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Monday, February 4, 2013

New Year off to a good start!




I am really liking this year so far!
Brynn's 8 week Depakene wean in COMPLETE! Only noticed an increase in small seizures and some increased daytime tiredness, which seems to be leveling off now. We are enjoying his stability seizure wise, with only 1-3 larger seizures a week. Not sure if it is the VNS or the Zonegran increase that is making it possible, I guess time will tell! Even the larger seizures he seems to bounce back from easier and have less effects afterwards. We will go back to Children's hospital next week for his VNS increase. I do
feel so much more relaxed with the last several weeks feeling so positive for Brynn. I worry when he sleeps 12-14 hours a day, but if he is not having a seizure increase I can see, I remind myself that he may just need that extra sleep. Will still discuss it with the Neurologist as we know he has seizures we cannot see also. Excited to get our tax refund in a few weeks to help fund fresh new materials for home school. I purchased McGuffy's Readers for Brynn and he seems to like them so far. A change from the Merrill Readers he has used for so long. I hope that we can bring him to at least the 1.5 level in Reading with them. We have pulled Sequential Spelling from our curriculum as well. It started with his Neuro stating in the office that if he needs assistance in any way to answer the questions (additional statements or questions) it is not counted as right. He couldn't answer where he was (Children's Hospital), What city he was in (New Orleans), What day it was or even what Month we were in. We had talked about going to the appointment on Tuesday, in New Orleans at Children's for weeks. He writes the month and day everyday in his home school. I was kind of upset at first thinking, but it's not his fault that he needs reminders or hints. It's just the way his brain works, he has to have something to tie things together. He knows New Orleans is where the Super Dome is and he knows Children's is the Hospital he goes to. After the initial shock that he couldn't answer, I was upset. I was upset because it got me thinking, well if he can only spell "should" if you give clues (Should, would, could-U should know this) then does he really know how to spell should? If you have to say anything to get the right answer, is it right? My gut ached as I realized, no it's not. It feels better to think it is, but in the real world it's wrong. If after 2+ years of giving those reminders in the AVKO Sequential Spelling he still cannot spell those words without me sounding them out for him and giving hints, I must conclude that he has not been successful with it. So we started an old Jones Spelling book. He will be given three words every Monday to dictate sentences for. I will write the sentences and he will copy and read them a few times a day. On Friday he will be given the sentences and be asked to  write them. It's his sentences, that he made up, so he will be connected to them. Hopefully, this will give better results than spelling 25 words a day has. Brett (8) is Reading at a 3rd grade level, so he will begin to use Alpha Omega LifePacs this year. He is confident and able to work independently, which will allow more time for me to work one on one with Brynn. Abigail will be working in Pre-K to keep her busy! :) I will be buying Brynn lots of work books focused heavily on inferencing, Context Clues, Writing, Punctuation and Thinking Skills. After discussing things with a teacher friend of mine, she helped me realize the reality that he is 13, and he just may never read above a first grade level. I knew this before, but I thought if we worked hard enough he would advance forward over time. He has stayed at this same exact level for almost two years now. So at this point we need to focus on fine tuning the skills that he has attained as we add more, hoping that he will retain them. Deep down inside I am a bit excited to see if this lower seizure baseline will stay as it certainly will help his cognitive function. I will be asking about Neuropsychological testing again at this visit. As it is important to know what if any impact the past seizures have had on his overall ability. 
 A real beautiful person, the swing lady I talked about before, is sending the boys and Abigail $100 gift cards to spend on clothing. What a blessing! She is also giving a $200 gift card for household stuff. I think I see a new set of pots in my future! :)

We are definitely more at peace here in MS, the air is cleaner and our minds are too! I am learning to trust in our Abba Father and lean on Him for understanding instead of fighting through all the details myself, trying to figure it all out. Learning too, that we don't have to understand every single thing, we just have to trust Him and His will in all things and know that it will all work out for His Glory. I have done all I can do, now I will stand and trust Him! He who began a good work in me, will be faithful to complete it!  ~Denise
 
   

Friday, January 4, 2013

It's Not Really "About the Backpack!"

