VQpHAPFVKmDKm9M9y9WTirCCQTFoP8tzV-UNz7QYhORlcUkQdPe8YMYn1r1v_pu8-v_8u1aHMjzpUSwVe-SUzDJW-hgO7o4bS8dVvbyvAXyTsmUo4E6noF5FdDnFgSGzvTkRK/s1600/IMG_20111128_202449.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><br /></b></span></a><span class="Apple-style-span" style="font-size: large;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><span class="Apple-style-span">This was a fight for answers battle that continues to this very day. My sweet little boy said he wanted to die with the first med... the second helped but did not give complete control... I went for a second opinion when the neurologist he was seeing wouldn't answer phone calls and didn't even take the time to read his 24 hour Video EEG before our visit 2 weeks after the test. The New Neurologist hit the nail on the head before any testing was even done, based on seizure history, Neuropsychologist report and all his medical files that were sent before the appointment "I believe your Son has Malformations of the Cerebral Cortex." We did his fourth Video </span><span class="Apple-style-span">EEG and it was confirmed, the prior neurologist was completely missing some important information. The third medication had the same effect, helped but wouldn't completely make the seizures go away</span><span class="Apple-style-span">Another EEG confirmed that Brynnon is "Refractory and his EEG's looks like Encephalopathy."</span></b></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH4hHfBo0VQpHAPFVKmDKm9M9y9WTirCCQTFoP8tzV-UNz7QYhORlcUkQdPe8YMYn1r1v_pu8-v_8u1aHMjzpUSwVe-SUzDJW-hgO7o4bS8dVvbyvAXyTsmUo4E6noF5FdDnFgSGzvTkRK/s1600/IMG_20111128_202449.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"></span></a><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><span class="Apple-style-span"> Fourth and fifth medications had the same effect... Refractory or Intractable Epilepsy means that medications either do not work well or do not work at all in treatment and prevention of seizures. Sadly, about 1/3 of all Epilepsy Patients will become Refractory at some point. In Brynnon's case, long term untreated seizures likely caused him to remain refractory. I have experienced a lot of pain in the past three years... but I have learned so much about myself in the process. I have learned too that Abba Father certainly knows exactly what we need and when we need it. I have learned to dance in the rain of uncertainty as well as how to let go of things that I have no control of. Most of all, I think I have learned that ignorance may be bliss, but it also can be dangerous. I am forever grateful to God for giving me the strength to move forward... I am also thankful for everything else I have learned... </span></b></span></span><br />
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyQ7S_fergMDB16JID7sqZYoRjneroYuQ74VtGSEvrvFKV0duS89aS3HU9Zh8vzvPAtbHSRt0cyS9E8w23mJf1_eSWaI_lOz7Aq_LJox4w4Y3HvrF7c2AEYndrQ5VNQe46X_tGVS1HalOV/s1600/seizure+effects64902_o.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyQ7S_fergMDB16JID7sqZYoRjneroYuQ74VtGSEvrvFKV0duS89aS3HU9Zh8vzvPAtbHSRt0cyS9E8w23mJf1_eSWaI_lOz7Aq_LJox4w4Y3HvrF7c2AEYndrQ5VNQe46X_tGVS1HalOV/s200/seizure+effects64902_o.jpg" width="119" /></a><span class="Apple-style-span"> I have learned what Seizure Sick looks like... </span></b></span><br />
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<b style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQz1io9ss9ai9knCM9jyEjJEZ8nS-62Ulo8hOqigdq2eSKrc8aDbWbEEWr4kZxbYK1N24QKIqhkfWmvIbpRm0EljmOcGLabT-X8TjTJYJiaNsr3Tw1LP1lXp_op7ldFqAlaPxrlt4bnm5C/s200/Oct8_n.jpg" width="156" /></b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhQz1io9ss9ai9knCM9jyEjJEZ8nS-62Ulo8hOqigdq2eSKrc8aDbWbEEWr4kZxbYK1N24QKIqhkfWmvIbpRm0EljmOcGLabT-X8TjTJYJiaNsr3Tw1LP1lXp_op7ldFqAlaPxrlt4bnm5C/s1600/Oct8_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg3U0IYD0hxFcd9uivNdfmpaVpOh3ACoKWkq_l9iGspXLGJgOMswS4vU46a_fzMZw0gtP6ZzdjdvxU4xmD4aSnBsvBaGh4-wfNLbVTHLDtrYsf8xMfl6-5J2RX6M2Fw66t8o7dmcmXaR1Hl/s1600/OCT9_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b></b></span></a><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"></span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQIFUgy_Tt-puU0dLnAyawB6GT4eK7mEFLHRPsZHkp9qotgBb1Cy1EqK8Nrk53CDRQpPwa9wrMdG_0Uf3DGKJMULRc2w3A6D6AOfQaqwPNcUuD39Sfd0tJkNgdHMhYDnBlRkNt2s1Is3N-/s1600/brynn323748518_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><br /></b></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjyQ7S_fergMDB16JID7sqZYoRjneroYuQ74VtGSEvrvFKV0duS89aS3HU9Zh8vzvPAtbHSRt0cyS9E8w23mJf1_eSWaI_lOz7Aq_LJox4w4Y3HvrF7c2AEYndrQ5VNQe46X_tGVS1HalOV/s1600/seizure+effects64902_o.