The 18th is the Neurologist appointment to get the results of the 24 hour EEG. I will also bring my videos of Brett and ask about his night time events. It is bothersome, as Brynnon did the same things before he was medicated and I am very afraid that it is the same thing. Scares the crap out of me, that Brett could have the same thing wrong... I hope I am just paranoid and it's nothing... That's not what my gut says though. I hope he has better answers about what seizure types he is seeing and why his EEG was so erratic. I expected it to be normal while medicated... and I have yet to find a sleeping EEG that looks like his. I have looked at hundreds of them online... but not one looks like his. I will also be asking a lot more questions this time, as I know a lot more now. At the end of the visit I will have to tell them I need a copy of his records to bring to New Orleans for the Epilepsy clinic at Children's Hospital. I hope if nothing else they will have answers... I just need to feel secure that everything is being done that can possibly be done to prevent anymore seizures or regression. While would we are at it, I would like to know if it is or could be genetic and if Brett could possibly be showing early signs.
It is so frustrating not having the answers to so many questions, but it is exciting to think that sometime in the next month I may have most if not all of them!