This really amazing thing happened. This Back Pack that I so wanted Abigail to have was purchased through the generous offer of Scott Stratten, President of Un-Marketing. http://www.unmarketing.com/ He is an expert in Viral, Social, and Authentic Marketing which he calls Un-Marketing. Author of The Book of Business Awesome / The Book of Business UnAwesome. I saw a friend post about it and figured this could be fun. I had always wanted to do an Amazon wish list anyway. SO the children and I had a wonderful time creating this awesome Wish List! We posted the link on the Unmarketing facebook page as requested like the other hundreds of people. I never gave any information about our circumstances, just a simple link saying how much fun it was creating the list. The list has become in our home a target for dreams, we all have dreams don't we? I highly recommend you go ahead and go over to Amazon and create your own wish list. This is so much fun for the whole family and has brought us countless hours of wishing. Anyway, when the highly treasured Dora backpack arrived I was surprised. I had forgotten all about the link I posted. I mean that list if jam packed with wishes, how could anyone of known that Abigail (2) wanted that Backpack more than anything? It took me days to figure out this mystery. Last night, I went on Amazon looking for the hard to find Merrill Readers that Brynn does best with. Now I am not talking about the new fancy ones, no the ones that Brynnon does best with are the old ones, MERRILL LINGUISTIC READERS, A BASIC PROGRAM http://www.amazon.com/Merrill-Linguistics-Readers-Program-Skills/dp/0675013356/ref=wl_it_dp_o_pC_nS_nC?ie=UTF8&colid=2CYGA5AC07W21&coliid=I20515PZNFYTD9
and they are from 1966 of course! I have spent a lot of money on the new ones, believe me I wish he did as well with them! So, of course when I was discouraged at the availability of them... and the fact that no one has a complete set of these... I moved on to have some fun! To the Wish List! We added all sorts of fun things... Then I decided to separate the list that had grown to a few pages. Well, there it was... THE BACKPACK.... Oh my heart was racing! Could it really be that someone we do not even know purchased that Backpack? I finally saw the tab that allows you see "purchased" items from your Wish List. Sure enough when I did that, someone had indeed purchased that Backpack from Amazon, from my wish list! How amazing is that? It's more than a Backpack... it's my renewed confidence in mankind. It erased so much negativity, so much disappointment in people in general. As terrible as this sounds, I had really lost the ability to believe that people do good, without getting something in return. I am sure that it began long ago, but it was actually year before last around the holidays that I started really feeling strongly negative about giving. It was in a group setting, where iPads were being given to "Needy" families with children with Special Needs. The goal was to get to know people and pick them to nominate them to receive one. It was through this experience that I realized I was not "normal." I became facebook friends with the person I chose. Her Daughter had Autism and she was new to the group, so sympathy played a part in that decision. It was not long after that decision that I realized the extent of greed. She did not get chosen, but it wasn't about that. It started with a photo of a gaming chair that she posted a photo of, that she had purchased for her husband. I couldn't help but think to myself, dang that must be about half maybe more of an iPad right there. The pictures continued to show up games, a new game system, tons of toys... and it happened, I was then a full fledged negative person about giving. I could not for the life of me see how anyone could in good conscience go to a group like that, claiming they were in need of and could not afford an iPad with priorities like that? I mean what is important, can the average person not tell the basic human difference in NEED and WANT?
 Perhaps it was my opinion that Christmas is a horrible holiday, packed with pagan roots and the terrible displeasure of people wanting to buy to get that started this downward spiral. All my life I had heard people say, we have to buy for so and so because they will buy for us. It has become a game of who can buy the most gifts to get the most back, disgusting to say the least. I had even had someone invite me to Christmas dinner and add that they needed to know if we would be coming, because they wre only buying for my children of we were going to be there. Seriously, was that supposed to make me show up?
I was at my wits end after hearing so and so didn't buy me anything and I bought them such and such. I had watched this private group get all these gifts for a very needy little girl for her fist Christmas with a new family. What a wonderful thing right? Yeah, it was... Until it turns out that the gifts were for the woman who claimed to be helping a family in need. Ugh... how terrible is that? Apparently, this whole internet thing is FULL of people that are trying to scam people out of FREE STUFF. As the Father would have it, I cannot be as negative about all this now. That backpack has restored in me a new breath of fresh air about giving and receiving. The person who purchased that backpack may never know that Backpack was one of two new gifts that Abigail received for the Holidays, and it was the only gift that anyone besides her Sister and I bought her. She was blessed beyond measure by getting this totally awesome Dora Talking House with the people and furniture previously loved by another child. Her Sister (22) sent her a wonderful Princess Piano! Brynn and Brett got 4 airsoft BB Guns each with 6,000 plastic BB's and Brandon got a used T-shirt lot from ebay and a Foo Fighters Guitar Tab. Their Sister sent all the boys a pair of headphones. This is what we see as normal. When the older children were young times were better and we could afford to buy a  few gifts each for the children. It has been several years since we have been able to do anything like that. We celebrate Hanukkah every year. In 2005 we celebrated both and let the children decide which they would rather celebrate and Hanukkah won, so we have ever since. I hope one year to be able to buy everyone a gift for each of the eight nights. This year, the boys offered to let me spend what we had to spend on Abigail, I just couldn't not get them anything. They had a blast with those BB guns, and it turns out that if your buying cheap plastic BB guns 6,000 BB's is about all you need! The positive thing about doing things this way is, my children can tell you exactly what they got for Haunkkah this year! :) Not too many children can do that! So, with this new giving receiving attitude, I went to Amazon and entered people's names from my facebook friends list. I bought something from one of their list, just a small item and didn't really affect my bank balance. Won't they be surprised? I so love the idea of giving in secret that I have decided to randomly do this when I have an extra few dollars. I think it is a good thing for the children to take part in and we will make a tradition out of it.
“So when you give to the needy, do not announce it with trumpets, as the hypocrites do in the synagogues and on the streets, to be honored by men. I tell you the truth, they have received their reward in full. But when you give to the needy, do not let your left hand know what your right hand is doing, so that your giving may be in secret. Then your Father, who sees what is done in secret, will reward you." Matthew 6:2-4
~Denise

