Brett finally had his VNS implant surgery on 5/12. The original surgery was postponed due to both Brynn and Brett being infected with Mycoplasma (Walking Pneumonia), which aggravated his asthma. So 6 weeks was needed before he could be put to sleep for his
lungs to heal. Surgery went well, other than his heart rate dropping when it was tested, no problems. It was tested twice after the wire was moved and assumed it was the wire position so it got to stay! His VNS, like Brynn's was left on at lowest setting when they closed and he will return to get checked by neurosurgeon next week,
as well as both boys get to visit with their most favorite Neuro Dr. D. Today is Day 8 and his incisions look great! He did have some possible pus at the chest incision, as well as an ear infection last week, so he has been on antibiotics since Thursday. We are anxious, of course, to see how this will help his seizures.
At present, Brett is having clusters a few times a
week, with days in between with some night time seizures now and again or none at all. This is an improvement from the everyday seizures we saw over the past few months. We are learning to be thankful for every little thing!
“Prayer is not overcoming God’s reluctance, but laying hold of His willingness.” ~Martin Luther
Brynn, however, is holding strong with the greatest seizure freedom he has ever had. Only having small seizures most nights and daytime he is having only really small "lost moments" not obvious bigger complex partials like before. VNS? Onfi? Med combo? All of the above? Who knows,
but we are very happy with his current condition! He is having improvements in his general cognition, and we will likely talk about weaning one of his medications this neuro visit. Pretty exciting stuff!
We have a lot of changes
coming over the next few
weeks, many new experiences... The possibilities are endless! We are all excited!! :) More on that later! ~Denise
"So
we are always of good courage. We know that while we are at home in the
body we are away from the Lord, for we walk by faith, not by sight." ~2 Corinthians 5:6-7