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><br /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned what the VNS can do, as well as what it cannot do... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgKqlWiqVSrYYi8F0O3kT_3IPt7fVtb39TRyW0kjvzXzlfBxOdwpeJq9gjuUXJmxB5pVd7VGxhK5SXbOJbQ3ERP4eKwOwKxVr662Ns05GIjM3yhgAKiZJCrchqSZzXEmdWkHMSP2UQe0No/s1600/WAIT84298123_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="131" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhgKqlWiqVSrYYi8F0O3kT_3IPt7fVtb39TRyW0kjvzXzlfBxOdwpeJq9gjuUXJmxB5pVd7VGxhK5SXbOJbQ3ERP4eKwOwKxVr662Ns05GIjM3yhgAKiZJCrchqSZzXEmdWkHMSP2UQe0No/s200/WAIT84298123_n.jpg" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that you have to work hard for the things you need, and depending on other people is not a good idea.... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwCEUixZgezC6OeEJUt_pIHAaBTctWC1tpS1FfoTF3mMe6rr0Zs0XMLdpsp1AS4q2aa5wLuwax-d7qe5vcWeXYU-c9ox3X74v1KfAExFGzxK1PJPlvBb3Y4FzwFqwz6GCzc7ZBnWt8o9z-/s1600/543832_10201586627884789_1701196779_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhwCEUixZgezC6OeEJUt_pIHAaBTctWC1tpS1FfoTF3mMe6rr0Zs0XMLdpsp1AS4q2aa5wLuwax-d7qe5vcWeXYU-c9ox3X74v1KfAExFGzxK1PJPlvBb3Y4FzwFqwz6GCzc7ZBnWt8o9z-/s200/543832_10201586627884789_1701196779_n.jpg" width="155" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that even even a medical professional saying the "R word" can be painful... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimUwwdYEdhIrX8Fxi-FU2WOf2LQ66nCOlPvbuCTmosIy2AVFjJPX5SbfMXRc2ev4c-YMPka6InytlKQn061XXPFmjLy8JvhI0Byq0HN8B3-Wgnxs7hUmywK11vZFq9WkDG7ROrztPdK2-V/s1600/1148797_10201586625764736_1207838460_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEimUwwdYEdhIrX8Fxi-FU2WOf2LQ66nCOlPvbuCTmosIy2AVFjJPX5SbfMXRc2ev4c-YMPka6InytlKQn061XXPFmjLy8JvhI0Byq0HN8B3-Wgnxs7hUmywK11vZFq9WkDG7ROrztPdK2-V/s200/1148797_10201586625764736_1207838460_n.jpg" width="150" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that some seizures are invisible... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVCbKsKeO7rhRZgdjVEtI6HLDUotLY5AfNSSTBa2iX-e-YoX53u_9dewpAxpN49O3rL0TJQUDc2WldF4zDJXCnqz-jWubAhPyuPv7ohCh8dU8lDO6ojMpNcECIvSaO_zEdorGdn-7ZSSbV/s1600/Brett+EPilepsy7002622_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVCbKsKeO7rhRZgdjVEtI6HLDUotLY5AfNSSTBa2iX-e-YoX53u_9dewpAxpN49O3rL0TJQUDc2WldF4zDJXCnqz-jWubAhPyuPv7ohCh8dU8lDO6ojMpNcECIvSaO_zEdorGdn-7ZSSbV/s200/Brett+EPilepsy7002622_n.jpg" width="159" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that Doctors can be uneducated too... and worse, they can be wrong. Always follow your gut and demand answers... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQZs8JIAqD2KQxAwIiHB6zVOZG92I5jbwp1OxLI4jyu98hIuzQYaZGu00sKkyIrA0yfKNUZzcoVaUxATKIGh5mSNfd7jQUGEfaZYAfQAgpu5dZs46VSXT2Q3F000SgOio-dk_XQRhFopDA/s1600/Brett41_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiQZs8JIAqD2KQxAwIiHB6zVOZG92I5jbwp1OxLI4jyu98hIuzQYaZGu00sKkyIrA0yfKNUZzcoVaUxATKIGh5mSNfd7jQUGEfaZYAfQAgpu5dZs46VSXT2Q3F000SgOio-dk_XQRhFopDA/s200/Brett41_n.jpg" width="166" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that Epilepsy can affect more than one child of the same family and when it does wanting answers to WHY becomes priority more than ever before...</b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBK0x19oMhErq8_45atnKe4zKf8jHzw51W-vo1trCScR1q19umd5NmKL1BRwovETWJq2Lo9Bw4z63gy4g9Iev-M5Yi8deR_vCd0blydJ9_PZBHHrXnY3lQsdk-I0KwzQNxzEjOYBDUpHZs/s1600/BrynnBrettEpilepsyWalk743077300_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBK0x19oMhErq8_45atnKe4zKf8jHzw51W-vo1trCScR1q19umd5NmKL1BRwovETWJq2Lo9Bw4z63gy4g9Iev-M5Yi8deR_vCd0blydJ9_PZBHHrXnY3lQsdk-I0KwzQNxzEjOYBDUpHZs/s200/BrynnBrettEpilepsyWalk743077300_n.jpg" width="176" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that we may well feel like running from difficult times, and if you insist on running... Pleased do run in the right direction... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWjUGekTIyIbx48T5zzxojPMKm-LjAIoHKKSMh99ol1Bi2INCA0-QOfp2LOnt4rgPoApy8WQ-MRL4d6wO8JMTk3FyS1VMrdfVeZXzKm1dXWETH0mV4plmf37ug7u6xA8zZk-kxEPScESMA/s1600/Brynnon+%252811%2529.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWjUGekTIyIbx48T5zzxojPMKm-LjAIoHKKSMh99ol1Bi2INCA0-QOfp2LOnt4rgPoApy8WQ-MRL4d6wO8JMTk3FyS1VMrdfVeZXzKm1dXWETH0mV4plmf37ug7u6xA8zZk-kxEPScESMA/s200/Brynnon+%252811%2529.jpg" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that seizures can go unnoticed even by medical professionals without the proper test...