Tuesday, January 1, 2013

End of the year wrap up!

I have thought a lot this past week about how much we have been through this year. Some good and some not good... So let's begin with a recent good thing... A few weeks ago I got a phone call. It was a fellow Mom who I met through craigslist (of all places) about 3 years ago while expecting Abigail. I bought a swing from her. She gave me in addition to the swing bath towels, some clothes, a bouncer seat, cloth diapers, burp cloths, toys... It was a greater blessing than she could have ever realized. I was on that very day we met going for my 2nd mammogram while pregnant. I had something behind the nipple that could have been cancerous. My symptoms started soon after finding out I was pregnant. We had health insurance, but as most of you know that doesn't mean free health care. Thank Abba Father, I convinced them to wait it out and when I returned a few months later for the 3rd Mammogram it was GONE! We were overwhelmed with the medical cost, the addition of a 6th child when we were struggling with the 5 we already had. A cancer scare on top of that was just really stressful. So, needless to say this gal was a real blessing. I added her on facebook and eventually we were sharing there and over the phone. So, she calls a few nights ago and says that she wants to ask  a question. She proceeds to say, I want to do something for your family... one time, within reason, whatever your family needs most. Well, that is a question that I have never been asked. I was perplexed... I mean this is a one time thing, what do we need the most. My Husband answered it as quickly as I asked and that's the answer I gave... More than anything else, my children's greatest need is clothing and shoes. More times than not my children's clothing and shoes come from Thrift Stores. There is nothing wrong with living this way, it gets us by... but the clothes that the children have are worn and often not correctly sized. I am not sure if y'all have noticed, but through the years and brands clothing sizes change. To add to the misery of trying to clothe them this way, Brett and Brynn are "oddly" shaped and it is hard to find clothes to fit them, much less in a thrift store with only so much to choose from! My children do not get "gifts" very often from people for Holidays, much less just because. The younger four have never know the kind of Holiday gifts that the older two had. Money does not stretch like it use to and there is only so much to go around. We do try to treat them to special "gifts" when our income tax refund comes in. It's about the only time we have extra money to buy a toy, bike or a wanted item that we normally couldn't afford. We also budget carefully for the higher priced items and save accordingly. This is how we acquired Brynn's iPad, the other boys iPods and the big items we do have. We were responsible with the money from the sale of the property a few months ago and did not spend any of it frivolously, besides getting Pizza and Brynn's much desired Chili's meal :). Sadly, we did just move away from our much loved Neighbor (Jackie) who did so much for the children, she was more like a  Grandmother to them than anything they have ever known. She kept Abigail looking beautiful :) and would often buy for Brynn and even Brett. When she knew we could not afford to buy Brynn clothes and he gained so much weight with the Depakene one year to the next for Med Camp, it was Jackie who blessed Brynn with new jeans for Camp. I don't think he will ever wear another brand! Before she came into our lives, my children didn't know about receiving things from anyone but us, with the exception of a rare relative or friend here and there. I guess that is what my Momma would have done all these years or she could have gone with me to the thrift stores! I am sure if she would have still been alive I would not have strayed as far from my family and them from us as we all have. I see that in a lot of families now, I suppose it's not like it use to be for anyone anymore. Perhaps technology and the business of the world has hampered and destroyed good ole family values. Long gone are the Family bar-b-Que's of long ago, where family gathered and shared their lives, their children and their food. I tell you what, I would give anything to go back and redo the past with my family. It's so sad that one person missing from the bunch can cause such discord and separation. I will be looking forward to the children experiencing a "Pay It Forward" experience. I am sure it will be a life changing experience for them that they will cherish always. Someone that has never even laid eyes on them, other than in pictures, wants to provide them clothes... How awesome is that? In thinking about that question, it raised a lot of interesting thoughts between a "Need" and a "Want." There are lots of things that anyone would want! If I presented that question to the children Brynn would likely say a 3 wheeled motorized bike, Brett would likely say a new home computer to play games on... Brandon would likely say he doesn't know, but secretly he would want itunes or xbox stuff. My boys all know well about giving. They also know the difference between needs and wants. Brynn and Brett earn $5 a week for being good family members. This includes everything they do for cleanliness, personal hygiene, home school and helping others. Each day they fail to meet their responsibilities in any way they loose $1. This is how life works after all. It is interesting to see what they do with their own money. Brynn will often buy things from Brett. Brett will save his money, all of it... and only wants to buy memberships in "Animal Jam." There are a few things that our family needs, perhaps with the help in clothing we will be able to work on some, like dental as Brett, Brian and I all need to have some teeth pulled!      
Just when things were getting somewhat "Normal" and oddly cozy back in MS... We went back to Children's again to have Brynn's VNS adjusted. We will return in early February to do it again! Praise Abba Father, it was a very easy and productive trip. We are going to wean Depakene, tonight completes our third week!! YAY! I have wanted to try this for some time since he has been maxed out on it for a year now. So far it has been good, only side effect are more myoclonic seizures and cognitive slowing. He has always been refractory and had a "honeymoon" with medications. Once a drug is introduced, he tends to do well on it for a while staying at his "Normal baseline" of 3-4 seizures a week. Then his body gets used to it, his brain figures out a way around the med (whatever the actual cause is) and he begins a steady increase again. Onfi will be his next drug. I have good feelings based on what I have read. Since Brynn has done really well with using Klonopin for Clustering and Ativan for continuous daily clustering, I feel that another benzo may be the answer that will bring long term relief. Hey, it's hope at least... Anything is better than the dreaded "He's never going to be seizure free." I somehow get that, and even accept that now. I remember being so mad that his Neuro even said that. So frustrated that a Dr. could give up... Now I realize that his Dr. never gave up. His point was that in refractory Epilepsy, no medicine is going to stop every seizure. That is what refractory means.
Websters Dictionary Defines
REFRACTORY

