I can do this, I just know I can. I forget sometimes how strong I can be, I just really need a little boost that I am missing this time around somehow. I know I am not supposed to feel this way, but it just does not seem fair. I read a Mom's comment today about what her child did, my heart ached... it ached because Brynnon is 12 and he is unable to write a complete sentence. It aches because I cannot help but feel like I have lost some of my child. This life that I have been given just seems so hard. Yesterday was Ian's birthday, taken so young... so many Birthday's missed. On the 12th it will be the anniversary of Mommas murder... reminders of how unfair it seems, and where normal kind of took a back seat. My Niece asked the other night if I ever wondered what it would be like for Momma and Ian to have never been killed, what it would be like if they were still alive. If they were still alive, I would not be the person I am today. There is strength that comes from surviving trauma that I don't think you can get any other way. However, if Momma was still here I think I would have gained strength from having her love and support over the last 20 years... I think about Momma every day... What she would be like, what she would think of this or that. I am reminded of how Momma loved "special" children. She was great at working with the children who were developmentally disabled. I like to think that she would just be so excited about all my children and would shower them with lots of love. Sadly, I know that my children are loved, but they do not have relationships with very many family members. They do not see most of them but every few years if any... I know it has a lot to do with Mommas murder and Ian's death on top of it. I just never understood how the thing that should make everyone who loved them closer, seems to drive us further apart. It has a lot to do with my inability to feel like I fit in, like I did before Momma died. Of course my running to Mississippi, Tennessee and now Cajunland surely didn't help either. I do not regret any of my decisions, except that I was bull headed when I didn't need to be and not bull headed enough when it was necessary! I am trying to get refocused and bring the necessary changes that will hopefully help in the future. Perhaps it's time to reach out to some kind of religious organization, just out of my need for some extra support and positive thinking. I am a very Spiritual person, but over time have developed a distaste for organized religion, especially the feel good preaching. After years of reading scriptures, studying Hebrew, developing my own beliefs and disregarding all man's teachings, I think it's time.
I have the appointment made for the 21st with the Office for Citizens with Developmental Disabilities. I am hoping they can help figure out a way to get Brynnon some help with the Speech/Language and other Therapy that he is going to need. I also desperately need to find help with his medical care. We are already deep in the hole owing a half months salary and we still have bills that have not been received yet. I will have to put Brett's EEg on the back burner. Since he has not had any extended seizures and just has the complex partials while sleeping, I think they will likely have a wait and see approach with him anyway. I am almost scared to get the bill from Children's Hospital after his 3-4 day stay for the Video EEG and MRI. Not knowing what the future holds for Brynnon, well that is what I am having the hardest time with. I have faced the worst and hope for the best and for now I really need to focus on the now... Living and appreciating each and every day as a gift from the Father. So here I go, looking for "Positive Changes" to help put that oomph back in my step! If I think about it really hard, I can almost hear Momma say "Denise, don't give up now your almost there!"
~Denise
I have the appointment made for the 21st with the Office for Citizens with Developmental Disabilities. I am hoping they can help figure out a way to get Brynnon some help with the Speech/Language and other Therapy that he is going to need. I also desperately need to find help with his medical care. We are already deep in the hole owing a half months salary and we still have bills that have not been received yet. I will have to put Brett's EEg on the back burner. Since he has not had any extended seizures and just has the complex partials while sleeping, I think they will likely have a wait and see approach with him anyway. I am almost scared to get the bill from Children's Hospital after his 3-4 day stay for the Video EEG and MRI. Not knowing what the future holds for Brynnon, well that is what I am having the hardest time with. I have faced the worst and hope for the best and for now I really need to focus on the now... Living and appreciating each and every day as a gift from the Father. So here I go, looking for "Positive Changes" to help put that oomph back in my step! If I think about it really hard, I can almost hear Momma say "Denise, don't give up now your almost there!"
~Denise
No comments:
Post a Comment
Thanks for visiting and reading about our world! We are always happy to hear from you!