</b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj259qwJ6KlHFtheerrUmfXBbtHZgU1eT1wqEtm-zzLALcjAL91dfAR83UX8sjjiYnUfIvmNnPfeLf0TeoyzoxE599Iz0ERLJuHxyxGNKYpuHPaPOuKaPgGBaC0FkqO8V54YkVk8S6EgXSE/s1600/DSC02954.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj259qwJ6KlHFtheerrUmfXBbtHZgU1eT1wqEtm-zzLALcjAL91dfAR83UX8sjjiYnUfIvmNnPfeLf0TeoyzoxE599Iz0ERLJuHxyxGNKYpuHPaPOuKaPgGBaC0FkqO8V54YkVk8S6EgXSE/s200/DSC02954.JPG" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that God gives us exactly what we need to get through trials and tribulation, sometimes they come in unexpected packages... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBdF14mWgyt0piCQkmBo0GO_-jreznRrJSz2CivQkBluyZj3RHtgDHr8QeqMF94EuDmTYb39EyJKTxKFS_UNCbnHyWESL2kXoda6dZv2Fj0g1-IeSnNH7F3IMRH260wu5RpZqYqpdy6hTp/s1600/DSC02932.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="180" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBdF14mWgyt0piCQkmBo0GO_-jreznRrJSz2CivQkBluyZj3RHtgDHr8QeqMF94EuDmTYb39EyJKTxKFS_UNCbnHyWESL2kXoda6dZv2Fj0g1-IeSnNH7F3IMRH260wu5RpZqYqpdy6hTp/s200/DSC02932.JPG" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that capturing smiles is a lot more fun than capturing seizures in pictures and videos... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6081l07dqwjsT4stnN55aWyJnrDY3hWlRhIKV4Wb36Lz-bLNkKsfb8FCBtN7WPHO9n1Titd4ReEdNAet3F6P93rxMdby5WbypDXm7PquCtWLiGyL-u1ysPKzoDsrCZizbq7XC37hvwo9O/s1600/DSC01456.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="133" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh6081l07dqwjsT4stnN55aWyJnrDY3hWlRhIKV4Wb36Lz-bLNkKsfb8FCBtN7WPHO9n1Titd4ReEdNAet3F6P93rxMdby5WbypDXm7PquCtWLiGyL-u1ysPKzoDsrCZizbq7XC37hvwo9O/s200/DSC01456.JPG" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that sometimes being silly is the only way to learn to smile through and fight the seizures...</b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinlpz5q1YQm5kVc4Alv5ty5n8wYxsu5f8h1eLmJOdPO9RUCBo9VYBKaA4JJTMhelkqHiTDqsSTFi6c4S2BSHzYyUBoQ2XmDI9wNC0-P2Pgf_ROXopPsXv2BkTLRrfHxgCNYvI9jwMEUEzw/s1600/DSC08091.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEinlpz5q1YQm5kVc4Alv5ty5n8wYxsu5f8h1eLmJOdPO9RUCBo9VYBKaA4JJTMhelkqHiTDqsSTFi6c4S2BSHzYyUBoQ2XmDI9wNC0-P2Pgf_ROXopPsXv2BkTLRrfHxgCNYvI9jwMEUEzw/s200/DSC08091.JPG" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that God sends special people in your life, exactly when you need them. Friendships come from unexpected people and in the midst of tremendous storms... those sweet blessings never fade from memory...</b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdm4oC_wKT-DJxlZme3UC-hrNLrs6Xu06VaP7B_r5DOHeCqHQFwTluRzBuMXHdDwuNCQpdfm6V3ecUXHc4N1UDzmX1FyZZFfNyf7-u5BHXCA0tdXmT4I0-muDcpi3BOVvQYaJStI3Fji5G/s1600/DSC07692.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhdm4oC_wKT-DJxlZme3UC-hrNLrs6Xu06VaP7B_r5DOHeCqHQFwTluRzBuMXHdDwuNCQpdfm6V3ecUXHc4N1UDzmX1FyZZFfNyf7-u5BHXCA0tdXmT4I0-muDcpi3BOVvQYaJStI3Fji5G/s200/DSC07692.JPG" width="196" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b> I have learned that a picture can tell a powerful story, but it cannot really tell the whole story... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbiqeovuMyg4ex46EnUhxPN9dHJgMRHH31neXgkNF5i-sER4HuRavPBlUdxFHR39X6ibTeflj6HC61rxEcMi-K8FfizMIyk6J7PaPr5PebIxttghPCaPRsTu91Q4Zzotz_ienKMAwmyNnU/s1600/DSC08102.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="173" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgbiqeovuMyg4ex46EnUhxPN9dHJgMRHH31neXgkNF5i-sER4HuRavPBlUdxFHR39X6ibTeflj6HC61rxEcMi-K8FfizMIyk6J7PaPr5PebIxttghPCaPRsTu91Q4Zzotz_ienKMAwmyNnU/s200/DSC08102.JPG" width="200" /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that our children will grow up to be men one day,</b></span><br />
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjST7Q_tdafq7YxHzeWpH_L3z5-mKKAwe7GMqxE26pwVmSCqLxQtrOmgmBLE0KamwT6Q993f-ig3tLs51FQkdbuqpAmeKodl8A3uZMPkcWGWh7mA_ullAYStxpT219MUm5B9lzWA7-WT1Aj/s1600/DSC08903.JPG" imageanchor="1" style="clear: right; display: inline !important; float: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="150" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjST7Q_tdafq7YxHzeWpH_L3z5-mKKAwe7GMqxE26pwVmSCqLxQtrOmgmBLE0KamwT6Q993f-ig3tLs51FQkdbuqpAmeKodl8A3uZMPkcWGWh7mA_ullAYStxpT219MUm5B9lzWA7-WT1Aj/s200/DSC08903.JPG" width="200" /></b></span></a><br />