1) : resisting control or authority : stubborn, unmanageable
2) a : resistant to treatment or cure
Reality is, sometimes Epilepsy is just that. "About one-third of people with epilepsy will eventually develop refractory epilepsy. This means that medicines don't work well, or at all, to control the seizures."
http://www.hopkinsmedicine.org/healthlibrary/conditions/nervous_system_disorders/refractory_epilepsy_135,5/
So, the reality it seems, is that indeed Brynn "may" never be seizure free. A miracle could happen at any moment and he could never have another seizure too. All we can do is try to alternate his medications to keep him at his baseline or better. Only Abba Father knows when he will stop seizing, I am okay with that now. I have faith that his life is in Gods hands, and I have security knowing I have done everything I can do for him. So, onward we go... into the New year 2013 may be our year. Starting over again, at least this time we are back in Mississippi. It feels peaceful here in Mississippi. There is a tranquilness in the air that touches your spirit, your heart and your mind like no other here. Things are in progress to move forward into our lives with great anticipation of a future yet to be seen and realized. I just pray that this time Abba Father will see fit to bless us with the stability and perhaps eventually, a forever home to call our own, somehow... someway... It is will great gratitude that I wake up each day here back where I feel at home. I have taken the Father's hand in a mission to go forward in dealing with the past and finding my happy place again. So I end this by saying "Happy New Year" to all of you who follow... May 2013 be the year for Truth, Justice and Healing for all! Don't forget to keep the faith and never ever take your eyes off the mark... ~Denise
   

Saturday, November 17, 2012

Dealing with the Present and the Past... 21 Years is too long...