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>and what they see they will repeat... </b></span><br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTkjRE6Rx0KlKD2I1HlrXhpq9UmK4XA8t-GXVfgN7OyaYK9hsrLo1fvjpNzzFJmrxdIR8R532nAvPl885219wK7lKwX7qvLaCSjxHiLYHz0W6N4QWw3kk3nQOvJfC9cJ-mKMwqrZp95QNi/s1600/Mommas+pics+Aug+Early+030.JPG" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><img border="0" height="200" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTkjRE6Rx0KlKD2I1HlrXhpq9UmK4XA8t-GXVfgN7OyaYK9hsrLo1fvjpNzzFJmrxdIR8R532nAvPl885219wK7lKwX7qvLaCSjxHiLYHz0W6N4QWw3kk3nQOvJfC9cJ-mKMwqrZp95QNi/s200/Mommas+pics+Aug+Early+030.JPG" width="156" /></b></span></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhH4hHfBo0VQpHAPFVKmDKm9M9y9WTirCCQTFoP8tzV-UNz7QYhORlcUkQdPe8YMYn1r1v_pu8-v_8u1aHMjzpUSwVe-SUzDJW-hgO7o4bS8dVvbyvAXyTsmUo4E6noF5FdDnFgSGzvTkRK/s1600/IMG_20111128_202449.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b><br /></b></span></a></div>
<span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>I have learned that it really is the simple things in life that brings the most pleasure and the most precious memories... </b></span><br />
<span class="Apple-style-span" style="font-size: large;"><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b><br /></b></span> </span><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIiUXyn7GHPBYaDhZ2b7VQh8dH5bugPjGOx0TnNz9o2KRi-BkLma9DcTdiWjF7k0Z1P-BxienOsh72aSL5cNwOcj9Lkbm8DNHi2bvfrnwDBtuYJODR9__fPj9QjHdA3yoN9WhhK9veeyek/s1600/1391437_10202074981173316_1562232093_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><span class="Apple-style-span" style="font-size: large;"><img border="0" height="240" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgIiUXyn7GHPBYaDhZ2b7VQh8dH5bugPjGOx0TnNz9o2KRi-BkLma9DcTdiWjF7k0Z1P-BxienOsh72aSL5cNwOcj9Lkbm8DNHi2bvfrnwDBtuYJODR9__fPj9QjHdA3yoN9WhhK9veeyek/s320/1391437_10202074981173316_1562232093_n.jpg" width="320" /></span></a><span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif; font-size: large;"><b>The past three years have brought a roller coaster ride that I never wanted to get on. I fought and cried to get off many, many times... but as everyone does, I had to learn that everyone has their own journey. It doesn't matter what your journey brings, it matters where it takes you. Trying to remain focused on the positive in any situation helps keep peace in the midst of the most terrifying storms. Strength doesn't come through cowering down, it comes through fighting through the storm, no matter how powerful it seems. I have learned many things in the past three years. Some things I had to fight for, some I had to fight through, some I wish I learned so much sooner and some still that I wish I never had to learn. I wish to thank all of you Epilepsy Warrior Mommies and Daddies... May God grant all you other Epilepsy Warrior Parents the strength to continue to push through. Your love and support through my journey has brought me so much knowledge and wisdom as well as strength. </b></span><br />
<b><span class="Apple-style-span" style="color: #990000; font-family: "times" , "times new roman" , serif; font-size: large;"><i>"2 Cor. 1:<span class="Apple-style-span" style="line-height: 20px;"><span class="versetext" id="2co1-2" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">2</span> <span class="strongs" sn="5485">Grace</span> be to <span class="strongs" sn="5213">you</span> <span class="strongs" sn="2532">and</span> <span class="strongs" sn="1515">peace</span><span class="strongs" sn="575">from</span> <span class="strongs" sn="2316">God</span> <span class="strongs" sn="2257">our</span> <span class="strongs" sn="3962">Father,</span> <span class="strongs" sn="2532">and</span> from the <span class="strongs" sn="2962">Lord</span> <span class="strongs" sn="2424">Jesus</span> <span class="strongs" sn="5547">Christ.</span> </span><span class="versetext" id="2co1-3" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">3</span> <span class="strongs" sn="2128">Blessed</span> be <span class="strongs" sn="2316">God,</span> <span class="strongs" sn="2532">even</span> the <span class="strongs" sn="3962">Father</span> of <span class="strongs" sn="2257">our</span><span class="strongs" sn="2962">Lord</span> <span class="strongs" sn="2424">Jesus</span> <span class="strongs" sn="5547">Christ,</span> the <span class="strongs" sn="3962">Father</span> of <span class="strongs" sn="3628">mercies,</span> <span class="strongs" sn="2532">and</span> the <span class="strongs" sn="2316">God</span> of <span class="strongs" sn="3956">all</span> <span class="strongs" sn="3874">comfort;</span> </span><span class="versetext" id="2co1-4" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">4</span> <span class="strongs" sn="3588">Who</span> <span class="strongs" sn="3870">comforteth</span> <span class="strongs" sn="2248">us</span> <span class="strongs" sn="1909">in</span> <span class="strongs" sn="3956">all</span><span class="strongs" sn="2257">our</span> <span class="strongs" sn="2347">tribulation,</span> <span class="strongs" sn="1519">that</span> <span class="strongs" sn="2248">we</span> may be <span class="strongs" sn="1410">able</span> to <span class="strongs" sn="3870">comfort</span> them which are <span class="strongs" sn="1722">in</span> <span class="strongs" sn="3956">any</span> <span class="strongs" sn="2347">trouble,</span> <span class="strongs" sn="1223">by</span> the <span class="strongs" sn="3874">comfort</span><span class="strongs" sn="3739">wherewith</span> <span class="strongs" sn="3870">we</span> <span class="strongs" sn="846">ourselves</span> are <span class="strongs" sn="3870">comforted</span> <span class="strongs" sn="5259">of</span> <span class="strongs" sn="2316">God.</span> </span><span class="versetext" id="2co1-5" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">5</span> <span class="strongs" sn="3754">For</span> <span class="strongs" sn="2531">as</span> the <span class="strongs" sn="3804">sufferings</span> of <span class="strongs" sn="5547">Christ</span> <span class="strongs" sn="4052">abound</span> <span class="strongs" sn="1519">in</span> <span class="strongs" sn="2248">us,</span> <span class="strongs" sn="3779">so</span><span class="strongs" sn="2257">our</span> <span class="strongs" sn="3874">consolation</span> <span class="strongs" sn="2532">also</span> <span class="strongs" sn="4052">aboundeth</span> <span class="strongs" sn="1223">by</span> <span class="strongs" sn="5547">Christ.</span> </span><span class="versetext" id="2co1-6" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">6</span> <span class="strongs" sn="1161">And</span> <span class="strongs" sn="1535">whether</span> we be <span class="strongs" sn="2346">afflicted</span> , it is <span class="strongs" sn="5228">for</span> <span class="strongs" sn="5216">your</span> <span class="strongs" sn="3874">consolation</span><span class="strongs" sn="2532">and</span> <span class="strongs" sn="4991">salvation,</span> <span class="strongs" sn="3588">which</span> is <span class="strongs" sn="1754">effectual</span><a href="http://www.blogger.com/blogger.g?blogID=4380024808238497867" name="a"></a> <span class="strongs" sn="1722">in</span> the <span class="strongs" sn="5281">enduring</span> of the <span class="strongs" sn="846">same</span> <span class="strongs" sn="3804">sufferings</span> <span class="strongs" sn="3739">which</span> <span class="strongs" sn="2249">we</span> <span class="strongs" sn="2532">also</span> <span class="strongs" sn="3958">suffer</span> : or<span class="strongs" sn="1535">whether</span> we be <span class="strongs" sn="3870">comforted</span> , it is <span class="strongs" sn="5228">for</span> <span class="strongs" sn="5216">your</span> <span class="strongs" sn="3874">consolation</span> <span class="strongs" sn="2532">and</span> <span class="strongs" sn="4991">salvation.</span> </span><span class="versetext" id="2co1-7" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="versenum" style="margin-bottom: 0px; margin-left: 0px; margin-right: 3px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;">7</span> <span class="strongs" sn="2532">And</span> <span class="strongs" sn="2257">our</span> <span class="strongs" sn="1680">hope</span> <span class="strongs" sn="5228">of</span> <span class="strongs" sn="5216">you</span> is<span class="strongs" sn="949">stedfast,</span> <span class="strongs" sn="1492">knowing</span> , <span class="strongs" sn="3754">that</span> <span class="strongs" sn="5618">as</span> ye <span class="strongs" sn="2075">are</span> <span class="strongs" sn="2844">partakers</span> of the <span class="strongs" sn="3804">sufferings,</span> <span class="strongs" sn="3779">so</span> shall ye be <span class="strongs" sn="2532">also</span> of the</span></span><span class="Apple-style-span" style="line-height: 20px;"><span class="versetext" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="strongs" sn="3874">consolation."</span></span></span></i></span></b><br />
<span class="Apple-style-span" style="color: #333333; font-family: "arial"; font-size: 14px; line-height: 20px;"><span class="versetext" style="display: inline; margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span class="strongs" sn="3874"><br /></span></span></span> <span class="Apple-style-span" style="color: #990000; font-family: "georgia" , "times new roman" , serif;"><b>~Denise</b></span><br />