We made the trip to New Orleans to have the settings set higher on Brynnons VNS Implant. I really wanted to visit with my Dad, who is now 78. I didn't get to meet him until 1995 in person, while expecting Brandon just before we moved to MS. As a youngster, I passed notes and to him through a cousin I went to school with. I even mailed letters and pictures through an Aunt I found by looking in the phone book and calling everyone with my "old" last name. I wanted to see him, he is not getting any younger and every time we talk he says it's been 5 years since he saw the children. So we went the night before Brynn's appointment on Monday night November 12th. We got a bite to eat, checked in to the Hotel, brought our bags up to the room and left to go to Dad's. I had a hard time getting around trying to remember how to get there... My mind was frazzled and forgetful. Too much to think about I suppose. Everything reminded me about Momma and riding around with her to and from the office. There we were, passing the very building she was murdered in, on the exact day she was murdered 21 years later. I thought it appropriate to take a photo of the moment, I do not think I have ever been at that building on the very day in all the 21 years. So hard to believe that she has been gone that long... Even harder to believe that all of us who loved her have not done anything to make the truth known about her murder. That is exactly what I intend on doing. If any of those that she loved would have been brutally murdered like she was, she would not have let 21 years pass without making sure everyone knew exactly Who did it and Why. So many unanswered questions, and those responsible never had to answer for their part in her murder.  It's just been swept under the rug... in hopes that no one would ever pick it up and start sorting through the details. As I stood there at that building I wondered what keys it still holds to this day. Is there DNA evidence still there? Do the guilty still live in the area? How much of what the Police told us is actually true? Why did they not do anything, why did they fight so hard to let the guilty walk? Who really knows the truth and why after all these years have they not talked? There were a million memories and a million questions fighting for my time in the moments that I stood at the very door.. I remembered being there with Momma when we highlighted my hair... and I remembered going to pick her up and going to the thrift shop for something to do. I thought about the talks we had, the laughs and the serious talks about God and life. I also thought about all those unanswered questions and I thought about what she would look like now, what she would sound like and even what she would smell like now. When I think of her laughing, I can hear her... When I think of our talks, I can hear her voice as if she is right here. She had this way about her of telling you exactly like it was. She didn't bite her tongue, but she wasn't rude or cruel either. I laugh sometimes when I wonder what she would say about something... knowing full well she wouldn't approve and would tell me so. I wish I could remember every talk we ever had and I wish I could remember every detail about her case. I wish too that it never happened and I could share my life with her. I wish I could walk in the door of that old house and see her standing ironing clothes while MASH or Perry Mason plays on the TV. I hate that I have to remember that she was taken like she was. That a human being was so full of hate and rage that they were able to stab a beautiful, loving, unselfish, dedicated Woman and Mother like her 21 times. I hate that we had that uneasy time of separation and rebellion in my older teenage years as I became a woman and stretched my wings and left the nest. I am so thankful that we were able to repair our relationship and build many happy memories before her murder. We will never have the ability to undo what was done, but it is our responsibility as those she loved and cherished to at the very least, let her memory remain alive and a blessing always. Her memory is a blessing in my life, I just wish I had more of them. I guess I will always feel like we had so many more moments to share...
    The next morning we got up, got ready... ate I Hop for breakfast and went to Children's Hospital.
Brynnons VNS settings were upped, but his Neuro decided we will have to take his adjustments a bit slower than usual. He seems to be extra sensitive to it. He coughed when the magnet was used before the settings were raised and said he felt like he would throw up. Now that he has gotten use to it, he doesn't feel sick anymore. When the VNS comes on he says Ahhhhhh, as it makes his voice sound like a robot. He did this the first day every 5 minutes when it came on. Now it's getting further and further apart as he adjust to having it happen. Sometimes he talks through it now and doesn;t pause and say Ahhhh... I have talked with a few people who say that it feels like a tickle or a choking sensation when it comes on. He is doing much better with it now! We will return in December to have it adjusted higher again, unless his seizures surpass his baseline again and we can go in sooner if that happens. Yes, he is back at his baseline again! The Zonegran increase does seem to be holding on and doing it's job... So thankful! We talked about Brynn needing to learn to swallow a pill. His Neuro decided that instead of weaning Depakene he would like to try him on Depakote ER (Depakene is the liquid form). He says that the Extended Release may work better and his dose could possibly be lower. It could explain why he has breakthroughs because the liquids of these drugs tend to work in waves, whereas the ER would stay constant. Seems to make sense to me and I am all for it. Told Brynnon I will give him $5 if he can swallow an M&M and $1 for a Skittle. Cognitively he has made some progress with the Zonegran as well. His processing speed has gained enough to make a noticeable difference when he is talking sometimes. The Neuro feels this is due to the decrease in the little seizures that we cannot see. I will be anxious to see another EEG report with the VNS to see what the difference is once the settings are where they need to be. I wish we could just get a 24 hour Video EEG once a month! That would make it so much easier to know where we are and where we are going! The Neurosurgeon says his incisions look great! They are healing very nicely and are just about completely closed now. The nurse told him the VNS is part of your body now. You need to know where it is and get familiar with it. It's okay to touch it and feel it, it is part of you! Brynn seemed to like this idea and has been very interested in it since she told him that. He asked me what if the battery needs changed and I explained that they will have to do surgery again, but this time they will only replace the part in your chest. He asked if they will connect the wires to the new one, and I said yeah... cool huh? Then he asked what if we change our mind, what if I don't want it anymore. I told him that they can turn it off but they usually will leave it in. He seemed disturbed by this. He asked why, so I told him they can take out the part in your chest, but the wires will always be there. We hope that this is the answer for Brynn and that some day SOON he will be sEiZuRe FrEe!!! 