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Anonymoushttp://www.blogger.com/profile/10845235860827934198noreply@blogger.com2tag:blogger.com,1999:blog-4380024808238497867.post-37094058785117062062013-09-26T14:05:00.004-05:002013-09-26T21:23:53.462-05:00Epilepsy Storms<div dir="ltr" style="text-align: left;" trbidi="on">
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<span style="font-size: large;"><b><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBnc5N-COSI0MO7afVbzfano8DH6w_eaZHiGNVRLJANw3WFLYu7Hl8mNcPPIF7eflZx77vF-MU6V6XXBJNzxIjGhWwTlyYUF8Yivr4pwg8tU_-LX4A_r7k3QILlh8xiJjTFG26pZ2lj0Ve/s1600/FEAR1051_1133291669_n.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjBnc5N-COSI0MO7afVbzfano8DH6w_eaZHiGNVRLJANw3WFLYu7Hl8mNcPPIF7eflZx77vF-MU6V6XXBJNzxIjGhWwTlyYUF8Yivr4pwg8tU_-LX4A_r7k3QILlh8xiJjTFG26pZ2lj0Ve/s320/FEAR1051_1133291669_n.jpg" width="320" /></a></b></span></div>
<span style="font-size: large;"><b> September<span style="font-size: large;">... not even over and it has been a month. I took Brett to a local Dr. and sh<span style="font-size: large;">owed them <span style="font-size: large;">a video of him I captured while <span style="font-size: large;">recording</span> Brynn having a seizure. Could be Parasomnias, could be seizures hard to tell... So we were referred to Children's Hospital to let a Neuro view it. Due to Brynn's history, it was decided to do a sleep deprived EEG first and order a 2 day once insurance approved it. </span></span>I took Brett to Children's Hosp<span style="font-size: large;">ital <span style="font-size: large;">to have a Sleep <table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: right; margin-left: 1em; text-align: right;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWHAnJkt9MqPSjHsHG22rq_MgYi2NSbLw60tMbdSQYy8cPuYHgFUUWWos4sHWWINxqZCxfk_D5Xodk6yG4qr9gDUZ1IPGeWMINlfqiYZOno4RXMB8oODwHo8wGX4bUBIS-KMx98q_drS6B/s1600/BrettChildren%2527s909922274_n.jpg" imageanchor="1" style="clear: right; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiWHAnJkt9MqPSjHsHG22rq_MgYi2NSbLw60tMbdSQYy8cPuYHgFUUWWos4sHWWINxqZCxfk_D5Xodk6yG4qr9gDUZ1IPGeWMINlfqiYZOno4RXMB8oODwHo8wGX4bUBIS-KMx98q_drS6B/s320/BrettChildren%2527s909922274_n.jpg" width="241" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Brett at Children's</b></td></tr>
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Deprived EEG on the 17th. I knew what I saw... Had no doubt that something was<span style="font-size: large;"> wrong as soon as <span style="font-size: large;">he fell asleep<span style="font-size: large;">. When the <span style="font-size: large;">Technion</span> got up and placed an extra wire on him in a precise area, I kn<span style="font-size: large;">ew... Well, let me tell you...<br /> <table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBK0x19oMhErq8_45atnKe4zKf8jHzw51W-vo1trCScR1q19umd5NmKL1BRwovETWJq2Lo9Bw4z63gy4g9Iev-M5Yi8deR_vCd0blydJ9_PZBHHrXnY3lQsdk-I0KwzQNxzEjOYBDUpHZs/s1600/BrynnBrettEpilepsyWalk743077300_n.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgBK0x19oMhErq8_45atnKe4zKf8jHzw51W-vo1trCScR1q19umd5NmKL1BRwovETWJq2Lo9Bw4z63gy4g9Iev-M5Yi8deR_vCd0blydJ9_PZBHHrXnY3lQsdk-I0KwzQNxzEjOYBDUpHZs/s1600/BrynnBrettEpilepsyWalk743077300_n.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Chelsea SUDEP awareness walk!</b></td></tr>
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When I saw the number on the caller ID, I took a deep breath... <br /> Turns out that 20 minutes of sleeping was enough... <br /><span style="font-size: large;"> </span>Enough to confirm he does indeed have seizures... Enough to identify a focal area (Left Parietal)<span style="font-size: large;">. <span style="font-size: large;">He was started on Keppra. The two day EEG is not even needed to confirm<span style="font-size: large;">, no dou<span style="font-size: large;">bt ab<span style="font-size: large;">out it he has Epilepsy. <br /> I was so mad that yet again a child was overlooked, ignored and medically neglected by Physicians. <br />I am so grateful that this one listen<span style="font-size: large;">ed ..</span></span></span></span></span></span></span></span></span></span></span></span></span></b></span><br />
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<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj28PfF6vNpm6itaQ-Xwe3q8jPuLZkTCNpea_s24oGNR-uVt0JiQ-DrPKfGT6CxksV2dorSuwLnZe5tt42_zixs_GaksKkQF_TnNsAIuOGrl4gccQ7TGujhC1mr1Y11ciBnmRYZakNjxbb-/s1600/epilepsy_awareness_hope_love_cure_s.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj28PfF6vNpm6itaQ-Xwe3q8jPuLZkTCNpea_s24oGNR-uVt0JiQ-DrPKfGT6CxksV2dorSuwLnZe5tt42_zixs_GaksKkQF_TnNsAIuOGrl4gccQ7TGujhC1mr1Y11ciBnmRYZakNjxbb-/s320/epilepsy_awareness_hope_love_cure_s.jpg" width="320" /></a></span></span></span></b></div>
<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">
and confirmed that yes, he did need to be sleeping to get an accurate EEG</span>. I am so upset, that he has suffered needlessly because that <span style="font-size: large;">Pediatrician would not listen. I do not have all the details yet, but his MRI was okay. He does have dilated <span style="font-size: large;">blood vessels in the top part of his brain and there are blotches in them. I don't know what this means, but it is <span style="font-size: large;">recommended</span> that he have a follow up MRI. The neuro said that this doesn't have anything to do with his seizures <span style="font-size: large;">and is not the cause of them</span>.</span></span></span></span></b><span style="font-size: large;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span data-ft="{"tn":"K"}" data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0].[0]"><br /></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span><br />
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<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span data-ft="{"tn":"K"}" data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0].[0]"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIb96B7XYxKlkgMU-cQ_U4cm1N7y3DfkETiZfrbw0KXji_fPIB1ND8c1mLB3-Z4NruQjFUJzDlI0x4S3lc146FDL3djVRS6DDHgJKJL2pDi4-4dZ5l6ynQkOf98GVdTx22D2qz7F9ouTHb/s1600/acceptance+quotes.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="219" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjIb96B7XYxKlkgMU-cQ_U4cm1N7y3DfkETiZfrbw0KXji_fPIB1ND8c1mLB3-Z4NruQjFUJzDlI0x4S3lc146FDL3djVRS6DDHgJKJL2pDi4-4dZ5l6ynQkOf98GVdTx22D2qz7F9ouTHb/s320/acceptance+quotes.jpg" width="320" /></a></span></span></span></span></span></span></b></div>
<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span data-ft="{"tn":"K"}" data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0].[0]">
I
have a hard time facing and getting through the fear that Brett has the
same thing as Brynn and where this will go. I have already <span style="font-size: large;">lost precious pieces</span> of one little boy<span style="font-size: large;">... </span><br />I only get to see a little
sparkle of the boy he once was randomly over days, weeks and
months... <span style="font-size: large;"></span><br /><table cellpadding="0" cellspacing="0" class="tr-caption-container" style="float: left; margin-right: 1em; text-align: left;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjU9i_CfJ6_P6h1vq6L2jn43oxBuGrAZAfUqpv_YesE66BVWl1kIka2mysnbw4ryjDat-h8sMo191Gyd-1sgoE6RQHSRxLjhbyIMg01qz32Z3nvs3ITxm-6b8y9Y2GpXm9DDQAEl9T4_DOX/s1600/th_DSC04580.jpg" imageanchor="1" style="clear: left; margin-bottom: 1em; margin-left: auto; margin-right: auto;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjU9i_CfJ6_P6h1vq6L2jn43oxBuGrAZAfUqpv_YesE66BVWl1kIka2mysnbw4ryjDat-h8sMo191Gyd-1sgoE6RQHSRxLjhbyIMg01qz32Z3nvs3ITxm-6b8y9Y2GpXm9DDQAEl9T4_DOX/s1600/th_DSC04580.jpg" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Brynnon 2009</b></td></tr>
</tbody></table>
</span></span></span></span></span></span></b><span style="font-family: Georgia,"Times New Roman",serif;"><span data-ft="{"tn":"K"}" data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3]" style="font-size: large;"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0].[0]"><span data-ft="{"tn":"K"}" data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0]"><span data-reactid=".r[1g011].[1][4][1]{comment714198115260195_717651621581511}.[0].{right}.[0].{left}.[0].[0].[0][3].[0].[0]">Like glitter falling....<br /> Pieces of him disappear....</span></span></span></span></span></span></span><span style="font-size: large;"><span style="font-family: Georgia,"Times New Roman",serif;"><br />The winds of