REMEMBER...
~ November is Epilepsy Awareness Month!! ~

Thursday, November 1, 2012

Surgery & all moved in, back to MS!!


Depart from evil, and do good; seek peace, and pursue it. (Psalms 34:14)

 
Whew, what a ride!  
Look at that smile! :) Day 3 after surgery.
Creek...




The children & I are settling in, back in.. the Mississippi woods!                 What an adventure it has been! Packing for weeks, Brynn's surgery and two U-Hauls later and here we are! Was crying out for Shalom in the home for a very long time in LA, well we got it! There is even a beautiful creek along side the rental property. What a gorgeous view! Brynn has had so much fun exploring and is looking forward to many days on the creek once he is healed all up! Love the peace we are feeling... absolutely wonderful! Who doesn't move to another state and have a few hiccups... I am just glad that the move is complete, well almost. There are still a few things in LA that we have to get here to MS.


In Recovery...

On Oct. 25th Brynnon had the VNS Implant  Surgery. The surgery went well, no complications during surgery. After surgery, well things could have been better. He had a difficult time waking up, had a seizure upon waking and threw up until just before midnight. After that, things have gone uphill. He is healing well, feeling good... Incisions are looking good so far, and he is eating well too!

http://old.epilepsyfoundation.org/about/treatment/vns/vnssurgery.cfm#.UJH_vIUhxq4
 
The children are having fun, getting a break from major Home School work last week and this one. We will prayerfully be back on a better schedule next week, these past few weeks have been so busy and rough! Most of the unpacking is complete, pictures are up... and even staying caught up on dishes and laundry! Ah, the PEACE!   

The LORD bless thee, and keep thee:
The LORD make his face shine upon thee, and be gracious unto thee:
The LORD lift up his countenance upon thee, and give thee peace.
And they shall put my name upon the children of Israel; and I will bless them. (Numbers 6:24-27)

 

Seizures are back to the 4 a week (30 sec. or greater) baseline, mostly Complex Partial, some Tonic and a few Tonic Clonic... Praying that this VNS will help him, but fully aware that this is going to take some time, lots of time if it does help before we see it. Starting to see the little ones return causing the absence type and the little cognitive ones that cause stuttering and slurs when he is talking... The Zonegran increase really helped those, not sure if the return is due to the stress on his body from surgery or if the increase of Zonegran is wearing off. Not too worried, as long as the bigger ones stay at 4 or less a week. Least that is tolerable and so much better than the seizure monster we saw in August... 

\0/ How beautiful upon the mountains are the feet of him that bringeth good tidings, that publisheth peace; \0/ that bringeth good tidings of good, \0/ that publisheth salvation; \0/ that saith unto Zion, \0/ Thy God reigneth! \0/ Thy watchmen shall lift up the voice; \0/ with the voice together shall they sing: \0/ for they shall see eye to eye, when the LORD shall bring again Zion. \0/ Break forth into joy, sing together, ye waste places of Jerusalem: for the LORD hath comforted his people, he hath redeemed Jerusalem. \0/ The LORD hath made bare his holy arm in the eyes of all the nations; and all the ends of the earth shall see the salvation of our God. Depart ye, depart ye, go ye out from thence, touch no unclean [thing]; go ye out of the midst of her; be ye clean, that bear the vessels of the LORD. (Isaiah 52:7-11)

  Don't Forget!!
NOVEMBER IS EPILEPSY AWARENESS MONTH...