seizures....<br />Just take his sparkles away.... <br />They steal his memories and they steal his laughter... </span><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><br />Brynn's seizure count by the 17th was 16, almost his whole total August seizure count<span style="font-size: large;">. </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span>We have just raised Brynn's Onfi to hi<span style="font-size: large;">s max. <span style="font-size: large;">On to the next drug once this honeymoon phases out as he is now maxed out on all three drugs again<span style="font-size: large;">...</span> <span style="font-size: large;"> seizure count by the 17th was 16, almost his whole August seizure count in mid mont<span style="font-size: large;">h. I know this will get easier over ti<span style="font-size: large;">me, just harder with Brett<span style="font-size: large;">. <span style="font-size: large;">I didn't know anything about seizures or Epilepsy with Brynn. Now I not only know, I also know </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span><br />
<div class="separator" style="clear: both; text-align: center;">
<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRQDJf2by-UB8YbJG4aWD3XNPYiYGleTKSLd1-MOTDnRGtx1hGjSl2IDjwCEDDuzWp0Xu3YK6r9QUI4BiqJBB54swcc5ObNLyzprnXuKfDukAc6wjeIG-_rRIQCX1Oupxx5JDmwvO5CgSz/s1600/epilepsy-tattoo.jpg" imageanchor="1" style="clear: left; float: left; margin-bottom: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgRQDJf2by-UB8YbJG4aWD3XNPYiYGleTKSLd1-MOTDnRGtx1hGjSl2IDjwCEDDuzWp0Xu3YK6r9QUI4BiqJBB54swcc5ObNLyzprnXuKfDukAc6wjeIG-_rRIQCX1Oupxx5JDmwvO5CgSz/s320/epilepsy-tattoo.jpg" width="320" /></a></span></span></span></b></div>
<b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">
what can happen. </span></span></span>I <span style="font-size: large;">can't change it, I can only accept it is what it is... </span></b><span style="font-size: large;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><b><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;"><span style="font-size: large;">We will fight this Epilepsy Monster... as we reach out for the obvious answers... Why Brett and Bry<span style="font-size: large;">nn? <span style="font-size: large;">Is
this Epilepsy monster waiting in the shadows to touch another of my
precious children? Where did it come from and will it be passed on by ou<span style="font-size: large;">r other children or them? </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span>I lay<span style="font-size: large;">ed in bed one night some time ago and watched as a seizure started. <div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNEFV52nYrtUU_8SxgUPkSnBlq7KLmRnKpJWR6SYccDCL4dwEgpmuJk0UwAP6GI4opWurdLo3YYIpVQqI2bQFLZzZ4CTZnVbjfbsJlYVUPASYcQbZd3qAn1VR67JqGRJ1eAnQf605lGpBq/s1600/Chelsias+Walk09081_n.jpg" imageanchor="1" style="clear: right; float: right; margin-bottom: 1em; margin-left: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhNEFV52nYrtUU_8SxgUPkSnBlq7KLmRnKpJWR6SYccDCL4dwEgpmuJk0UwAP6GI4opWurdLo3YYIpVQqI2bQFLZzZ4CTZnVbjfbsJlYVUPASYcQbZd3qAn1VR67JqGRJ1eAnQf605lGpBq/s320/Chelsias+Walk09081_n.jpg" width="240" /></a></div>
...No panic, just prayer... It <span style="font-size: large;">occurred</span> to me at that moment that a seizure is like a storm. It's like lightening in the brain causing the seizures. So I prayed "Pe<span style="font-size: large;">ace Be Still."</span></span> When I heard the song "Praise You in the storm by: Casting Crowns recently... That song took on a whole new meaning.<span style="font-size: large;"><span style="font-size: large;"> </span></span>I will praise Him in the storm... That is my Epilepsy theme song now! I will dance in the hallway while waiting for the door to open... Trying not to fear what "could" be and accepting what i<span style="font-size: large;">s at the present moment. <span style="font-size: large;"><table align="center" cellpadding="0" cellspacing="0" class="tr-caption-container" style="margin-left: auto; margin-right: auto; text-align: center;"><tbody>
<tr><td style="text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVCbKsKeO7rhRZgdjVEtI6HLDUotLY5AfNSSTBa2iX-e-YoX53u_9dewpAxpN49O3rL0TJQUDc2WldF4zDJXCnqz-jWubAhPyuPv7ohCh8dU8lDO6ojMpNcECIvSaO_zEdorGdn-7ZSSbV/s1600/Brett+EPilepsy7002622_n.jpg" imageanchor="1" style="margin-left: auto; margin-right: auto;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjVCbKsKeO7rhRZgdjVEtI6HLDUotLY5AfNSSTBa2iX-e-YoX53u_9dewpAxpN49O3rL0TJQUDc2WldF4zDJXCnqz-jWubAhPyuPv7ohCh8dU8lDO6ojMpNcECIvSaO_zEdorGdn-7ZSSbV/s320/Brett+EPilepsy7002622_n.jpg" width="255" /></a></td></tr>
<tr><td class="tr-caption" style="text-align: center;"><b>Brett Epilepsy Alert Band 9/25/13</b></td></tr>
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.............. We NEED A CURE!..............</span></span></span></span></span> </span></span></span></span></span></span></span></span></span></span></span></span></span></span></span></b></span></div>
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